2 years ago I had a pulmonary embolism and now I have bad anxiety. Anyone else?

Posted , 6 users are following.

I feel like I'm going to get another PE. Every time I feel pains or out of breath I get really bad anxiety and I start panicking. I still remember you symptoms and it drives me crazy that I think it's going to happen again. I've gone to the urgent care twice thinking I have it again when I really dont. I was wondering if anyone is going through the same thing? Worrying that it might happen again?

0 likes, 12 replies

12 Replies

  • Posted

    Hi Ivett

    I am so sorry to hear of your worries.

    I think all of us to a greater or lesser extent have the same concerns.

    But if you are now off the meds and have give 2 years without another PE then you are probably in a good place.

    If you are still on the thinner meds then you are unlikely to have another one.

    Is there a support group in your area where you could talk to others in a similar situation rather than just medical staff?


    • Posted

      Yes I will need to look into a support group. I guess my medical question would be is there something I can take? I'm no longer on blood thinners. I heard people taking aspirin. Does that help?

    • Posted

      Hi Ivette

      i am about to face the same issue trying to come off Rivaroxaban.

      I am looking into Nattokinase which has natural anti clot capabilities.

      The other alternative is 75mg aspirin which after about 5 years helps to also protect against Bowel Cancer.

      But as we are all different apparently it seems to be a bit of a minefield.

      Stay strong


  • Posted

    Hi Ivett yes I'm the same I had a massive PE in February this year and it's really scary that it might happen again. I'm still on Apixaban so it shouldn't but i Worry that if and when I stop taking it it could ! We have to stay positive .. regards Linda 

    • Posted

      Yes it's so scary. I will try and have positive thoughts because I feel like I'm going crazy!

    • Posted

      It's awful but I'm sure if you talked to your doctor he'll reassure you because it's a big deal xx

  • Posted

    Hi there!

    I have developed major health anxiety because of my PE. I totally get it. I hope you get support from loved ones. My husband keeps me grounded and is reassuring.

    Hang in there!

    • Posted

      I'm glad to hear that. My bf tells me it's all in my head which most likely it is. It's just so hard to not think about it!

    • Posted

      i totally understand how you feel and we are blessed if we have good hubby's we need all the help we can get ! I worry it'll happen again !

  • Posted

    I had bad health anxiety and my worst fear was getting a p.e- I got over the anxiety and recently spent a month in hospital over a day surgery done wrong and then developed 2 small p.e's in my lungs! I've been started on a high dose of blood thinners for around 5 days now but I'm terrified of getting another one!! Any pains or breathlessness I break out into a sweat thinking the worst! It really is awful but I'm trying to keep the anxiety under control as most of the breathlessness is probably me over thinking it!!

  • Posted

    Oh my gosh.....I'm so glad i stumbled upon this! I am the EXACT same way! Im 6months post C-section and PE, and I flip out like everyday, worrying that I've got another clot! Any time I have any kind of shortness of breath or chest heaviness.....my anxiety goes through the roof!! How long is this supposed to last?? (the chest soreness and shortness of breath) I see its been 2 years for you and that makes me worry that I'll never really get over the anxiety of it all!

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