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Pulmonary Embolism

Also known as Embolism

Can you help? Discussions needing a reply

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  • UNPROVOKED PE in both lungs and now DVT in arm

    Hi everyone this experience is absolutely horrid and scary. I'm currently going through unprovoked PEs & unprovoked upper-extremity DVTs.  Dr.s are all at a loss because mine were both separate incidents, both unprovoked and all my blood work has come back excellent. I'm hoping someone...

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  • Slightly Elevated D-Dimer (Third Time)

    Hello everyone!  I'm very scared at the moment and would really appreciate your advice. I'm 25 years old and stopped birth control bbout 4 months ago after I went to the hospital complaining of chest pain with a high heart rate and shortness of breath. After testing my blood they told me...

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  • Pulmanory Embolism caused by Aneurysm.

    Hi ,I’m a fit 67 yr old male.In May of this year,went to GP with a cough,occasionally bloody,and a painful chest.Sent to local hospital and to my shock was diagnosed with pneumonia and bilateral pulmonary embolism.After various scans and treatment was discharged and on Rivaroxiban,and then Apaxban,never...

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  • New symptoms.

    Hi . Phew I am 1 year post PE. Was feeling really good until last week... Looking for some reassurances. I have pain/dull ache in my left breast going through to my back just under my shoulder blade. There all the time. My heart is racing but I think that might be because I am getting anxious. Not...

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  • Switched to asprin

    I finished 6 months of apixaban back in may for a bilateral pulmonary embolism. Ive been on baby asprin sinve then and so far no pe or dvt. Has anyone else switched from anticoagulants to asprin?

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  • FEELING MUCH BETTER! #RECOVERY

    I just want to Thank God for this recovery. I feel so much better, my chest does not hurt, I can walk and lay down with out being SOB or having chest pains. I was able to return to work the 20th of this month work full time still. My goals are to make sure I take care of myself, not missing my medication...

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  • Chronic bronchitis after PE?

    I'm getting very concerned. I had a bilateral massive PE almost 2.5 years ago. Since then, I don't seem to be very healthy. For example, I was sick this entire last summer for about 2.5 months with asthma/bronchitis and right now I've been sick for a month with this terrible bronchitis. It...

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  • Should I push through the pain?

    Had a bit of a surprise one month ago in the form of a "bilateral main pulmonary artery embolism with right heart strain and pulmonary trunk dilation" (thank you discharge notes). While I was happy just to be receiving some oxygen, the doctors looked concerned and gave me thrombolysis...

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  • Post PE shoulder blade pain

    Just curious how long it takes for the shoulder blade pains and pain under the rib cage to disappear. There are days that I'm fine and other days that the pain is so intense. Seems the more I do the worse the pain. I am two months post multiple PEs. Could it be the clots breaking down or scar tissue...

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  • Unprovoked Bilateral Pulmonary Emboli

    I was diagnosed with unprovoked bilateral PE in July 2017 I am on Rixaroxaban.  I am concerned that the only appointment I have had from the hospital is to see the anti coagulant team.  I was expecting some investigation into the reason I suddenly have colts but nothing seems to be forth coming. ...

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  • Newly diagnosed with unknown cause of pulmonary embolism

    Just got out of the hospital with a PE. Been told will be on Coumadin at least a year. Heart looked ok. Clots only in right lung. Doctor's couldn't find where clots came from. If it wasn't the constant being short of breath, I'd feel ok. So, when is it ok to go back to work? When...

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  • Thoracic consultant

    hi all just a quick update.  Was diagnosed with multiple bilateral PEs in July. Had loads of tests and most came back ok. Went to a thoracic consultant last week who specialises in PEs, he told me that my tiredness and pain was t not caused by the clots or medication but that it could be phantom...

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  • Pe recovery tome

    I'm 25, I was recently diagnosed with PE, due to some contraceptive pills and long car ride, I was very scared when I was told this. How long will this recovery process take, I know it can be different depending on the person

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  • P.Es and upper back chest pain

    Hi Everyone I was diagnosed with multiple bilateral clots and lung infarction about 6 weeks ago. I was injecting Fragmin twice a day for about 2 weeks and then put on Apixaban 5mg twice a day. When I was diagnosed i had upper back and chest pain that seemed muscular because it was painful to touch and...

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  • Blood clot Free 😍😍😍😍

    Hello everyone, I am happy to say i am bloodclot Free i have a 4,8 mm scar in lungs The doctor say its ok! Hru guys? Hope Everythings ok! Will stop medication this September 30 But then my anxiety wont stop it Kills me i Feel crazy dont know what to do! I am happy anyway take care all... we...

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  • Pills

    Hello everyone, I just wanna ask if someone here Using pills again After PE! Or any birth control After PE is anything goes back to normal? Because my OB give me 1 pills and she say its ok To Take it but i'm still scared... so i don't Take. Thanks for the answere would appriciate it, Jhona

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  • COPD AFTER Pulmonary Embolism and a Non Smoker?

