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2 months in...

Posted , 6 users are following.

crystal18
crystal18

well it's been 2 months and I swear my PR is getting worse. Started out on my lower legs and now I'm getting new ones on my waist and arms. I've been to 3 doctors ...first one thought it would go away on it's own. Second thought I had scabies and the third prescribed steroids. They actually seems to help until I went off them. I came across pictures and realized it was PR that I have. I have a huge herald patch on my thigh which is in the same spot I cut my leg on. It was healing and turned into that. Ugh. Thankfully it hasn't been that itchy. Until now. Omg I am losing my mind. I have an RX antihistamine that helps but I can only take at night as it knocks me out. Now trying zinc supplements, head and shoulders, vitamin d3. Tried 40zinc diaper rash cream yesterday but I hate it. Sticky and stinky! Yuck. Today I bought polysporin excema cream so will give that a try. Will also try the sun beds even though I hate them. At this point I'm willing to try anything. Anyhow just wanted to touch base and thank everyone for the advice and ideas. Mine don't look like they are going away but I also have a very pale complexion so that could be why? Mine are still quite red and angry looking. I have some that were very raised and now they are not as raised but are flat on top. Anyone else have this? I honestly. Can't tell if it's any better as there are hundreds of them.  This is the worst thing I've ever had and I wouldn't wish this on anyone. 

0 likes, 13 replies

13 Replies

  • rob20921
    rob20921 crystal18

    Posted

    Hi Crystal, if you look in this site, you can read more stories from people who found great, natural products that can help. A small list: don't use any soap or other showergels to wash with. try Aveeno cream, bathing in oatmeal (yes!) Oatmeal seems to be amazing in clearing up skin problems. I started with that.  Also Neem oil & coconut oil work very well for your skin. Daily sunbathing, (10 minutes) is good. Just read someone got some Neem Soap, that seems very good to wash yourself with.  OK, I tried all of it:-) I was covered in it a month ago, and it's almost gone now. Since I couldn't get Aveeno cream in the Netherlands, I had to wait for some to arrive from the UK. their products are great stuff.  Luckiily I found a similar product in Holland too. Good luck!!

     

    • crystal18
      crystal18 rob20921

      Posted

      Thanks I have myself a small arsenal of things at the moment. Will report back soon.
  • jenn46388
    jenn46388 crystal18

    Posted

    Hi Crystal,

    My 9 year old daughter was diagnosed with PR last Tuesday.  I asked about 200 questions and am still calling in every other day with new questions.  My daughter has it on her neck, chest and cheeks.  I read so much about this and saw many people saying they used Head and Shoulders shampoo to bathe with.  My daughter has not experienced the itchyness, thank goodness, but she was more insecure of the visible spots.  I gave the Head and Shoulders a shot, and I kid you not, the entire rash is dried up completely.  She is one happy camper.  I would highly recommend this, it was like a miracle.  =)

    My only concern now, bc of how many times I have been told this is not contagious, is why my whole household is breaking out.  This diagnosis is a bit frustrating if you ask me.  I just want to know how this develops and if it's not contagious, then why is the rest of my family breaking out with it a week later?

    Good Luck and give Head and Shoulders a try!

    • crystal18
      crystal18 jenn46388

      Posted

      I started with the tanning beds (which I hate) but am willing to try. Also taking zinc supplements, vit d3 and multi vitamins. I've been using the head a shoulders for a few days. Something is working as some are fading. Not sure which thing is doing the trick! Last night I saw a post about apple cider vinegar so have that a shot as well last night. Mine has not been itchy until I started tanning but it is now but it's flaky so hopefully I'm on the mend!
    • Elope015
      Elope015 jenn46388

      Posted

      I'm on the fifth week of PR and my lesions are very itchy on my stomach, back, neck, lower abdomen, and pelvis area. I will give H and S a try.

      I want it to go away already. sad It is so uncomfortable and itchy.

  • olivia95814
    olivia95814 crystal18

    Posted

    Hi! I found this discussion when I was diagnosed with pityriasis rosea a few weeks ago and since then I have found some things that seem to be working so I thought I would pass them on. 1.) Sunlight/UV: About a day after I sat out in the sun for a while and got a sunburn I noticed my rash was significantly better (I sat out there between 2-3 hours and make sure you drink water while doing this). 2.) Vitamin C: I take vitamin C daily. 3.) COCONUT OIL: This has been my salvation. I rub coconut oil on the rash at least twice a day, after bathing in the morning and before I go to bed at night. If you happen to bathe more than twice a day, I would apply it after every wash, and even if you don't bather more than twice, applying it as often as poosible could help. I also consume it because I have found it also helps to treat the disease from the inside as well. I take a spoonful in the morning and at night before bed coupled with putting it on my body. 4.) Oatmeal Baths: I take a luke warm to cool oatmeal bath once a day and rub the oatmeal lightly and directly on the rash and soak in there for a while (I couldn't tell you how long I sit in there, I lose track sometimes).

    I've tried all of these together and my rash has cleared up unbelievable quick, within a day of using the coconut oil the first time, my rash cleared up considerably. I hope these help and good luck.

    • crystal18
      crystal18 olivia95814

      Posted

      Thanks Olivia! I just got my coconut oil in the mail!!!! Will be trying it asap
    • Elope015
      Elope015 olivia95814

      Posted

      I'm interested in trying the oatmeal bath. I have never done this. Can I use oatmeal that I have in my kitchen (Quaker Oats brand) or do I need to buy a special oatmeal bath brand?

      Also just kept some coconut oil for the first time tonight. I hope this works please. 🙏🏽

    • crystal18
      crystal18 Elope015

      Posted

      I haven't actually used the oatmeal baths. That's the one thing I haven't tried. Between the multi vitamns, the d3 vitamins, zinc supplements, diaper rash creme and the coconut oil plus the tanning (except I burnt my 3rd time so didn't go for a week) mine seems to be going away. It's taking ages though. I'm into week 9 of this. I'm really ready to be DONE with this.
    • crystal18
      crystal18

      Posted

      Oh and I have used an entire bottle of head and shoulders. That really works on the itch. I bought the one that says "cools on contact".
    • jackie34143
      jackie34143 olivia95814

      Posted

      Thanks for the coconut oil tip.... will get some tomorrow. Does anyone know what help's for the panty line area?

  • jackie34143
    jackie34143 crystal18

    Posted

    The first time I tried the head and shoulders, I made a mud pack for my face.... WRONG move !!! I burned my face. I'm just trying it now, just on my arms, to see how it works. Does anyone find petroleum jelly to help?

    • crystal18
      crystal18 jackie34143

      Posted

      I saw on here some people slathered the h&s on before a shower. I didn't do that. Just a body wash. I hope you can do it because it works very well. Coconut oil is great. Used it at night after a bath and in the am the spots had really faded

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