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Chiari Malformation

Also known as Arnold-Chiari Malformation

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  • I just had the Surgery

    Here is my recent experience with the posterior fossa decompression with the dura opening surgery I just had a week ago. Please let me know if your experiences were similar or different and if how long it took before your post op pain went away and began noticing that your chiari pain had been relieved...thanks...

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  • 4 month post op i think

    I has decompression in september 2017 i was fine for first wee while but past 4 weeks iv had bad head pain in left side near temple when i move head sometimes to left i get pains in neck or head anyone else have this problem? My ns app isnt till march 12th iv been pit on diferent meds n still dont really...

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  • My Humble Tips For New Chiarians

    Dear new Chiarians I had my decompression on 8th of May, they sent me home next day(walked to home), I have been jolly, happy, I don't feel like I had an operation, They only done phase 1(put a hole back of my skull) hopefully this will work and my 40cm syrinx will shrink slowly(already feel better)....

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  • Does this sound/look like Chiari?

    Hello! I've (25 y/o male) been dealing with quite a few unexplained neurological symptoms since the end of May of this year. I haven't received any answer(s) as to what would explain all of them, and I'm getting quite frustrated. There hasn't been a single day where I've felt normal...

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  • Chiari Surgery 1 year ago and having symptoms?

    So I had surgery on Feb 2017 I did not see a chiari specialist for this surgery just a neurosurgeon. I knew he had no idea what Chiari was when I explained to him my symptoms and he said it had nothing to do with chiari. My questions are when you have the decompression surgery how do they know that it...

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  • CSF Flow Test...Vague?

    Here is what my results were from my CSF flow test. I hear some people talking about the percentages of their blockages and they get very specific on these forums. I asked my neurosurgeon if he could tell me the exact percentage of the blockage and he basically said that the MRI just gives us a snapshot...

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  • One doc say 1 thing and another says something else!

    My entire life i had issue's with headache's,dizziness,concentration, memory, periods where i would get so dizzy i pass out, I would tell my doctor about my symptoms and she would always blame it on my back, cuz i have also always had issue's with that, i was diagnosed with scoliosis when...

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  • Northwestern Unversity Hospital

    I am having my surgery at Northwestern University in Chicago May 8th. Does anyone have any experience they can share about having their surgery at this hospital? I am not sure if talking about specific hospitals or doctors is allowed or not so someone please let me know if I can’t. If it’s not, maybe...

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  • Opinions Northwestern University CM1 Surgery

    I am having my surgery at Northwestern University in Chicago May 8th. Does anyone have any experience they can share about having their surgery at this hospital? I am not sure if talking about specific hospitals or doctors is allowed or not so someone please let me know if I can’t. If it’s not, maybe...

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  • Do any of you have this symptom?

    Do any of you experience a worsening of your chiari headaches the more you talk? I feel like as the day goes on and the more social I am, or when I am at work as a teacher and I lecture a lot, my headaches worsen. Also, do any of you feel like there is  a tightening and weakening of the muscles...

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  • 7 years post op - past 3 days of severe head pain/numbness

    I haven't had any glaring issues since my spinal decompression in Jan 2011, I am, all things considered, lucky in my Chiari diagnosis.  I have had such minimal symptoms since my decompression, was totally cleared about 3 years ago. I had an MIR around 8 months ago and was told I was the same...

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  • Hole in dural patch

    My 13 year old daughter was diagnosed with Chiari Malformation and consequently had a decompression surgery.  Following the surgery she had a rough recovery and it turned out that a hole had formed in the dural patch that was installed in her duramater.  Once determined, she quickly had another...

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  • I’m lost

    hello. I’m 37 yrs okd and have had 4 craniotomies to decompress and try to eliminate what chiari malformation has done to me. Since December of 2017, I’ve been suffering with so many symptoms fro severe head pain to numbness and weakness to double vision and so on. I returned to my previous surgeon but...

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  • My Chiari Experience and Surgery Brain & Nerves

    I feel my first symptoms were bad headaches in my 20's. I didn't show positive for Chiari until 2010 (menopause) when It was a 1 Centimeter. I had large moments lapse of memory. I was losing my IQ. Math I was having problems. Most neurologists didn't understand me. Finally I saw a Neuro Surgeon...

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  • Anyone have symptoms come back after decompression surgery

    I had decompression surgery in July '16. It felt good not to have pain afterwards. Just recently after Christmas my symptoms came back. Migraines, blurred vision, loss of balance and so on. My neuro surgeon told me symptoms might come but didn't know that soon. I'm getting a second MRI done...

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  • Will Brain MRi show chiari?

    Hi ppl!! Im currently under investigation for chiari malformation. met with a neurologist today... which claimed that chiari can't cause the symptoms im experiencing. He said it was ANXIETY, fatigue and depression or ALL IN MY HEAD! He did a bunch of tests,(reflexes&stuff like that, which seemed...

