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Lichen Sclerosus

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    New to LS - start here

    Below are various resources for Lichen Sclerosus from leaflets to useful web sites and recommended discussions. You may wish to reply to this discussion as a way of introducing yourself to other forum members and giving a brief history of your situation. There is a guide to using the forums here: http://patient.uservoice.com/knowledgebase/topics/59133-discussion-forums...

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    Lichen Sclerosus Survey Results

    These are the results from the Lichen Sclerosus survey. I am posting the raw data. If anyone wants to analyze the data they are welcome to do so. It might be good for a graduate degree. https://www.surveymonkey.net/results/SM-5BF8TW5D/

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  • In the gutter , feeling Rock Bottom.. !

    Hi Ladies,  Well, it's been about 4 yrs since i last posted, i've struggled with this damn disease & i have to say, i feel totally beaten by it. I've tried to do everything to help myself, changed my diet, lost weight, got stuck into exercise (which actually irratated the situation,...

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  • Newspaper.

    ive been remaining positive and applying clob weekly as directed by the clinic lady.  Then I go and read an interesting looking article in the Daily Mirror, I wished I hadn't.  Need a chat to ladies as my confidence has plummeted.  Apparently she had itching for twenty years and said...

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  • Newly diagnosed

    I'm so depressed about this new diagnosis. I had no idea what it was that was wrong with me. I was embarrassed and afraid to tell anyone. Went to the doctors and got a really nice obgyn and she took the time to explain what was going on. Although I'm glad to have an answer I feel like my life...

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  • Lichen sclerosis worries

    I was diagnosed almost 3 years ago with LS. It was struggle at first as first gyn I went to was treating me for fungal rash. I only had a lot of redness and no itching so he didn't think it was LS. Took three months to finally have biopsy and get results, by then I was looking for new gyn. A friend...

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  • Borax??

    Hi I've just been diagnosed with LS yesterday. To say I'm shell shocked is an understatement. Gynaecologist told me as if it was no big deal, gave me no advice or information. I'm looking for any tips or advice and  I see in some discussions Borax has been mentioned. When I google it,...

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  • Newly diagnosed-Vancouver, BC seeking local resources

    I'm newly diagnosed with lichens sclerosus, living in Vancouver Canada and I don't have a gynecologist yet. My GP got me an appointment a year from now at the vulvar clinic. I managed to get myself an appointment with a gynecologist 6 months from now. My issue is that I'm not completely convinced...

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  • What type of doctor is best - gynecologist? dermatologist?

    I'm looking for a good LS-knowledgeable doctor in Northern California to get some better help.   Most of the referrals I'm seeing are for dermatologists.  i was kind of hoping for a gynecologist because of all my female parts involved.  Does anyone have any comments on which...

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  • Bloating?

    Is anyone else having trouble with bloating?   I suspect it's related to either the clobatesol steroid or the estrace cream.

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  • 21 year old with lichens

    Hi all, I've not posted in many months. This condition unfortunately keeps me busy and often times, very depressed. I went back to the family planning practice who originally informally diagnosed me with Lichens. If you've read my previous posts, you'll see that this condition runs in my...

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  • proper diagnosis and treatment?

    can anyone explain to me why my GP has told me she suspects I have LS and gynacologist confirms I have fusing which I can see, but neither of them have suggested starting any steroid treatment. I have had itching/'buzzing' for 4 years. I also found a lump which they both say is a 'skin tag'...

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  • Any new posts on lichen sclerosis ?

    I have been suffering over a year now. I used Protopic and even in combination with estrogen, I had no success. Finally went to another gynocoligist yesterday and he has given me 3 different creams to use over the next six months before I see him again. Yesterday , he had to stretch some of my vulva...

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  • I need advice

    Hi everyone, So many questions! Where to start?! I feel so frustrated and alone. Thank God, I found this forum. Question #1: Can using Clob mess with the results of a biopsy? I had one in June and was told that it came back negative for LS. My issue is that, I had been using Clob for while by then...

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  • Lichen Sclerosis and Thyroid problems

    Hi everyone, I've been reading all the posts with much interest and what a relief it is to find that I am not alone! I am 70 and have had LS for 18 months now, having been diagnosed by a skin specialist. But it took a good 12 months to get there after I kept being diagnosed with urine infections...

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  • LS help needed

    Hello everyone, I just do not know more ... For a year I've been suffering from LS. The disease occurred suddenly and very aggressively in the fourth month of gestation. I was constantly in pain. My doctor advised me, however, to a normal birth.Und after delivery, the disease was first diagnosed....

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  • understanding ls

    i am 74 years old and am pretty sure i have had this condition for a long time before. i was officially diagnosed about 4 months ago by my internist just by a physical exam.  i don't know if anyone can answer this but i was wondering what it is that causes my discomfort - it feels like pinching....

