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Chiari Malformation

Also known as Arnold-Chiari Malformation

Can you help? Discussions needing a reply

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  • DOES ANY ONE HAVE A SUCCESS STORY TO SHARE

    Hi there, I am chiarian and waiting for my surgery...I read this story..seems that majority of this members although they are having surgery but they still having symptom ...is there any of you..that have symptom free at all or what you call it..SUCCESS STORY?? can you please share with us..or even...

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  • Sad and need advice and answers and help...please.

    Hi, Hoping for some advice, After being fobbed off for a good few months with numerous trips to the doctors and neurologists about my head and my neck and vision and speech problems and no one listening to me about me saying something is seriously wrong and these aren't my migraines (suffered...

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  • I had ACM surgery 1994 full decompression

    Hello group! Well here it goes my newest symptoms l have vibrations in the back of my head that also vibrate my chest along with tinnitus in both ears. When I stand up my upper torso and arms vibrate and I get pressure in my head! Oh yes I cannot sleep I've been up going on 3 weeks. Any ideas or...

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  • Bad mornings

    Hi all when will I wake up and not have stiffness/soreness almost 6 weeks out of cm surgery I just want/need a good day. Have MRI today appointment with ns on Tuesday .

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  • Chiari malformation type 1

    Does anyone knows or recommend any clinic or hospital in the whole world who can treat chiari as my 26 years old daughter is getting worse she is in bed unable to eat bcoz of the sever pain unable even to hold a pen bcoz of the weakness in the hands arms muscles heaviness in both eyes and she already...

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  • Not going through the surgery

    Hello,  I have CM 6.8 mm. and I have been through a roller coaster. I have seen 6 Neurologists and 2 Neurosurgeons that specialize in CM. I was told they cannot guarantee I will benefit from the surgery. What I found helpful is Craino therapy and acupuncture. I'm also careful about my weight....

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  • I am 62 yrs an was just diagnosed with chiari malformation.

    I have been dealing with horrendous pain in my neck, shoulders and from my elbows down my arms into my hands. My neurologist is recommending removing a all piece of my skull where my spinal column passes through that opening to give more room. Has anyone else had this done. What does the 2 to 4 month...

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  • CM info needed

    Hello. I have CM 5mm. I also have C-spine issues. I have had all the tests. Blood flow is fine and CSF is fine, however, i am very symptomatic. My neurologist felt as though my flow was fine that it most likely has nothing to fo with my CM. Im in process of getting set up with a neurosurgeon to address...

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  • New chairi suferer

    I got diagnosed with chairi malformation 1 year ago now found out i need surgery and am goin in at end of septemeber safe to say im super nervous. Hate this feeling of always bein tired or lazy does it go away??

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  • Symptoms coming back full force

    Well I had a good 3 year run since my decompresion surgery and now most symtons are coming back.  I'm starting to walk into walls (broke my toes) on my right side, gaggying at night if I fall asleep on my back, very dizzy, nauses, migraines, etc.  Has anyone experenced this situraction...

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  • Cyst

    I had my annual MRI June 2. It shows a cyst just below the cerebellum. My doc said that we wouldn't worrry about it unless I started showing symptoms. So about a month later, I started showing symptoms- zombie head, balance, When I tried to get ahold of my neurosurgeon to see what they thought, I...

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  • ACM symptoms

     I group my names Anthony I don't know what is going on with me the inside of my head is vibrating it has went to my chest when I lift my shoulders or shred them I get that vibration that travels all the way up my head . My left temple when I touch it Senesi sensation to my left eyelid and nose...

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  • Understanding my chiari situation.

    Hi. I'm. 18 years old and am having a bit of a rough time. I've been ill for about 2 years. Whilst it was recognised I was sick about a year ago, my symptoms were vague enough that at first it was thought they were the result of an anxiety disorder. A year of therapy and medication later, it's...

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  • Anyone with Chiari suffer from constant fatigue?

    Hello I have had issues for many years now.  Headaches, dizzyness/vertigo, tinnitus, you name it.  The absolute worst thing I suffer from is chronic fatigue.  I am always tired, I cannot hold a job full-time because I will just pass out.  It doesn't matter how much or little I...

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  • Chiari Decompression surgery

    Hello All...... I promised I would write again with an update after my surgery.... so, here I am! I had my Chiari Decompression Surgery 12 days ago now. Honestly, it was a hard choice to make, (I have 3 children & a wonderful husband too of course!) I suffered for more than 7 years after my first...

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  • Help me!

    Hi, I am a 31 year old female just diagnosed with CM and I have severe headaches and off balance ringing in the ears etc but I decided not to go with the surgery because its a 50/50 chance and with my body it always acts up with surgeries so My Question is there anyone out there living with chiari Malformation...

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  • Chiari AGAIN?

