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Lichen Sclerosus

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    Lichen Sclerosus Survey Results

    These are the results from the Lichen Sclerosus survey. I am posting the raw data. If anyone wants to analyze the data they are welcome to do so. It might be good for a graduate degree. https://www.surveymonkey.net/results/SM-5BF8TW5D/

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    New to LS - start here

    Below are various resources for Lichen Sclerosus from leaflets to useful web sites and recommended discussions. You may wish to reply to this discussion as a way of introducing yourself to other forum members and giving a brief history of your situation. There is a patient leaflet on LS here which also...

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  • I have had stem cell treatment for LS, IT WORKS

    For all you ladies with LS, I had stem cell treatment in Italy in September 2013, the LS has just started to come back. I had 3 months where the stem cells were kicking in, 12 months relief, and 3 months of i9t wearing off, so now I need more treatment. The person who first applied stem cell treatment...

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  • No white patches

    Hi folks After a visit to the dermatologist today, she advised me that I have all the symptoms of lichen sclerosis, except for the white patches. I have been given lotriderm cream and double base as a wash and moisturiser. Have any of you used this cream and does it take away the horrendous itching...

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  • Using Oils - Need Suggestions

    Hey everyone, I’m interested in what more I can do for my LS at home. I’ve read the “experiment with borax” thread and I will be purchasing borax to try the solution. I’ve also seen many posts suggesting baking soda baths. I’m specifically interested in oils for moisturizing. Right now the only thing...

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  • LS - punch biopsy and travel question

    I have a punch biopsy coming up of the vulva (fourcette area) and I am quite worried.  Because I recently moved to a new city, I am travelling a few hours back to my old city to have it done (so that my healthcare is consistent).  During my last check-up, my regular consultant was away. ...

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  • Hello ladies, just introducing myself here as a newbie.

    I was only diagnosed with LS a week ago, and like many others on here, really struggling to get my head round it, it's been devastating. I'm 57, had a total abdominal hysterectomy 13 months ago due to pre-cancer of endometrium. I think that caused a shock to the system, along with the instant...

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  • Feeling Hopeless

    I’m 70 years old. For the past 6 years I’ve had vaginal dryness - on and off. I’ve used vagifem and numerous other hormonal creams including compounded creams. Nothing really helps  At my last visit a month ago my urogynocologist told me I have LS. She worded it by saying you have a skin disease....

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  • Diabetic medication

    Hello I am so pleased to have found this forum. I am 63 and have had Lichen Sclerosus for some years and have had occasional flare ups. However, the last month or so have been ghastly, I have wanted to tear at my skin and have often been unable to sleep. I saw the consultant today who said he was a...

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  • Lichen Sclerosis and Thyroid problems

    Hi everyone, I've been reading all the posts with much interest and what a relief it is to find that I am not alone! I am 70 and have had LS for 18 months now, having been diagnosed by a skin specialist. But it took a good 12 months to get there after I kept being diagnosed with urine infections...

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  • Labia minora shrinking

    hi everyone  i am new here and diagnosed abut 2 weeks ago and using clob for the past week.  I can say most of the white patches have disappeared but I’ve noticed labia shrinking.  Is this normal?  Is the clob doing this?  It really freaks me out loosing that part.  Any...

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  • Double Z Plasty with VY advancement

    Anyone had one of these?   Its an alternative to a fentons procedure and is designed to sort out that bit of skin at the entrance to the vagina which keeps splitting. I am going in on Friday to have it done.....   i have had to wait since I saw the surgeon in October, but although i am nervous,...

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  • Undiagnosed Litchen schlerosus

    Hello, I was reffered to gyny/dermatology clinic as my gp thought I had Litchen Schlerosus and it took me a long time to pluck up the courage to see gp. The gyny asked me no questions at all simply took a look and  thought it was LS aswell but did a biopsy and has said the biopsy is clear so it...

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  • LS and Woman's hour (UK ladies)

    Hello all you ladies in the UK. A couple of years ago I wrote to Woman's hour on Radio 4, asking them to cover LS in one of their programmes. I was told that there was no need as they had covered it a couple of years previously! Could lots of you write in and ask for it? If we explained the lack...

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  • Just got diagnosed with LS

    Hi, I've just been diagnosed with LS, only by chance as was seeing Rectal Consultant for Piles! He has suggested I have LS aswell as a Fissure. Probably since June this year I started suffering what I thought was Piles which turned out to be Fissure. At the same time I mentioned to my GP I had started...

