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Lichen Sclerosus

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    New to LS - start here

    Below are various resources for Lichen Sclerosus from leaflets to useful web sites and recommended discussions. You may wish to reply to this discussion as a way of introducing yourself to other forum members and giving a brief history of your situation. There is a patient leaflet on LS here which also...

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    Lichen Sclerosus Survey Results

    These are the results from the Lichen Sclerosus survey. I am posting the raw data. If anyone wants to analyze the data they are welcome to do so. It might be good for a graduate degree. https://www.surveymonkey.net/results/SM-5BF8TW5D/

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  • WHen does dermovate work?

    Hi, was just diagnosed and started on dermovate 3  weeks ago but I'm still getting flare ups.  I'm using it once every night for 4 weeks then will start every other day etc. My gp diagnosed me after examining me but I've not had a biopsy or anything done. Should the dermovate be...

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  • Medical opinion about using borax?

    Hi there, people on this site are reporting good results about the use of diluted borax.  When I mentioned this to my specialist she was critical and advised strongly against.  Does anyone have more positive experience of a doctor being encouraging about the use of borax?  Every best wish.

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  • No white patches

    Hi folks After a visit to the dermatologist today, she advised me that I have all the symptoms of lichen sclerosis, except for the white patches. I have been given lotriderm cream and double base as a wash and moisturiser. Have any of you used this cream and does it take away the horrendous itching...

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  • Stem cell treatment

    Hi Everyone, Hope you're all coping with your symptoms and not suffering too much. I haven't posted on here for a long while but felt someone may be able to help.  I was diagnosed with LS about 4 years  ago (think I've had it mildly for longer than 4 years).  I currently use...

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  • Diet change helps lichen sclerosis

    I’ve suffered with vaginal lichen sclerosis for over 35 years. I’ve tried everything from emu oil , to borax to prp. I’ve changed my diet and it has changed my life dramatically. Not one EXPERT suggested this. I no longer have soak in borax or lay with ice packs. My lesions that went unheard for 6 months...

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  • Just received my Hydromol ointment today, I LOVE IT!

    Thank you so much to Caroline, Justine and everyone else that recommended it. It's the one!!!  it does have a Vaseline like feel to it which I love, it acts a barrier without feeling wet, haven't been this comfy for months 😊 My husband laughs and says not another cream, I have tried...

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  • lichen or vitiligo

    I'm a 35 yr old male. Six months ago started getting white spots and lines connecting them on my penis head. First dermatologist said it was nothing...He gave me protopic and it hasn't helped...went back again he said its nothing...I got a second opinion seeing that it is spreading...He said...

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  • Sore bum

    I have been reading about your sore bottom's, and i did think i was the only one, it's driving me crazy, I'm in the bath 3 times a day if not more, I even thought yesterday that it my be the oranges that i eat, And it is like nappy rash

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  • A question about Lichen Sclerosis

    Hi everyone, Lichen Sclerosis is an external skin condition as I have been informed, however, I was wondering does anyone else have any internal symptoms. The opening of my vagina and inside is red raw and swollen, is this part of the Lichen? The nurse thought I had thrush before being diagnosed with...

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  • Can I buy dermovate in Asia?!

    Hi everyone I need some help!  I'm from the UK and going travelling next Sunday for 5 months around Asia (Singapore, Malaysia, Philippines, Vietnam, Thailand, Myanmar and India).  I am having troubles getting dermovate for my travels.  I have changed GPs as have finished uni in Bristol...

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  • Not sure what is going on... Possible LS

    I gave birth to my last baby may of 2016. I am breast feeding and got my period back at 18 months postpartum and have had 2 so far (21 post partum now). Six months after he was born I started getting very itchy above my clitoris to the right of it and occasionally on my perenium. I do not have any white...

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  • Nutritional Support Protocol for Autoimmune Diseases

    NUTRITIONAL SUPPORT PROTOCOL for AUTOIMMUNE DISEASES With attention also for the Hormone imbalance presumed in LICHEN SCLEROSUS Developed Jan-Feb 2018  by Nancy K Baumgarten, MLA   Hendersonville NC USA (age 72)  Autoimmune and inflammatory issues are best managed with one or another...

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  • Clitoral and Labial Fusing

    Hello everyone!  It has been a LONG time since I posted here but have been reading for two days.  Not sure exactly what I'm looking for...maybe just some reassurance or someone to talk to. To start, I am 53 years old now and am officially menopausal.  Over the last 10 years, I've...

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  • 18 year old with Lichen Sclerosus

    Hey everybody, I'm 18 and I have just been recently diagnoses with LS. I must admit I am nervous about the diagnosis because my college obgyn said she thinks  LS but she wasn't sure.( Prior to that  I had yeast infection that would not go away and my perineum was tight and damaged with...

