Is this normal after having a PE?

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Im sorry that i keep posting here, but i have to ask: is it normal to feel as if you are physically fragile months after PE treatment? i feel like if i start walking or running i will keel over and die, or wind up in the hospital again.

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  • Posted

    yes, it is completely normal, specially if you are on anticoagulants! It took my 14 year old daughter at least two years before she started to feel a little better and stronger! It also affects you psychologically and the best thing to do is to keep your chin up and ask for help whenever you need it! You will overcome it and feel better! It takes a little time!

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  • Posted

    Hi. Sorry you are going through this ordeal.

    I had my PE's 3 years ago. It is a pretty profound physical as well as emotional experience.

    I didn't feel well for months and I emotionally felt fragile.

    Counseling helped me a great deal.

    I also had a wonderful pulmonologist who sent me for post tests to make sure the clots had totally resolved.

    Now 3 years after, it's as though I didn't have them.

    You will get back to normal and what you are feeling is entirely normal.

    Take care. Be good to yourself.

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  • Posted

    I agree I am 1 year since my PE but still dont feel back to myself. I feel it takes a while before your body heals completely. I have gone to ER a few times wondering if I am having another since I don't take blood thinners any longer. Still get short of breath, heart palpitations, anxiety but things are gradually improving' It takes time.

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  • Posted

    I had mine this time last year, at the end of September I joined the gym and started step aerobics and pilates. It was hard doing step aerobics as I was getting out if breath due to the lung damage caused by the PE. I am still slower the everyone else and get short of breath but I still hope my lung can recover.

    I do feel scared and have a panic if I feel a slight pain or breathless, also I have a bit of an obsession to keep up my routine of exercising, not sitting for too long, drinking at least a litre of water per day. I do not think it will ever leave me.

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  • Posted

    i think this is perfectly normal from asking others. itgaveme such a fright like you and my energy levels have not recovered fully. i am learning to accept it. i am on warfarin for life and im sure that doesnt help. psychologically it affects many, me included, and i am still trying to get back my old self. everything seems so hard but most people seem to be able to get there given time. i wish you luck.

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  • Posted

    It's 18 months since I had multiple pe's. Dr gave me a 1 in 3 chance of not surviving the 1st night!! I have had multiple issues since. Mostly re nerve issues in my legs and loss of lung function. I have a great hematologist but I can't see him for day to day issues. Finding a Dr that took pe's seriously was my biggest issue. BUT it's all the medications that are playing with my symptoms. Every medication has a side affect. So another medication to address the side affects!!!

    I have many mental issues. Every pain is another pe?? Fatigue. Depression. Why me thoughts all the time. They told me it would take 2+ years to get back to 'normal'. Whatever that is.

    Everyone is different. I've read a zillion web pages. Reading too much is half the problem. I now believe that time and patience is the only answer.

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  • Posted

    Yes it is normal. I was diagnosed with PE a year ago and now am out of taking drugs, though walking

    faster or running is a big challenge since if I do, I feel as if am becoming breathless. Just try to be strong and you will get better.

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  • Posted

    i had my PE three months ago and i feel like i am shut down. that is the extreme fatigue is most disabling. the doctors say this is expected but i feel worse. i walk a few blocks and hours later i have no energy. i think it is the Xarelto but my doctors disagree.

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  • Posted

    i am three months since my PE and still ferl very fragile. but my biggest complaint is my extreme fatigue. some days i feel i am going backwards though my doctors say this is normal. i hope so.

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