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  • WOULD YOU SHARE WITH OTHERS WITH YOUR EXPERIENCES?

    Dear All, I had decompression last year and to be honest I have been blessed that my operation was successful - I am pain and drug free except on the off chance my back is killing me..but nothing to compare prior my surgery. However I fully realized that my health care professionals have a little knowledge...

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  • Just have so many questions...

    I was diagnosed recently with type I after an accident, they said it was an incidental finding...  I’m wondering if anyone has issues drinking water, spilling it and also just generally neglecting to drink water at all?  I also, much to my surmised develeped a mean case of sciatica when I was...

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  • Specifics on possible types of surgery

    Hello everyone I'm new to this site, and found it after researching Chiari Type 1. I was diagnosed with it about 18 months ago, along with syringomyelia. My symptoms are mainly terrible migraines, nausea, neck pain (including a 'rice crispie' clicking noise when I shake my head), and, strangely...

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  • Now my son suffers 😟

    So before Christmas i was diagnosed with Chiari Type 2, i got for a EMG on April 9th then i see the nurosergeon the very next day, Like i have said before i suffer from, memory loss, dizziness, excruciating headaches, balance, when i walk my body pulls me to the right, i can't turn my neck, bend...

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  • Should I get a second opinion?

    I've been under the care of a neurologist for about two months for numbness/tingling and pain in my legs and dizziness.  To see if the cause would be a dyeliminating disease, I've had a spine and brain MRI and have an EMG scheduled in two weeks.  My spine MRI came back normal and they...

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  • Eating problems, lost 42lbs last year. Need help

    I’m having really bad eating issues and only recently found out it’s chiari that’s causing it. I’ve lost 46lbs this past year and my gastric bypass doctor said if it keeps going at this rate I have 1 1/2 to 2yrs to live. It’s a guess but I know I’m in big trouble. I weigh 134 now. My gastric bypass doctor...

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  • Idk if this is the right place for this, please help!

    In 2012, I hit my head. Let’s back up Found out I had Chiari 1 Malformation and Syringomyelia 1998(13 y. o.) I had Chiari Decompression surgery to relieve Syringomyelia (that didn’t work) so, in 1999 I had a VP shunt placed (that worked). I was fine before (stiff neck and scoliosis) and after the...

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  • DOES ANY ONE HAVE A SUCCESS STORY TO SHARE

    Hi there, I am chiarian and waiting for my surgery...I read this story..seems that majority of this members although they are having surgery but they still having symptom ...is there any of you..that have symptom free at all or what you call it..SUCCESS STORY?? can you please share with us..or even...

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  • does this sound like chiari??

    Hey ppl!! I've had alot of scary symtoms the past 4 months and no cause has yet been found. I've done all possible blood tests, lumbar puncture, CT scan, EKG, endoscopy through nose/troat, checked my ears and even my teeth. It all started with a sudden crazy nausea and dizzyness that made me...

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  • Muscle Spasms

    Is anyone experiencing muscle spasms that can be mistaken for seizures? Also is anyone having tightness in the front of the neck? Almost looks like the neck muscles are too tight. That's a sign when I have muscle spasms. The CHIARI Specialist doesn't know if it's related to my CHIARI Malformation...

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  • Newly Diagnosed Chiarian

    Hi I am new to the group, I just recently was diagnosed with Chiari Malformation about a month or two ago. I was referred to a Neurosurgeon who then referred me to a Headache Specialist. After going to the headache specialist twice, she put me on meds that did absolutely nothing to help and caused horrific...

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  • I don’t believe my diagnosis.....

    I am a 51 yr old woman. I went to a new neurologist  because I was having blurry vision, dizziness and bad headaches/migraines daily. Back up in the years prior,  I was diagnosed as a teen, passing out as a football cheerleader,  with thoracic outlet syndrome. My mother and I decided it...

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  • After CM1 operation..CSF Leak / Infection ??

    Dear CM1 patients, I have been operated on 10 march 2018. After six days i was discharged from the hospital. The wound looked good and the surgeon said u can go home if you want.  I dont have so extreme pain, but some what especially if you compare it with the first 2 days. My jaws dont hurt anymore..and...

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  • I don’t know what to do!

    I am male Currently 33 yo I had decompression surgery  around 1996 or ’97, I was told that I had had Chiari 1 Malformation and my spinal cord was fused to my top vertebrae. I never had any pain from the Chiari, just a stiff neck before having any surgery (nothing that couldn’t be helped...

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  • Chiari and back problems

    Hello people, I am really curious if anyone with a chiari and without a syrinx have problems with his back. Pain between shoulder blades and a generall stifness on the hole back. Lower back also..when you sit in the car or just lay on your bed constantly this stiffness..and this stiffness became progresivelly...

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