2 bouts of pnumonia in 4 years

Posted , 4 users are following.

Hi guys just joined to get some general feed back.

im 28 and was born 6 weeks prem. i was put on a life support machine for 2 months to get my breathing up. My parents were told i would go through life suffering from chest infections and i was also tested for CF when i was born which was negative. I have suffered with chest infections through life but in 2012 i contracted pneumonia which i was put in hospital for and fought it off well. But 6 weeks ago i contracted septis pneumonia and plurality and again was hospitalised for 9 days. I was off work for 3 weeks and have been on light duties since and tried to get back to normal. In the last 24 hours i have devolped pains in my right lung which is the opp to which i had the pnuemonia in and i have been to my docs today who confirmed i have it still but the pain can transfer to the other lung. I have been given prednisone and antibitocs. A new type called doxycycline. Has anyone eve had this type of antibiotics, and if so was it affective?? Also should i ask my doc maybe for another CF test?? 

Many thanks in advance 

phil

Liverpool UK

0 likes, 4 replies

4 Replies

  • Posted

    Hi Phil: Nice to meet you my name is Beth. You should have a cat scan and see if you have Bronchiectasis. I have it it is non CF Bronchiectasis. It's a widening in the airways in your lungs and you can't get rid of sputum like people with normal lungs can and it provides a breeding ground from other bugs to infect your lungs. I do airway clearance daily with the vest and nebulizer using a Aroebica with Hypersal 7% saline solutiion. I also had Nocardia Nova which almost killed me and Mac lung Disease or NTM. You may also want to be tested for Alpha-1. I can't take Doxycycline but I know a lot of people have taken it. I'm avaliable if you would like to talk further.
  • Posted

    Hi Phil,

    I have taken that same antibiotic before and it worked well. I was born with diseased lungs and have endured a lifetime of troubles. I laughingly say that some are born to be nurses and doctors but I was born to be a patient! I am their job security. Ha!

    One thing I have learned the hard way is to request a sputum culture to identify the exact bug that is causing the infection and then I can be guaranteed the right antibiotic for the bug.

    Also, another reason for the culture is because when we are in the hospital we pick up germs there too. Once I had staph growing in my lungs and another time had a cousin to MRSA.

    When I had the staph recently, my doctor said he could put me in the hospital for a week for the intravenous antibiotic because the pills were not compatible with one of my daily medications. I told him that I would not go near the hospital. So he ordered a picline and I learned to administer the intravenous med to myself at home.

    I home this can help you in some way. Please take care. I know how exhausting pneumonia is and to have it multiple times in a row is unthinkable to me. Your are now in my prayers and I send you strength and energy.

    💛 Dawn, USA

    • Posted

      Hi Dawn

      Few months on from my last post and I'm feeling great!! Thank u for ur prayers!! Means a lot!!

      I'm unsure if you have had this yourself but I am now left with a clicking sensation in my left side were I had the pneumonia. Would this be due to the scaring??

      Phil

    • Posted

      So good to hear from you Phil! Glad you are feeling better! No, I have not experienced the clicking sensation you describe. Have you mentioned it to your doctor?

      Dawn

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