2 weeks after LP now I have a stiff back with a squish painful lump..HELP
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Long story short. May 1st I was admitted to hospital. 3rd May I had an LP which confirmed meningitis. I was given IV caffeine lots of fluids antibiotics and antivirals (which was given on arrival due to symptoms) but the pain wasn’t going so may 12th they done another LP. 3 attempts whilst I was on my bed and 6 attempts in a theatre room with the anaesthetists and she hit 2 nerves making my leg jolt. Traumatic!!! More IV caffeine and the low pressure slightly eased. The dressing was changed twice because of blood and fluid my back was wet. I have been home for 48 hours now. I have severe stiffness in my back and a don’t half way up my spine then further up a squish lump. The actually LP area doesn’t hurt at all in my lower back it’s middle and shooting up into my shoulders. There’s times I feel paralysed like I cannot move because if I move I get intense pain and pressure on my back. There’s no bruising but I’m having sweats hot and cold sweats. I need to pee a lot and when I eventually sit up I still have low pressure headache. I am trying my best to keep moving so I don’t seize up but every hour I am getting worse. One doctor said a hematoma (without seeing me face to face) another said this is what happens...I’ve had 8 LPs in my life and nothing at all like this. I’m 26! Is this normal? Does I have so much pressure against my spine? I can’t lie on my back, I can’t straighten my back much but I cannot bend what so ever and movement is becoming agonising? I’ve tried over the counter pain meds and also a dose of tramadol and oramorph (not taking too much because of rebound headaches and this low pressure headache I don’t want to make worse... and yes I have tried heat packs and cool packs) it hurts back. 3.08am and I’m sobbing with discomfort. Any advice would be great
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