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Lichen Sclerosus

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    New to LS - start here

    Below are various resources for Lichen Sclerosus from leaflets to useful web sites and recommended discussions. You may wish to reply to this discussion as a way of introducing yourself to other forum members and giving a brief history of your situation. There is a patient leaflet on LS here which also...

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    Lichen Sclerosus Survey Results

    These are the results from the Lichen Sclerosus survey. I am posting the raw data. If anyone wants to analyze the data they are welcome to do so. It might be good for a graduate degree. https://www.surveymonkey.net/results/SM-5BF8TW5D/

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  • Uh Oh... some fusing and I didn't know it- HELP!

    OH gosh gals - I have to admit i didn't now what you all meant by fusing for these last months - oh duh... my labia weren't stuck together and I don't have a partner, so... ugh well now I just realized that this "fusing" extends upwards from the perineum - ouch.  dang this...

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  • LS and dry everything?

    I have recently been diagnosed with LS and wondered if anyone out there has linked it with extremely dry skin all over? Even my hair and fingernails are very dry. Doc didn't comment when I told her that my skin all over is very dry. I suppose being post menopausal I would have dryer skin but I think...

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  • White patches Increasing

    Now been diagnosed 3mnths but suffering for a year now . I have changed my diet gluten free. Sugar free, no alcohol, zinc,vit D,B. I use Derma 500 lotion to wash ( been my saviour) Spray with bicarb and once per week at the most twice bicarb baths. As i found bathing everyday was too much. I use Betnovate...

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  • What type of Dr to you go to for LS?

    I was diagnosed with LS by my gyno after 2 visits, multiple tests for STD’s and 6 vulvular biopsies (All done at the same time). Results were given to me, over the phone, by a nurse, as my Dr went on a six week sabbatical. No referral? No prescription? No treatment plan? I hv been handling this on my...

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  • Newly diagnosed

    I'm a 47yo female who was diagnosed with LS about 4 wks ago. Been to the gp and gynae several times for painful sex to be told that my pelvic floor muscles are excessively tight and need to do PVM exercises to loosen. Also to go on HRT for dryness.. so around 10 years of putting up with pain from...

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  • Purple grey discoloration after 2 days of clob ointment

    Hey there,  I’m newly diagnosed with LS and had a biopsy 3 weeks ago that confirmed. My doctor prescribed clob ointment every day for a week and then twice a week for the rest of my life for maintenance. Once I Was diagnosed I found this forum and saw women who were taking the natural route so...

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  • Lichen sclerosus - newly diagnosed - endometrial ablation

    I was told I “possibly” had lichen sclerosus a year ago.. never had any symptoms other than whitening of the skin around my bottom.  A couple of months ago I had a routine pap as well as a biopsy due to problematic skin around my bottom, and a consultation for endometrial ablation due to heavy periods....

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  • Please explain “ Borax”

    Okay ladies, I hv been reading tjis blog for several days now and everyone is talking about Borax? Growing up in America, Borax is known as a detergent/ cleaner? I understand Boron being important and taking a supplement, but are ya’ll bathing in a tub of baking soda and detergent? Please explain! 🙄🙄🙄

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  • Lichen Sclerosus and periods

    Sorry guys, this one is for the ladies. So I am 11 days diagnosed, on vacation, watching what I eat, bathing in baking soda, wearing cotton panties and sing homeopathic cream and think things are calmingA down itching gas gone from 10-2 , pain has gone from 12-1, and then whammy! I get my oeriod and...

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  • Advice for cleanser/soap? Is Cetaphil ok?

    Hi  I’ve been using cetaphil for cleansing the area down there for LS, but this was only recommended years ago. A couple years ago my derm told me only to bathe with warm water. Unfortunately that does not work for me re normal odor that happens when one doesn’t bathe. Even hot water is not enough....

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  • Double underwear for incontinance

    I usually wear a mini pad that aggravates my LS. I found wearing a good cotton ( breathable) panties next to my skin, then a second pair with the pad has all but healed me! No more itching.  Hope this helps someone else !

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  • Support group Bristol

    Just wondered if following discussions a few years ago, if a support group was set up in Bristol?  I was diagnosed 2 yrs ago and would like to be able to chat or meet with fellow sufferers. 

