2 months of gallbladder symptoms with normal test results.

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32 yo female in the same boat as a lot of these other people I've been reading about. Nausea and vomitting has been going on for 2 1/2 months now as well as heartburn, on and off pain urq with low back pain. Also constipation or diarrhea. Fever on and off with no other sickness. Abnormal stool. Blood test, ultra sound, CT with contrast and HIDA scan all came back normal. Also had endoscopy and colonoscopy with biopsies with mild gastritis as result.

It's taken me months to get in to have testing and the symptoms have defiantly slackened but couldn't get in for testing when things were very bad. I.E. Vommiting bile becuSe I couldn't get food to stay down at all. basis health care system sucks.

My GI keeps saying chronic gastritis but I barely eat anything and if so bland and mushy.

I've lost 20 lbs and don't know where to go from here. I have a friend surgeon on board ready to remove the gallbladder but I feel it's a gamble at this point. Could it be chronic gastritis? Anything else? I've researched everything. Please anyone advise. I'm desperate. I'm living off 8mg Zofran daily to keep down any type of mushy bland food.

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  • Posted

    Oh my! I'm so sorry you're having to go through all. this. Was all these tests done by the same docto or did you get a second opinion? I'm surprised that all they could say is that it's gastritis. I've had all these symptoms for at least a year and never thought it was my gallbladder. I chalked it up as just eating spicy foods and bad heartburn. I'd get a second opinion if you haven't already. Sorry I don't have an answer for you hun. I wish you the best and will say some prayers for you. Keep us updated. Have a Merry Christmas!

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  • Posted

    Gosh your dealing with a lot. I had my gallbladder out and I don't feel that good. If I were you and you don't have gallstones I would work on trying to figure out where the pain etc... Is coming from. I still have a lot of pain after G/B surgery .

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  • Posted

    Hi, sounds like you have had all the tests possible but if you have not had H Pylori testing or teating for gluten sensitivity, those are worth having as well. It is horrible having all this going on and not being able to eat without pain and suffering, all the joy goes out of life after a while like this. I have been the same with gallstones and a hiatus hernia and H pylori, which was treated.

    ?It is a slow process and hard to track the exact cause in some cases - after all tests the docs have concluded the gallstones may be the problem and I'm shortly having surgery (very reluctantly due to all the possible side effects some report after). I've been on a waiting list a long time (UK) and while waiting I have found it helpful to have lots of nutritional drinks and liquid vitamins and minerals (as not eating properly you can get further issues from poor nutrition) and vitamin D - as I know I am low in this from a blood test. I take probiotics and other supplements as I had a lot of bloating and symptoms that point to dysbiosis, or bacterial imblance in the intestines. Having had a few sets of antibiotics, this seems likely. It is possible to get tested for this but it is expensive.

    ?I hope you will find a solution soon, keep persevering with your doctors as digestive ailments seem to get underestimated, I'm sure no doctor would accept living with your symptoms indefinitely, without further effort to discover a reason. Best of luck.

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    • Posted

      Hi Cynthia. I did have the H Pylori biopsy done during endoscopy with negative result. This problem seems to happen for me after I take antibiotics. This episode of pain, nadeau and vomiting everyday has happened before exactly a year ago after a breast reduction surgery and I got a massive staph infection. It eventually went away but now exact same thing happening again longer from me Nima antibiotic from UTI. I get UTI's every couple months too which is abnormal. Seeing urologist on 22nd to see if anything is related.

      What is the expensive testing your referring to? For dysbosis?

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    • Posted

      That is the one I was thinking of - can vary from a breath test for small intestine bacterical overgrowth, or stool tests for parasites etc. But if you have the worsening after antibiotics, it may be due to upset bacterial balance - that can be something we can get as a side effect to other GI conditions, not a disease as such.

      ​The treatment for these may involve more antibiotics which sounds counter intuitive - or botanic meds and probiotics but I guess the test is advisable so you know exactly what you are dealing with, if anything. I had spent a fortune already on supplements and remedies for digestive troubles, so I have put off the testing to see what happens when the gallbladder comes out, as that may alter things either way then I will look into it again.

      ​At least you know it is not H pylori to blame. I hope your urology visit will be helpful. Post back when you can and take care.

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  • Posted

    Hi Jennifer!  

    I'm so sorry you have to deal with all this.  Did you have blood tests to see if your pancreas or liver are stressed?  You didn't mention that in your narrative.

    My suggestion would be that when you have another attack you go straight to A&E and get them to do those blood tests, as well as an ultrasound or CT. When my gallbladder was malfunctioning I was diagnosed with IBS.  I, too lost weight, 30 pounds, and had difficulty eating.  I ended up telling them I was in much more pain than I was to get them to do something!  When my gallbladder was removed, it was brimming with small stones and sludge and very diseased.

    I would also find a new gastroenterologist, who might take a different approach.  Something is obviously wrong and for them to ask you to live with what you're living with is unacceptable!

    Best of luck to you, and let me know how you do.   

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    • Posted

      Hi Lynda. Thank you for your response and concern with my problem. I do not think the have done blood testing for liver function. I had blood testing done over a month ago by primary dr before I started with GI. What they tested for I don't know. Will have to find out. My GI did say there are many women my age that fall in the 60/40 bracket that have all symptoms but tests results are normal or not very conclusive.

      I have a surgeon friend ready to take it out if that is my wish. I feel I'm taking a gamble at this point and am very distraught about making that decision. Can anybody's advise? I discuss this with GI Monday for her opinion. I'm just tired of suffering.

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    • Posted

      Well, liver function tests can indicate if your liver is stressed, and the liver is usually stressed by gallbladder disease, and also by problems with the pancreas.  Gallbladder problems can impact your pancreas as well.  

      I'm surprised that liver function tests weren't done along with the complete blood count that is usually ordered.  

      I can understand that you're tired of suffering; that's why the doctors need to take a thorough approach to find out what's going on with you! xx

      Hang in there! 

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  • Posted

    Is that all they told you about the HIDA scan? Was that it was normal? You should've been told an ejection fraction - did you get that number?

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    • Posted

      No. The day I called for my results the dr office computers were down 😡 And they did not do a cck injection which I was told was important by a surgeon. I have an appt with general surgeon in Wednesday so hopefully he has all info from them and can go over details of results n shed some light.

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