19 Year old recently diagnosed with LS

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Posting because I have nothing else to turn to. I've been in a relationship with my partner for 3 years now. We used to have an active and healthy sex life, however over the last year I have been unable to have sex without feeling excruciating pain. I have tearing that never goes away, even with abstinence. I eventually gave up and had sex anyways for the sake of our relationship. I am now severely depressed about my inability to have sex (and not wanting to). I don't remember the last time it felt good. I have been diagnosed finally after seeing an OBGYN. I had a feeling it was LS but when she confirmed my worst fear came true. I was lost, upset, hopeless.. especially since she told me there is no cure. I don't know what I did to deserve this. The clobestasol and the estrogen creams work temporarily but not long term. I'm just feeling really alone... she said that LS is uncommon for women pre menopause. Why me?! sad

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11 Replies

  • Posted

    Hi lovely,

    Keep with us, read everything on here,

    And hopefully you will find lots of help,

    You are definitely not alone,

    Sending you massive hugs,xx

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  • Posted

    Hi Ashley

    I also made the mistake of continuing to have sex and feeling so sore and depressed. After being diagnosed I was told to use the clobestol and give my body time to heal, which meant no sex for 12 weeks. It was really hard to do but it did heal and 12 weeks later I was able to resume my sex life.

    Keep yourself fully moisturised - I use cetraben for showering and also for protecting and moisturising my vulva, and it has really helped.

    Also you need to know that although it's mainly post menopausal women there are many many children and young women who have this too- you are not alone.

    Keep reading these blogs they have helped me so much.

    All the best x

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  • Posted

    So sorry for you. You are young but it is not uncommon for premenopausal women. It is very common I t may be because a lot of young women don't get the right thing treatment, though because general practitioners don't know enough about the disease. I was treated for yeast infections for years.it was not until the disease spread to my pelvis and breasts then a biopsy confirmed it. After that I was told to see a gynecologist who confirmed the vaginal LS as well. It was too late for me, but through this forum, I have learned from other sufferers there are some things that you can do to help your self

    1. Take short cool baths using bicarbonate to soda (baking soda) add 1/4 cup of it to the water. Sit for fifteen minutes or so. apply Clobetsol after you pat dry, but only use a tiny application and only on the sore spots.

    2. Apply some coconut oil or Vaseline around your inner thighs to prevent the Clobetsol from spreading onto other uninfected skin. It can cause redness. I use baby barriere cream.

    3. Instead of baking soda you may use Borax. It is found in the cleaning solutions/powders in your grocery store. I use about 6 tsps in a sitz bath. It works magic.

    4. It helps to read the postings on here. My dermatologist even recommended it to me. I am on here a lot so feel free to ask questions. If I can help, I will be happy to.

    Hang in there. And I you recommend that you sit with you partner and study this together. He needs to be informed too. Not your fault, honey. It happens because not enough money is designated for women's health. God bless and good luck.

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    • Posted

      Hi it is one and the same.  Baking soda is bicarbonate of soda.  I forgot to add to that comment earlier that I do not add any bubble bath or soaps of any kind with the soda.  I shower after with a gentle body wash and leave the private area alone.  Rubbing makes things worse.  Be gentle.

      Hope you feel as refreshed after using the soda or the borax, as I do.  I definitely cuts down on the soreness.   Lots of love.

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    • Posted

      I would like to know please what is the ratio when using baking soda or Borax? I dont want to get it wrong so how much do I add to say a small plastic spray bottle? Thankyou xx

       

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    • Posted

      I use 1 tsp of either borax or soda per 1cup spray bottle. Shake it well to dissolve all particles. In the tub 1 use 6 tablespoons of either with approx 1/3 of tub filled with cool water. Good luck and God bless.

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  • Posted

    Hi I felt the same as you as i started to have symptoms of LS when I was 18, I was then diagnosed at 19. im now 21 and starting to feel like I have things under control. It's important to keep the area moisturised, i use coconut oil for this. before sex i put some coconut oil on the outer areas to prevent tearing from the friction, i also use dilators now and again which helps to stretch the skin to prevent tearing, i think it is best to let the area heal befor dilating and having sex again. I also am in a relationship and my boyfreind has been understanding and helped me through it, so its best to talk about things like this as well. Hope this helps

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  • Posted

    If you are basing your relationship on having sex and hurting yourself in the mean time.....stop. Besides there are other ways besides sexual intercorse to satisfy him. Worry more for yourself. He loves you he will understand and be helpful. Let him gobto Dr visits with you so he will understand
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  • Posted

    i got stem cell treatment in genoa with Dr Casabonna, it has had amazzing results and reversed the LS. please research this option.
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  • Posted

    Thanks everyone for the replies. Makes me feel better that I am not alone in this.. was just wondering if anyone stays away from gluten and if that works? I've heard about this trick... right now I am in a lot of pain sad

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