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  • Answers

    Hi Everyone. Has anyone with Lichen sclerosis got Fibromyalgia. Besides LS I have got a lot of other health issues. I cannot get the answer to my other health issues. Fed up with going to doctors , Fed up. My list of complaints is gettin longer by the day. It would be interesting to know. X

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  • Daughter with LS

    Hi, Just found this forum and I'm sure if I looked through all 47 pages I could find some info on daughters but I am a busy mom! My 10 year old daugther was diagnosed with LS 1.5 years ago. She does not have any symptoms other than whitening of the skin, and upon diagnoses had one "blood blister"...

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  • mona lisa touch

    hi all i had my first treatment of the mona lisa touch a week ago  i will need to have another one before doing the homework if you know what mean. but it was was itchy for most of this week not sure if it was the cause or that i had a cold sore on my lip come up at the same time cos i get itchy...

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  • Mona Lisa Laser for tear

    I'm 25 and was diagnosed with LS two years ago after having recurring tearing at the 6 oclock spot during sex.  I have minor itching and a small spot with some fusing. I keep these symptoms at bay by using Clob now once a week and vaseline every day to keep it moisurized. When I have itching...

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  • LS and the effects on the urinary tract

    Has anyone experienced any bladder symptoms that have been linked to LS? I've recently passed blood (a lot) in my urine and there was no infection and I've experienced bladder aching. I am having this investigated separately but wondered if anyone had anything similar that was linked to LS,...

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  • Scared of Lichen sclerosus diagnosis, I'm 32

    Hello, I'm 32 and was diagnosed with what they thought was LS last October. He said it could also be as I was breastfeeding, due to my hormones. Well now a year later, I still have it. Soreness, itching, symmetrical thin white patches and red areas. I am so scared of this turning cancerous. I really...

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  • Lichen Sclerosis

    I have had lichen sclerosis for a couple of years now. It is the genital area. I have been using a corticosteroids which have helped imensly. I am wondering if this mecication will also thin the skin? For those of you who think you may have this, don't even hesitate to see a doctor. I didn't...

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  • A question about Lichen Sclerosis

    Hi everyone, Lichen Sclerosis is an external skin condition as I have been informed, however, I was wondering does anyone else have any internal symptoms. The opening of my vagina and inside is red raw and swollen, is this part of the Lichen? The nurse thought I had thrush before being diagnosed with...

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  • No white patches

    Hi folks After a visit to the dermatologist today, she advised me that I have all the symptoms of lichen sclerosis, except for the white patches. I have been given lotriderm cream and double base as a wash and moisturiser. Have any of you used this cream and does it take away the horrendous itching...

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  • I am in so much pain I'm reaching out for help ...very sad.

    I am 65 and have had this condition for 6 years. Ihave tried all the home remedies.Everything burns like crazy. Everytime I see the doctor she tells me to keep using clobetasol and estrogen.I've had some success,but now the skin is really getting thin.Extra stress has sent me into a very painful...

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  • cant stop crying,please help

    does this look like lichen sclerosus?its kind of itchy and thought it was a yeast infection, clomatrizole relieves the itchiness momentary, but its still itchy. id appreciate it SO MUCH f you took the time to answer.

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  • Stem cell treatment

    Hi Everyone, Hope you're all coping with your symptoms and not suffering too much. I haven't posted on here for a long while but felt someone may be able to help.  I was diagnosed with LS about 4 years  ago (think I've had it mildly for longer than 4 years).  I currently use...

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  • Not only LS but also frozen shoulder.

    Is there a relation between the two as they have something in common namely the change in tissue through fibrosis. anyone with the same experience and what did you take or apply to find relief?

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  • Sore

    I was diagnosed with LS a couple of months ago. I didn't know what hit me. I thought it was Thrush, treated it, as you do. Went to the Doctor's finally and he Diagnosed LS. I am really glad I found this forum, I need to know I am not on my own. All information greatly received x

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  • There seems to be no answer

    I have had a burning sensation in the cheeks of my buttocks and vulva on reading other posts it seems there is no cure. I started to feel like this after having shingles but don't know if there is a connection . Doctor keeps giving dermovate to try and elevate the problem until I get the hospital...

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  • This helps!

    I am 69.  Female GYN diagnosed LS few weeks ago, but now realize I have had it for years.  Labia minora are disappearing.  I bought an ointment called V-Magic at amazon.  Have to say, this stuff really has helped.  It has all the good things recommended for skincare:  aloe,...

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  • Red and sore around bottom

    ive had some redness and been quite sore between the cheeks of my bum for a couple of weeks now. I seem to have tried everything ie. Bathing with bicarbonate wash after each toilet visit, moisturising with Emu oil or Sudacreme, Clob at night to no avail. I think it maybe LS but not sure, there are no...

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