My Severe Case - Lichen Sclerosus [LS] With Pictures. I need YOUR help.

If you are reading this sentence, please continue. I need YOUR help.

In this submission, im going to tell you how I think I got it, a short backstory and I will also share my very intimate pictures and so on. 

So I will try to make it all very short and clear as possible. And thank you if you're taking even a minute to read this or if you're giving me some advice. 

To begin with, I am a 22 year old female.  I do not smoke, drink alcohol or had any sex. (If that even matters.)

When I was 14 y/o I got into a really depressing state. Due to trauma, stress which lead to my depression I've had for years now. 

At 15 I got into really bad habits. I stopped with all my hobbies such as martial arts, swimming, singing. I stopped going out from my house, I dropped out from school.  Didnt see the sun for weeks sometimes. Didn't leave my house for months. 

My sleep got affected fast, and all the sudden I could not sleep. I was worried 24/7.

And from that, my anus (the outside) started to itch tremendously. The itch never stopped, but it was worse at night.  

I scratched my bare raw skin, and I could feel my own skin layer fall off. And from that, I noticed pigmentation change. 

The itching grew from anus to vagina/vulva - around and not inside. And from that it grew to my groins. And there I was, for years, trying to substain whatever condition I was in. But I never stopped scratch my skin. I scratched minute by minute, hour by hour. Due to the horrible itch I can not sleep at night. And I can say I havent had a good night sleep since 7 years ago.

I am mad at myself that I stopped care about myself years ago. I am mad at myself, I didn't do anything sooner about it. I was and still am - in a bad psychological state, also emotionally, physically, mentally. This has affected me in every single way and I can't live like a normal human being anymore. 

I can't work, it burns, itches, I can't wear pants, jeans, leggings, or underwear. 

Each day I can slightly touch my for example. my groin - and a skin layer falls off in my own very hands.

I also can't pee normally. I can not hold my pee and I have peed myself several times. I even have to have a potty right next to my bed because when i gotta pee, there's no time to run to bathroom. It sometimes hurts when I pee too.

Besides from my horrible itch, that is mentally draining, some other strange symptoms is:

- White or yellow coated tongue in the morning.

- Awefull breathe no matter how much I brush tongue, teeth, mouth overall.

- White fog in my yellow pee.

- MUCUS/Phlegm stuck in my throat every morning. 

- White pubic hair: Yes you heard it. I've started to grow white pubic hair on vulva. 

  I also have started to grow white hair in the back of my head/neck area.

- I gained 30 kgs within a year from when I was 15-16 y/o.

-Along with that, my anus/vagina oozes out.. how to say it.. a rotten smell? Its super damp, and smells rotten. I've also noticed small scarring on vulva..

I've lived in this horrible draining condition for 7 years without seeking medical help.

And I then decided - it's time for a change.

So, I recently went to the western doctors. They took some blood tests and they said nothing was wrong with my liver or kidney. They were perfectly healthy. I also took urine test, and nothing was wrong with my urine.

The only thing they told me was that my Vitamin - D levels was really low. And he prescribed ' Vitamin D capsules '.  He also did mention I have low blood pressure.

He mentioned that I " might """ had an overactive thyroid. And if it's anything serious he would call me in again to take some other tests. But I never heard back from him.

So I went to another doctor and showed him my little 'situation' down there between my legs. He had no idea what it was, but he just prescribed an cortison cream to just cool it down and he told me that I've to live with it. 

I'm also gonna add,  around anus and vagina area. It is either VERY dry or VERY moist. It feels like im always heating up down there.

I later then, instead of going to hospital - I went to a clinic to visit a woman who practice Traditional Chinese Medecine, and that's what she has been doing for 30 years she said. 

She examined me, took my pulse, looked at my tongue, eyes, and then she took a look at my anus/vulva situation.

My tongue was white/yellow coated. And so was my eyes - yellow. 

She told me I'd a condition called ' Damp Head '  and then she mentioned that I have

Lichen Sclerosus. 

We barely understood each other due to the language barrier, but she seem to know how to cure it. She mentioned: capsules, chinese tea/herbs and accupuncture. 

I asked her, how long does it take to cure? ( Which I realised maybe I shouldnt've asked)

Since I've had this skin conditon for years, it perhaps will take years to cure it..

She set up a package for me: for each month, 4 bottles of chinese medecine capsules, 4 sessions of accupucture, and chinese herbal tea. It was going to cost me: 1200 USD. 

And this she was assuming, I was going to be able to pay, for as long as its going to take to cure it. 

I am now a student, and I certainly can't afford paying 1200 USD each month.

She then gave me another offer. Two bottles of chinese medecine capsules, (will last 2 weeks) That was going to cost 200 USD.

I was amazed how pricy it was. How do people afford it? I then accepted her last offer, but that was it. I never returned to her. I went home, searched on the internet of the medication she gave me and I found the exact same on the internet for 8 dollar per container..

So now Im sitting here, the western doctors don't recognize my condition, nor did they bother to even look deeper into it. They prescribed an cortison cream and that's it. Which made it all more inflammed by the way.

I live in Sweden, and the traditional chinese medecine practitioners are very limited. 

I don't know what to do, who to seek help for.

So, If YOU have any advice, or any experience - please tell me more about it.

Do you have any recommendation for any doctors in Traditional Chinese Medecine?

I am willing to seek medical help abroad. I am going to change my diet completly. And I'm going to put myself first in all cases from now on.

Now to my questions,

- Is it possible to cure Lichen Sclerosus completly?

- Can my skin pigmentation ever go back to it's normal or do I have to live with a red/white anus/vulva for the rest of my life?

If  YOU recommend any herb or ointment to stop the itching - please do.

- Is there any medication/ointment/herbs that can make my pigmentation/skin grow back?

- Should I be taking any supplements?

Please fill me in with suggested diet, supplements, what to avoid, what to do, herbs and ointments that worked for you. And if you do know someone who practice Traditional Chinese / Internal Medecine and you think he/she can help me -  feel free to let me know who the person is.

Now to this sumbission I've attached some pictures of my anus, vulva and groin. 

And yes, I lauged a bit cause it was very hard to take proper photos by yourself.

I deeply apologise if  you got slightly.. traumatized.

Now lets be all nice towards each other, I only came here to seek for help, I am desperately looking for any type of help & advice.

And during my journey, if anything improved or.. less improved. I'll keep ya'll updated.

Best regards

Ninni

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