2 years after the decompression and I haven't recovered
Posted , 4 users are following.
I had the decompression surgery 2 years ago and nothing's changed. I still have these symptoms:
-sharp sting in head every now and again
-difficulty understanding and comprehending
-some difficulty reading
-balance ( walking, stumbling, tripping over feet, leaning)
I had an appointment with my neurosurgeon who did and excellent job, he told me that I'm doing great and I no longer need the routine check up, which is a good thing. I'm just concerned if these symptoms will go away. im afraid that these symptoms won't go away and I'll be dealing with this for the rest of my life. I don't talk to my wife about it anymore because I don't want her to feel like her efforts in trying to help me cop and be ok are in vain. In truth, I'm depressed. I don't think I'll ever get over these symptoms. I feel like I'm going to end up having Dementia or Alzheimer's and forgetting my family. That is what scares me the most. The only way I can deal with these life altering symptoms is to hide behind a smile. I'm aware that there are far more severe cases that mine out there and I'm not saying that my case is more important.....just wanted to vent a little I guess
1 like, 8 replies
nihilo patsfan89
Posted
I just really wanted to say don't hide behind a smile, doing this only benefits everyone else and makes it harder for you. Many doctors are so reluctant to take the lead with this condition that they will take any opportunity to back off and hand over responsibility to someone else. Don't increase your suffering to make other people's lives easier, the more you hide the more doctors will claim you are "cured".
I know how exhausting a possitive attitude can be at this stage so please do not loose hope or motivation, your health is worth it.
I hope you find this site as helpful as I do, especially when discussing symptoms that are confusing or seem too minor to discuss with a surgeon. I am happy to listen to anything you're concerned about.
patsfan89 nihilo
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b2wc97455 patsfan89
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patsfan89 b2wc97455
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b2wc97455 patsfan89
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patsfan89 b2wc97455
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b2wc97455 patsfan89
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Life is how you make it, but if you think positive each day, no matter how hard it is, you will feel easier , if you believe in God, then ask Him to help you, with the blind faith come blessing you can ask anything from our Lord, let Him drive your life so that you will find less burden..it is hard..can you imagine..I was the main provider..suddenly I become a housebound..but thanks Lord..I really believe in Him..somehow..we manage..living each within our mean..well money never an issue before..but now..we can appreciate what luxury mean..as before ..we didn't..unfortunately we are not able to help people who are less disadvantage than us any more..as before we use to help lots of people..some how...we do not really know why is that..but I am sure..when I GET BETTER and able to work again..I will cherish every single day I have got..and give my time to GOD, family and friends more than before..so my advsie to you..is think positive..do not think of negative..you are here for a purpose ust remember you are still lucky even though life can be hard...you live..you do not have cancer..just accept your condition make the best of your time..just be gentle to your partner..express how you feel I am sure your partner will give you support.
jennacyde patsfan89
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