1. Community
  2. Women's health
  3. Lichen Sclerosus

19, no diagnosis- picture included, PLEASE HELP

Posted , 13 users are following.

kate03176
kate03176

I went to my gp at the beginning of the year because I had had these white patches for a while but thought nothing of them until one day I decided to google. As they didn't bother me at all I didn't really take note. At my appointment I bought up LS but my doctor told me she didn't think so. I just had a follow up appointment and she has once again said it is not LS as the patches have not changed or spread. Still I am hesitant to believe this as why are the white patches there? I'm so scared it is LS because I just turned 19 and I will have to deal with this my whole life. I have attached a picture. does this look like it could be LS? its not anywhere else and has remained like this for maybe a year. Please help!

0 likes, 14 replies

14 Replies

  • kate03176
    kate03176

    Posted

    Another note, I have no other symptoms like itching or anything which is why the doctor was unsure 
  • susan43705
    susan43705 kate03176

    Posted

    Hi Kate,  your patches do not look like my white patches. I'm not a doctor so do not want to mislead you.  Maybe you should see a vulva specialist or a dermatologist.  With all the googling you did on whether it is LS, did you see any LS pictures that look like yours?

    • kate03176
      kate03176 susan43705

      Posted

      Thanks for replying! No the texture of mine look to be different, and they feel the same as my normal skin. Its so confusing and I feel like I have had these patches since was a lot younger. I just can't seem to put my mind at ease

  • Guest
    Guest kate03176

    Posted

    Kate

    This is confusing to me because the white patches are on the outside whereas most images I have seen the white patches are on the inside from LS. You did say you went to a GP. If I were you, I might would try to get a diagnosis from a GYN or even a dermatologist. I would definitely want to know for sure!

  • Guppy007
    Guppy007 kate03176

    Posted

    Hi, it doesnt look like LS to me but you need to find a vulva clinic to find out what it is.
  • Nettie62
    Nettie62 kate03176

    Posted

    Hi Kate

    It doesn't look like LS to me. Ask to be referred to a Vulva dermatologist. Hope all will be ok.

  • pat0423
    pat0423 kate03176

    Posted

    I’d ask too about vitiligo. Does not look like LS to me but get a specialist.  Best of luck. 
  • Jessicat
    Jessicat kate03176

    Posted

    Hi,

    I'm not sure if its LS as I don't have any white patches I just have the itching. But I use steroid cream and hardly ever have any itching any more.

    I was diagnosed at 19, but had symptoms since i was 18. I am now 22 and I feel like i am mostly normal down there now and it can be managed quite well with the steroid cream. So even if it is LS what you have, its not the end of the world. Definitely see another doctor, i was misdiagnosed by a specialist and many other doctors, The specialist even said to me that it wasnt LS. I eventually went to a private doctor as i was frustrated that none of the other doctors couldnt figure out what was wrong. He diagnosed me straight away and prescribed me steroid cream.

  • kalila98903
    kalila98903 kate03176

    Posted

    Hi Kate,

    This doesn't look like the whiteness I have from my LS. However that doesn't mean it isn't LS. You can try to get your GP to refer you to a dermatologist to get confirmation of what this is.

    A GP should never fob a patient off with "it's OK, don't worry" if they don't know what you have. At the very least they should be refering you to a dermatologist for further investigation. If they don't, consider seeing another GP.

    GPs can be great, but they can also be very dismissive. If you are anxious and you have no answers, you are within your rights to keep investigating and asking for referals.

    I wish you the best of health.

  • seginns
    seginns kate03176

    Posted

    It looks more like vitiligo than LS to me. The white patches in LS tend to be on the vulva or around the anus, not up above on the mons.  However if you really want to know, go to a dermatologist and ask to have one biopsied. 
  • suzie37971
    suzie37971 kate03176

    Posted

    Hi Kate , sorry to hear you are worried but i amno expert but the white patches i have and by the sound of it other ladies too, started on my clitorus.

    I also started with severe itching around my anus.

    White patches also then spread around my labia.

    GP’s are not always tht knowledgable and you fall between Gynae and a Dermatologist. 

    I suggest you try to see your GP and ask for a refferal

    If you are still concerned .

    Good luck and hope everything is ok for you 😘

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.