    Hi. Has anyone out there been diagnosed with Pulmonary Embolism first, and then gotten chronic bronchitis and then COPD within a year or two after? I am a non smoker with no history of asthma or any breathing issues prior to my multiple pulmonary embolisms. I also was very fit and athletic. Now I am...

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  • How can I have more PE's while on Rivaroxaban?

    Hi,    I spoke to my GP today who told me she had my CT scan's results back, I asked if she could have a look and was told first that it was great news as my massive saddle pulmonary embolism has gone. But the scan showed multiple blood clots at the bottom of both my lungs, I asked...

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  • Is it likely to be another PE?

    Hi guys, I first got a pe in May in my left lung (which showed previous) and since then been on fragmin. I'm still struggling on a day to day basis with relaxing/paranoia etc! I never showed any signs of a pe, got admitted as they thought I had a infection, on methotrexate and white blood cells...

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  • Post surgical pe's

    Hi all. I'm 6 weeks post hip revision surgery. Had two weeks pre surgery complete bed rest due to disclocations. Developed multiple bi lateral pe day 6. Still struggling now with pain in lungs. See my other posts in hip replacement forums for whole journey. How long does pain and shortness of...

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  • My INR 1.80 WORRIED that I could have another PE

    Today I had my blood tests and my results came back as 1.80. I was diagnosed in July was back in hospital 2 weeks ago with terrible pain in my lungs and lower back ( kidney area). Laat night I woke up with a burning sensation in my right side in my chest and my right arm feels heavy and gets numb...

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  • CWB CWB

    Rivaroxaban and Pregnancy!

    My wife has just fallen pregnant (4 weeks) and has been on Rivaroxaban as she was diagnosed with PE. This wasn't planned but we are now in a real dilemma as to what to do next. The drug is apparently toxic and it's not known what the effects could have on the baby. From what I've found, testing...

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  • recovered from multiple bilateral PE.

    I just felt I wanted to let all you suffering from this condition know it does get better. Just takes time. lots of it !!!. August 2016 I would not have believed it. Today I had a normal day and actually forgot about it. Anxiety is your worst enemy. Good luck guys. xx😍

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  • Anybody get periodic ct scans ans or d dimer tests?

    I had a PE in august of 2014. I have been ofd xarelto for over a year now i sometimes get weird pains in my legs. I am extremly worried about getting another PE. Mine was supposidly caused from my birth control which of course i am no longer taking. However i feel like my doctor never does anything...

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  • Memory Loss

    I've been back on Rivaroxaban for just over a year now and have noticed my memory isn't what it used to be. I'm always forgetting things at work and need to write things down all the time. I forget to tell my husband things and we end up arguing cos I swear I've told him. Does anyone...

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  • The pain is getting worst, any advice welcome please

    Hi, My Massive saddle PE was found on the first of April and I was given IV thrombolytics, which I was told saved my life, I was in hospital for 10 days and was put on Rivaroxaban and my pain medication started at a low doge of 30mg of Zomorph (slow release) twice a day, morning and night and a...

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  • Constant sharp pain In both my lungs and shoulders

    I'm 1 month post diagnosis with blood clots in both my lungs..  it's crazy how it all started for me.. for 1 I have really large breast so I always blame that on my higher back pain also I have a 22 lb 5 month old baby.. so it was nothing for me to blame carrying him for sharp pains.. I...

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  • Very confusing symptoms uprooting life.

    I'll try to make this short as possible. Since July 4th, I've been suffering from very disturbing symptoms that have been ruining my life. Constant head pressure above ears and temples, neck pressure on the sides, and most recently rapid heart rate with a weird metallic taste in my mouth and...

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  • September 30 off in apixaban

    Hello There....... Good news for me This coming september 30 will come off with Medication and 4 September will do A Small Dose of CT scan. Any how did anyone have back pain. I Got strong back pain This Past few weeks I already went o doctor and ask her say i only need to put warm or Hot Water when...

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  • Warfarin side effects

    i have been on warfarin for nearly five years due to massive PE no obvious cause in this time I have gained three stone in weight I eat healthy exercise don't drink or smoke so am positive this is due to warfarin . I am seeing my Gp in two weeks to try and stop warfarin but been told I must take...

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  • Is this normal?

    Hi, I'm new to the group, I was rushed into hospital on April 1st, where they found I had a massive saddle pulmonary embolism and was given IV thrombolytics, in hospital for 10 days and came home on rivaroxaban. But still after approx 18 weeks my chest pain is stillso bad, why is this? My doctor...

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  • Coughing blood

    hi everyone, been on fragmin injections for 10 days due to PEs with lung infarction but still coughing up mucous with streaks of blood. Does anyone else have this?  Any advice appreciated

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  • How is eveyone

    I havent seen anyone post in awhile. Wanted to see if everyone was doing. If anyones off of blood thinners?

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  • Sharp pain at the back of my lungs.....should I be concerned?

    I am still new to all of this. It's been two weeks since my discharge our of hospital where I was tested for bilateral PE and DVT in my right leg. I am on Warfarin and my NRI is wurhin limit. Today I had to take my mom to an eye specialist and I had to load and unload her Wheelchair. Since then...

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