    I was diagnosed with Chiari II in the spring of 2003. I was herniated with syngromila. The intense headaches and drop spells ended. Now, 14 years later, I'm having headaches again with new symptoms. Memory loss, difficulty concentrating, arm and middle ring and pinky finger numbness, neck and shoulder...

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  • New to chiari malformation, please give me some good news!

    About 2 years ago i had a surgery for a gall bladder removal and about 5 days later i became dizzy so everyone thought it had something to do with the surgery and that i got some kind of inner ear infection. I went through about every test they could think of and lots of physical therapy for all the...

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  • Muscle Spasms

    Is anyone experiencing muscle spasms that can be mistaken for seizures? Also is anyone having tightness in the front of the neck? Almost looks like the neck muscles are too tight. That's a sign when I have muscle spasms. The CHIARI Specialist doesn't know if it's related to my CHIARI Malformation...

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  • Chiari decompression surgery, what should I expect?

    I found out about 4 weeks ago that I have chiari 1 malformation of 12mm today toncillar herniation and a syrinx from c3-t12 which has caused thinning of the spinal cord. I saw a neurosurgeon last week and I will be having decompression surgery within the next few weeks. What should I expect recovery...

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  • Almost 4 weeks out of Chairi surgery

    Hi I was wondering about pain on left side of head how long before it will ease up ?have a hard time sleeping because it hurts to lay down have tried a lot of different pillows this is hardest surgery I have ever had

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  • Gagging problem after chiari decompression? Is this normal?

    Hi, hoping to get some insight from other chiari sufferers. My 3 year old daughter had decompression surgery and cerebellum tonsils lasered to treat chiari malformation and spinx. After surgery she picked up RSV respiratory tract infection which caused her to cough a lot which made her dura patch open...

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  • Can anybody help make sense of what my MRI results mean?

    I'm seeing a neurosurgeon about it but it's 3 months out.  I'm an impatient person, anyone have a best guess as to what this means? "There is normal flow ventral to the craniocervical junction and upper cervical cord.  There is decreased flow posterior to the craniocervical...

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  • Diagnosed i think

    Hello im 53 and doctors believe that i have CM. Its a relief as for the past year i thought i was going crazy, literally. Im a walking poster child for the symptoms, except for 1 thing. They did the CSF flow and it was normal. So with that being said does it matter?

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  • VINE LEAF FOR CHIARIAN

    Hi every one, I used to have so much headache despite decompression had been done a year ago, but I found out that after taking vine leaf each week, my skin getting better, hay fever disappear and also no longer taking any pain killer for my headache..I did not understand why..but after taking vine leaf...

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  • Surgery!

    Aug 5th 2015 I had surgery...since then I have experienced the same symptoms as before my surgery. Has anyone ever had to have second surgery? I am scared to death for this second one! I can remember the pain from last surgery and that's my biggest fear....is there anything I can do or can you recommend...

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  • Second opinion

    I just got home from my neurologist. He would not diagnose me with chiari because the tonsils descend less than 5 mm even though I am having all the symptoms and they are worsening daily and this runs in my family. I am set up for a second opinion and hoping to actually get some help and relief soon.

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  • Chiari Malformation

    I am having surgery in 3 days. Can anyone give me some tips on post op when I return home? Will I be bedridden for a few days? Just want to be prepared. My daughter is here to help me with recovery.

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  • New chiari diagnosis questions

    I am 29 years old and was just diagnosed after previously being diagnosed with chronic migraines. I had an MRI 9 months ago with no mention of chiari and then again just two weeks ago showing the malformation only after telling my doctors that it is something in my family and a concer I had about my...

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  • I am getting daith piercing for my Chiari pain

    Hello everyone, I am a newbie on this site, just joined a discussion that was over a year old, not having a good day, lol. I was checking if their is anyone who has recently had this done for their chronic pain. I hope this finds everyone having a good day. K 

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  • Chiari 1 and large syrinx??

    Hey, 24 year old female. So the last few years I have had some random symptoms, numbness in two toes, huge head aches, numerous different pains, numb hands, numb arms and a load more. Each time I went to the doctors I was fobbed off with something different each time. I can Only carry my 2 year old for...

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  • '' HOW TO DEAL WITH THE EARLY STATE OF CM 1''

    Hi Every one, I am a recovered Chiarian...what I mean by recovered is that : 1. I am drug free 2. my quality Life is getting better each day 3. I am able to think properly 4. I feel more rejuvenated each day. I did not think that I can achieve all of those, I used to cry each day..when I experienced...

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  • Chiari Advice Needed

    Okay, so I have Chiari type 1 which for most of my life (I'm only 17) was asymptomatic (besides a few things). This past year though it has become very symptomatic so I contacted a peds neurosurgeon who was listed to specialize in Chiari, my mom called, but the place scheduled me with a different...

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