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I used to frequent these forums about 2 years ago when I was at my worse. I wanted to leave my thoughts and a bit of my story to inspire and encourage.
June 2016 i was rocked with ebv infection. I stricken with what seemed like the worse case scenario of the virus. i could not recognize myself in photos from Iraq (im a war vet). i would call my daughter her middle name forgetting her first. I couldnt perform basic math. i had occasional OCD symptoms including false memories and a fear of touching knives thinking id hurt someone. i had tons of physical symptoms ranging from leg twitches to lip numbness. i couldnt walk too much without feeling the need to pass out. over all i was a complete mess.
my official diagnosis was ebv infection leading to viral encephalopathy. I had a dozens of scans and and blood work showing i was super healthy and normal. but my brain clearly wasnt.
today I continue to perform working for a company with demanding quality requirements in the arts. I have found a hobby that allows me to be social while also creative. I still have brain fog and huge memory issues but have found tricks to remembering things (putting my keys on something i want to bring to work or writing on everything). I still feel disassociated from "life" and my environment sometimes sitting on my couch at night forgetting what i did that very day.
over all i just want you to know if youre entering this forum with a new diagnosis that you will get better. life is different post infection. i remember getting my PTSD diagnosis and the drs saying "the old you is gone." That doesnt mean there isnt going yo be joy in finding the new you. If your body needs rest... rest! if you feel foggy let your brain fog out. i promise you the spirit of our body fights for you and things do get better. adapt to the changes but dont let them control you. I have two Beauitful kids and despite all ive gone through, ive fought every day to smile for myself and them. youre going to have some very bad days but aleays know the good ones are coming.
and a special shoutout to craig who was instrumental in saving my life when those dark days were upon me. i found this forum after my then 4 year old son came into my room as i laid in bed without a diagnosis thinking i was actually dying. i stopped him from giving me a kiss in fear he could get what i had... instead he grabbed my whole arm, hugged it tight and kissed my hand and said "youll be fine daddy dont worry." i cried for about a half hour after and opened my phone. craig and many others gave their stories and motivation to get better. better days are always ahead!
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