Posted , 7 users are following.
Hi guys! Wanted to check in with you all because this forum has been an absolute lifesaver for me.
Last week I finally decided to see a Lyme Literate doctor after getting 2 indeterminate Lyme tests.
*My backstory: July 2017 I fell really ill. Fainting, stiff neck, headache, lowgrade fever, canker sores on my throat, swollen lymph nodes, shaking, and extreme fatigue. After 5 weeks of docs and tests, I finally showed a positive mono spot test. Although my spleen and liver were fine, I took antibiotics and never got the rash. I started to recover three months later only to completely relapse after attempting exercise. Ever since I've been in this 'get a little better and then relapse for weeks' cycle.
I met with a very smart and very patient doc. My last Lyme test showed I was positive for Lyme. So while I may have had mono- the Lyme and different co-infections are what's wreaking havoc now. (HHV6, EBV).
I'm starting on Artemisinin now for a month and will meet with her again to talk about pulsing antibiotics. (I'm also on monolauren.) I also have been on a keto diet for 4 weeks and feel a bit better. It completely regulated my blood sugar which had been a problem. It also has brought my blood pressure up to 110/70 which is huge!
I have a big battle ahead of me and will probably move most of my updates to a lyme forum. I have a twitter account that I've been documenting from (MonoMom16) and I will check in here periodically too to see how you all are doing.
Don't give up seeking answers! If you feel like more is going on in your body, find a doctor who will listen. You know your body best. I refused to accept a chronic fatigue syndrome diagnosis. I knew there was something we just couldn't find yet. Getting a diagnosis is huge. It is such a relief to have a face to this monster. I'll be thinking about y'all and sending all my good healing juju your way! You are strong and resilient. You got this.
0 likes, 7 replies