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Chiari Malformation and Pregnancy

Posted , 4 users are following.

SleepyBunny
SleepyBunny

Hello,

I was diagnosed with Chiari Malformation two years ago. Since then i had the decompression surgery but my symptoms still remain.

I am currently 30 years old and have been thinking about my future more and how eventually i would like to start a family. I've been worrying that with my health deteriorating, is it safe for me to get pregnant, let alone give birth with my Chiari still present? Coughing hurts, so what would giving birth do to me? I'm starting to think that maybe i can't and shouldn't have children. It's depressing me, overthinking it and worrying that i will never be able to have my own family.

I just wondered if there was anyone with Chiari that has had children? what was your experience? what was the pregnancy and birth like? did the child/children inherit the condition?

Any support and advice is welcome, thank you x

0 likes, 4 replies

4 Replies

  • jennifer1979
    jennifer1979 SleepyBunny

    Posted

    i had a son but didnt know i had chiari and a few other things wrong with my brain they say the pregnancy triggered it off my symptoms kicked off then apparently ur not alloeed spinal block if u have it thats just from reading wudnt change it for the world tho

    • SleepyBunny
      SleepyBunny jennifer1979

      Posted

      Hey Jennifer, thank you for replying to me, appreciate it. Perhaps a caesarean is an option x

  • julia_89059
    julia_89059 SleepyBunny

    Posted

    I have a total of 5 children. I was very young when I had my first child. My symptoms were syncope. I would literally pass out anywhere and everywhere and of course migraine's severe one's. I didn't know I had chiari Malformation until 3 years ago, by that time I had all my children. I had them vaginally and I don't think I had any problems during birth. I did have preterm contractions at the ending of my pregnancy's. I have had my children check to see if they had chiari and 3 of them don't, the other 2 I haven't check yet. I did have decompression surgery because my CSF was blocked. So I understand about you still having symptoms because I still do. As the doctor says it's not a cure but a way to help relieve some of our symptoms. If you have any questions feel free to ask. Good luck and don't give up on having children.

    • SleepyBunny
      SleepyBunny julia_89059

      Posted

      Hi Julia, thanks for your reply it helps my anxieties about pregnancy and birth x

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