2 tony 15641

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Hi all anyone know wat causes bronchiestis i know been telled my lungs are black with sputum but does the lungs ever get clear of this nasty stuff when went to docs yesterday more antibotocs difrent ones dont think anyone knows ow to treat this nasty dieseas does anyone else get down in dumps was going to go away somewhere warm but now got bronchiestis other things insurance gone sky high anyone else in same boats as me i wud like to know why put insurance up if u can answer or help me out i wud be gratefull thank u

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17 Replies

  • Posted

    Hi Tony, you dont say if you have gat a Flutter or Accapella to help clear your lungs, are you in the UK, ?. if you have not got one of these you need one , you get one free from the phisyio in the UK, or can get one from internet, i have one of each.I fine the Flutter easy to ues and clean. It seems you can get Bronchiectisis from a number of things., we get travel insurance from Euro Tunel , for Europ they do not ask about existing conditions as long as the doc says you are fit to travel. you dont have to go by car, just look on line and ring up. to the age of 70. 

              Hugs Pam

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    • Posted

      Hi pam i dont ave either still waiting to see phisyio yes im in uk did not know anything about these things trouble is doctors dont know owt i will def give euro tunnel ring but i know u ave to ask permision to go on holiday but dont see consultant till aug thanks so much for advice thanks pam
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  • Posted

    Hi

    ?I have a accapella to help clear lungs. No one can actually tell you what caused your bronchiectasis. If you research it some websites say it could be if you had a bad case of measels or pneumonia as a child that has scarred your lungs. I does'nt help if you have smoked either. If you drink lots of water and exercise will help shift some of the sputum,

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    • Posted

      Hi think will ave to get one of them accapella i ave neva smoked been like this for 2yrs only found out in feb it was bronchiestis even my kids ope pray they dont get ilness wat i suffer with but thanks for advice violet
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  • Posted

    Tony, how much have the docs talked with you about the effects of working with tar asbestos? Do you have any other lung diagnosis aside from bronchiectasis? Here in the States there's been a lot of hullabaloo about asbestos damage for a long time.

    I think that my bronchiectasis is textbook from infections, starting with a terrible one 32 years ago. I probably have had infections in my lungs for several years now but had no idea because I don't run fevers. My cough got worse but I just thought that it was a progression of COPD.

    Do you feel like sharing the names of the meds you're on? I assume you're in the UK & use different meds than we have here. Don't share if you're not comfortable doing that.

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    • Posted

      Hi aitarg im on carbocisteine 6 a day to help sputum thinner but i dont see any difrence been on 10day course of antibotics name moxifoxacin 400mg one to be taken daily now 3 day course of antibotics Azithromycin 250mg capsules plus no one spoke with me about working with tar asbestos wen go to see consultant in aug going to ask more questions ope these meds give u help if u need more infomation feel free to ask me
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    • Posted

      Thanks, Tony. My mucus thinner is different, no sulfa component out of an abundance of caution.

      Some days it doesn't feel like the thinner does much good. If it feels that way for a few days, I skip a day or 2. I'm not recommending that bad habit. As to antibiotics, we're hoping to get me to where I can try azithromiacin. I'm allergic to it so they're going to try some "challenge" protocol while I stay in the hospital for a day - have to be close in case I stop breathing or heart stops. Gotta get our thrills somewhere, don't we?

      But 1st of course I have to be off other antibiotics for several weeks ,,, in other words, I may never get a chance at Z-pack again.

      Did you tell the doctor who diagnosed you about your asbestos exposure?

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    • Posted

      Yes i did but if can find out its cause of that i have gud chance of putting claim in of job i ave been retired gud few yrs well i wud be intrested to know ow u get on but last yr i ad 7 lots of antibotics which is lot looks like its going to be same this yr its embarasing wen u out spitting in tissue if toilet 2 far away ow long ave u ad bronchetis far does it get any easer regards tony
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  • Posted

    Tony,

    I was told by specialists that a person can develope this condition one way by having childhood diseases, such as mumps, measles, chicken pox and most importanly whooping cough. These diseases causes scaring in the lungs. So, since me and 3 of my other siblings had all of these diseases, why was I the only one to develope bronchiectasis? And why was I diagnosed in my late 30s (of course, back then, they said I had allergies, then asthma, then COPD, then by way of a CT scan 5 yrs ago, I was correctly diagnosed with Bx) when I started having coughing and breathing issues? Some people develope Bx in their teen or younger years. I'm 67 yrs old.

    I have read that not only childhood diseases, but life events (stress) contribute to getting Bx. In my early 20s I worked in a sewing factory for 2 yrs, breathing in fabric fibers. I started having sinus problems when I got pregnant for the first time. In my late 30s, I was going to college for a degree and taking care of 3 kids with my husband who worked long hours, then started working fulltime and going to college parttime. They said stress can bring on Bx. Also, during this time, we built a house and lived in it for 12 yrs. Could there have been something in the building supplies? Some houses have mold that no one is aware of. I have an immune defiency that I have to have an IV every 4 weeks.

    Well, this is gettingto be a too long of a response, so check the internet, there is a lot of information on bronchiectasis. It's a progressive illness, but if you can keep it under control, you can slow down the progression.

    Take care, Beth

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    • Posted

      Hi beth i cant recall avin any of them things i did get pnumonia in my 30s i myself is 66 ave ad this bad chest for 2 yrs constantly sorry to ere you ave got an immune defiency like u said cud working with fabric fibre been cause of it dont think they really know im limited to wat i can do with other ilness i suffer with now this but its nice to know that ur not alone take care tony
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    • Posted

      Well Beth and Tony, when I first got breathing probe 16 year ago , i worked in a mall shop making loose covers and the owner was pulling old cloth off of  furnicher behind me..

        Tell you what Tony while you are wating for the Nhs to get you in to see physio do some reserch on internet there is some good sotes with realy good breathing and huffing excercises for you to do to help clear the crap off of chest..

            Take care Pam

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    • Posted

      Hi pam i will look at that cause nhs dont care plus my GP just says when u back to see specalist that not till aug just ad this 3 day course antibotics 2 nd lot in month dont seem to work but thanks for advice kind regards tony
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    • Posted

      Tony,

      I didn't think at the time when I wrote my previous responce, that having pneumonia(s), lung infections, smoking and other things that irritate the lungs can also contribute to the illness.

      Take care, Beth

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    • Posted

      Tone,

      I get asked all the time if I ever smoked. It's just a standard question that they ask. I smoked briefly in high school in 1968. Didn't care for it and thought it was a waste of money (30 cents a pack). That was the smartest decision I ever made.

      One instance in the past, when I was coughing a lot, a person said very rightously to me "You should stop smoking". I told her I don't smoke and that I cough because of all the pollution that she as well as I produce to fowl up the quality of air that we breath.

      With children now a days that get vaccines against those childhood illnesses, there should be a big decline with this illness. And going forward, doctors should be more and more able to correctly diagnose Bx.

      Beth

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    • Posted

      Yes elizabeth ur right wat u saying back in days our parents used to smoke even wen they was carring us like u said kids get vaccines where as not wen we was young yes ive said GP shud know more about BX think we tell docs wat we know about this bx just finished 3 day course of antibotics sputum clear at moment still coughin thanks for advice elizabeth
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