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  • What always triggers your LS symptoms?

    Most of us that post on here know that Sugar is the main problem for LS. That being said there are other triggers and I thought it would be interesting for people to say and share what causes a flare up for them from time to time. I have a lot of food intolerances/allergies.  The other day...

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  • Newly diagnosed with LS- any info appreciated!

    i All- I am newly diagnosed with LS a week ago and have been voraciously reading everything I can on it. My doctor is away for the next 6 weeks and left  ( nurse called to tell me diagnosis over the phone! ) with no prescription, no treatment discussion and I feel like I am on my own to handle this!...

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  • Orgasm

    I find sometimes that the itch is almost relieved once I reach orgasm, it's almost a relief... does anyone else find this ? Xx

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  • LA Blisters

    Hi ladies! So I recently found a few blisters and I know that is something that might happen. I started off with just a white patch and I have been using my steroid cream but the white patch never went away. I think it might have even gotten bigger ! 😢😢 But now I have these blisters...

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  • LS and orgasms

    Hi, I am new to this forum and very glad I have found it!! I have had LS for about 5 years but was only diagonsed about a year ago.  I am 53 year old woman and not quite through the menopause yet.... I was prescribed Dermovate to treate my LS symptoms and it has been working very well but recently...

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  • Lichen Sclerosis and HRT

    I was on HRT tablets from the age of 36 due to a total hysterectomy. At age 58 I was told to come off and developed LS. I was sent to see an older male gaenacologist, who told me to get back on it and stay on it. The LS was never treated and I had 7 more great years. Last year a young doctor told me...

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  • LP

    So today I went to the dentist and as well as LS I gave oral Kichen Planus to add to my bag , along with a rash on my lower back , inner arms and top of my feet . Not too itchy been putting steroid cream on . But just something else to deal with , can anyone advise please . Just beginning to get my head...

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  • Newly diagnosed

    I am newly diagnosed. My Doctor prescribed me with betamethasone cream twice daily for 6 weeks and then taper down to find a maintenance dose. I feel like 6 weeks is too long, has anybody used this cream that long daily?

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  • Clitoral and Labial Fusing

    Hello everyone!  It has been a LONG time since I posted here but have been reading for two days.  Not sure exactly what I'm looking for...maybe just some reassurance or someone to talk to. To start, I am 53 years old now and am officially menopausal.  Over the last 10 years, I've...

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  • Fusing might be releasing!!!

    Ladies!!! I was doing my twice daily treatment  - baking soda water then borax solution then moisturize and while I was doing the borax I noticed a little  stinging & kind of sore spot - then felt around as I applied v-magic moisturizer with an ever so tiny bit of dermovate cream - and...

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  • Extremely rapid labia fusion

    I have a specialist appointment in two weeks.  In the last three days the bit of my labia that I had has melted away. How can this happen so fast? I have been using clob, and don't have any pain irritation or itching. How is it that my body is absorbing parts? I am so depressed. I'm so...

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  • alternative therapies

    I have an appointment in early June with a national board fellow in acupuncture and Chinese pharmacology. He is the director at a Center for Integrative Chinese Medicine.  I am hoping he can make some suggestions to better manage my LS with herbs or accupuncture and better balance my immune system....

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  • Clobetasol

    I am in a love-hate relationship with this medication. In the past, it has helped with the itch and fissures but lately, I have noticed that I am starting to get yeast infections very easily. I read that long-term steroid use can make you more susceptible to yeast infections. It is all...

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  • Dead Sea Salts

    Have any of my fellow sufferers ever tried bathing in Dead Sea Bath Salts?  Good for psoriasis.  Thinking it should be good for LS???? Any thoughts?

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  • What should I do?

     My sexual partner and I did doggy style was penis was constantly rubbing against the area between my vagina open and my butt hole. It rubbed the area raw and now  it burns to touch and on top of that my scratching made it worse.  What is going on  and does anyone know how to make...

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  • LS newbie

    Hey guys and girls.  So I was diagnosed with Lichen Sclerosus on my penis around a week ago now. It’s been a hell of a learning curve so far but I think I’m beginning to get a handle on what this condition entails. I’m a 28 year old single guy, so as you can imagine, accepting a debilitating progression...

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