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  • Does this look like lichen sclerosus? Pictures

    I posted in another forum and someone suggested I ask here. I've been feeling uncomfortable and when I looked, I noticed these white bumps in different parts of my vulva. I've noticed some before but they seem to be more pronounced and in more places. I also seem to be much dryer than usual....

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  • Red and sore around bottom

    ive had some redness and been quite sore between the cheeks of my bum for a couple of weeks now. I seem to have tried everything ie. Bathing with bicarbonate wash after each toilet visit, moisturising with Emu oil or Sudacreme, Clob at night to no avail. I think it maybe LS but not sure, there are no...

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  • Biopsy Negative but symptoms there ...?

    I just got a biopsy done 2 weeks ago, the doctor said he does not see anything bad but he wants me to come back to get a  bigger biopsy (to examine a larger area) My friends and family think it's all in my head but my vulva has been going through so many changes since last year of January and...

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  • What possible past history caused LS to start?

    I am wondering how many of us have a clue as to why we got LS in the first place. The medical profession don't know what causes it, but could we help find it?  When I was 60, I had a smear test showing slight abnormality (ironically it would have been my last routine one) and HPV presence. Gynae...

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  • I have had stem cell treatment for LS, IT WORKS

    For all you ladies with LS, I had stem cell treatment in Italy in September 2013, the LS has just started to come back. I had 3 months where the stem cells were kicking in, 12 months relief, and 3 months of i9t wearing off, so now I need more treatment. The person who first applied stem cell treatment...

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  • Vitamin D3 and Garlic pills

    The past couple of months I have been having trouble with yeast infections and tearing during sex. I took the advice of Nancy KB and did some research for the yeast which introduced me to both vitamin D3 and Garlic. I now take 1000mg of garlic each day and take 2000IU of Vitamin D3. I have been doing...

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  • Emuaid

    Ladies I want to let you know that Emuaid is not as innocuous as it seems. I've been using it for 3 weeks and now I have red, raw irritated skin. Two Gyn doctors have told me it will take several weeks to heal this! So just be aware of this. It's not a miracle cure! I have proof of that!

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  • Maintenance/Recovery Premise from Lichen Sclerosus

    Okay, GALS and guys, Here is my two-week best literature search and analysis for long-term maintenance/recovery from Lichen Sclerosus, a now proven autoimmune disease.  I’m sure others could add to this, and many of you have more years experience with dealing with it.   I’ve also made...

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  • I think I have LS ??please help??

    Can someone please tell me if my symptoms sound like LS? I’ve been dealing with these small painful Papercut looking cuts on my vulva and vaginal area  For a while now .whenever I go to the doctor they just told me that I have a yeast infection but I know this is not what i am dealing with....

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  • Can I have an idiot's guide....

    Saw gynie last week who confirmed my suspicions of LS. She said that i have lost quite a lot of the 'architecture' and that my clitoris has fused (and that it was quite advanced because fusing doesn't happen in early cases). She's prescribed dermovate nightly for a month and then every...

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  • Has anyone had a biopsy for their LS?

    Hi Ladies! I was referred to Gynae recently and saw them 2 weeks ago re LS.  I was told I would have to have a biopsy.   The consultant I saw didn't even examine me!  I was actually in and out of that consultation room within 10 minutes.  So today I receive a telephone call from...

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  • Sore bottom

    Ladies my bottom between the butt cheeks is really red and hurts like heck.  I dk if this has to do with the ls.   But it hurts and I’m uncomftorable exspecially at work.   Is there anything I can put there to help the soreness?  This started after wiping so much because I’ve been...

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  • Newly Diagnosed

    Hello there everyone Back in November I had a really bad UTI and since then have been left with a constant sensation of feeling like I need a wee all the time even though I don't. I had an ultrasound which was clear and had a cytoscopy last week which also showes nothing. My GP had a look at...

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  • Labia Minora Punch Biopsy Recovery

    Unexpectedly had a Labia Minora punch biopsy Thursday afternoon & have been in tremendous pain. The doctor suspected Lichen Sclerosis & did gave me a shot right in the labia Minora which really hurt, then did the punch biopsy & cauterized w/ silver nitrate after. Sent me home w/an expired...

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  • So depressed :-(

    So I’m sat  here, 31 years old, trying not to scratch myself to bits, and thinking is this my life now? My sex life has dropped dramatically, cancelled my wedding because of this horrible disease and just thinking this wasn’t what i thought I’d be doing at this age! I’m doing everything I can to...

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