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  • Has anyone had a biopsy for their LS?

    Hi Ladies! I was referred to Gynae recently and saw them 2 weeks ago re LS.  I was told I would have to have a biopsy.   The consultant I saw didn't even examine me!  I was actually in and out of that consultation room within 10 minutes.  So today I receive a telephone call from...

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  • Trying to raise awareness

    To all UK Guardian readers, I've just e-mailed a piece about LS to the 'My life in Sex,' column. Let's hope they print it! I'm trying to raise awareness.

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  • Lichen sclerosis treatment

    I have a patient who had been suffering from LS for 2 yrs now. He had terrible itching, whitish skin in the perineum and anus, and a thickening of tissue. He was diagnosed with LS. I gave him a chinese herbal antifungal paste. It burned at first for a few days, then the itching stopped. We are waiting...

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  • I've been here, before

    I realized after being diagnosed with L.S. that besides my doctor prescribing the clob, no other maintenance was discussed and frankly I was too upset to think. In addition to this forum, I also joined a FB group, though not sure how long I will stay. Reading these posts and on FB are more overwhelming...

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  • Very worried

    went for 6 month LS check with specialist. I asked her about a very small freckle/mole on my right labia (which has partially melted) not sure how long it has been there maybe a few months, but as I said it is very small. She checked and said it is a mole and there is nothing suspicious about it so no...

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  • 110% relief for me in one day try it

    Hi ladies and gents and yes men can suffer from L/S too, l'm 63 and l have suffered from L/S for more than 8 years now and in fact at one stage l had 13 ulcers at once the pain was undescribable and l was hospitalised with it as l could not pee, then on other occasions when l would get an...

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  • Daughter aged 10 diagnosed with Lichen sclerosus

    Hi My daughter has unfortunately  been diagnosed with this condition.  Apparently there is a chance she will grow out of it in puberty.  Does anybody have a child who has grown out of it as they went through puberty?  Many thanks for your help. It feels difficult to get information.

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  • Hey I might have LS and I'm just it's 22

    I have this patch of Irritating hypopigmentation on my labia since three years and now they're planning to take a biopsy first they thought it's only eczema . I'm scared about biopsy cause the area is already so irritated and painful I have a feeling the  biopsy won't heal. Those...

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  • Recently diagnosed and confused

    Hi I was diagnosed with LS about 2 months ago, or at least the hospital doctor said it was either LS or Lichen Simplex. She clearly was not keen to give me a definitive diagnosis. She diagnosed on examination without a biopsy, and prescribed eumovate cream and aqueous cream. I was told to use the eumovate...

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  • 57 African American Female who made have lichen sclerosis.

    I replied to a post that was 3 years old. I have an appointment with a gynecologist, next week. Been celibate for almost 4 years and have been dealing with uncontrolled high blood pressure, congestive heart failure and severe sleep apnea. I have worked so heart to get these conditions at a manageable...

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  • Lichen sclerosus Clitoris disappearing

    Hi, have been diagnosed with lichen sclerosus for a few years. The mad itching has stopped and I though it all better but to my horror, my labia minora and clitoris have practically disappeared. i know some folk have said the parts have fused rather than shrunk. Is this true even of the clitoris? I can't...

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  • I think I have lichen sclerosus?

    Hello everyone, I am a 18 year old female and I know that's a unusual age for lichen sclerosus. I went to my GP today and I told her that I have white plaques on both sides of my vulva and I it looks like one side of my clitorus has fused to my clitoral hood.  However, she dismissed me but...

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  • litchen sclerosis

    I was first diagnosed with this condition about 8years ago, awful itching , numerous creams etc, I was advised to use dermavate every other day then twice a week and it's been under control more or less, however I now have 2 major problems the awful itching which isn't releaved by the dermavate...

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  • Clobetasol & Lower Abdominal Pain

    Hello! How nice to find a group of women with the same affliction (and also how sad that there are so many of us that we have our own group!). I was wondering if anyone has experienced lower abdominal pain (feels like gas cramps but isn't gas) using clobetasol? I've had this pain for almost a...

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  • Borax Bath

    Where to buy borax and which brand. What is the amount for the bath to soak?  Does this help the itching swelling and slits? I heard drinking borax helps too. How much ?  Thank you Bella

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  • An Experiment with Borax

    So, I've been in Vietnam now for just over a month. Haven't had any itching, but the white plaque has expanded and looked like a bit more fusing had occured. Panic set in and of course I was trying not to. However, now that we're here, my husband has been able to start doing more research...

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