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2 years ago I started getting a lot of pain when talking or singing. This was after years of a globus sensation that came and went but didnt affect my voice. This all quickly got worse to the point where I could barely speak, and the tension and pain was unbearable if I used my voice and afterwards.
I saw every doctors, specialist, 4 endoscopies with strobes,tonsillectomy, speech therapists, laryngeal manipulation, peptests, reflux diets, exercise, meditation etc. Nothing really changed!
It's been two years now, and my life is a shadow of what it used to be, and I spend all my time alone and have become very depressed and lonely. I used to be sociable and run groups and workshops and sing. So I'm unable to do what I love.
I have been told by all the doctors and ENT's I've seen that it doesnt look like reflux, and my vocal cords and throat look fine. I do have some red/orange spots on the throat which apparently are nothing to worry about. Recently I have noticed some small white lumps where my tonsils used to be, which apparently are just cystic lymphoid tissue or blocked saliva glands, and nothing to worry about....as always!
But having before accepted that my problems were a mixture of psychosomatic and possibly just bad subtle habits from years of anxiety, I am now worried about possible medical causes, such as LPR/silent reflux. I feel like I'm going around in circles.
Do other's with LPR/silent reflux only experience pain and burning from voice use, but nothing else? I can't find anyone else who is the same in this way. Please let me know?
I would like to get more conclusive tests for silent reflux, but as my endoscopies dont show problems, its hard to get referred. Mostly the doctors dont seem to know or care much whats going on.
Any help or similar experiences shared woudl be appreciated
I feel for anyone going through something similar, its debilitating
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