2 years since prostate removed

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Hi is it normal to feel crap mentally after this long

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  • Posted

    I would think feeling like crap occasionally would be normal. However, there may be medical underlying causes that should be discussed and checked out by your primary care physician.

    Are you eating a good diet? Exercising regularly ?

    As far as 'depression ' as a survivor of cancer I believe it is very common.

    We all go through spells or moments when we feel like crap. Oftentimes talking through it works, other times I feel better after exercising.

    If it is a 'mood ' thing I believe most of us have been there.

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    • Posted

      Thanks for your msg I'm 46 work full time in the building industry and still having trouble with the thought of not being able to proform as a husband to my wife,it's not that nothing is happening it's just different, feel like I'm a falure.

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  • Posted

    Ask your doc to check your Testosterone levels.

    i was having same feeling second half of last year and my doc checked my T levels this a January and all came below the lower range.

    Started Clomiphene in January and on April check up my Testosterone rose to 602. In January was 217. Few weeks after Clomiphene started, I started feeling better.

    Worth to ask and check!

    MK

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  • Posted

    Go to an endocrinologist and ask for a full bloods workup including all hormone related matters.

    Whatever is not as it should be can be best corrected by an endocrinologist.

    Oh, and find a GOOD one. A crappy one will just waste your time (at best) and misdiagnose you,

    as happened to me (at worst) before I found a good one.

    Best wishes.

     

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  • Posted

    They don’t know the full function of the prostate or the bits you loose with it. I had Open Radical Prostatectomy (RP) in November 2015 at 72. While my surgeon/urologist was as expert in Robot Assisted procedure the equipment was not available in my city, Newcastle NSW. I didn’t know this till some weeks after my surgery. Post-op fluid retention, rashes, fungal infection that could not be treated in my incontinent condition started me off pretty crappily. Then there was the blockage that was mistreated because emergency triage didn’t know their own medical jargon. This mistreatment led to months of self catheterization, cystocopy and two kidney stone ops. The incontinence is still making my life miserable and now Polymyalgia Rheumatica which is not supposed to be linked to surgery or the cancer but cases are on file.

    We are told we have to assume we still have PCa cells waiting to declare themselves and while my PSAs are only 0.01 and 0.02 PSAs never got to anywhere near PCa suspect level before my diagnosis. My testosterone is below normal levels but urology will not treat this for fear of promoting Cancer’s return. Though I fill only 1 or 2 pads a day it’s always uncomfortable with many toilet visits. You don’t know when your pad will overflow when you sit on someone’s lounge or car seat.

    My post-MRI biopsy targeted my two 3+4 PCa areas which bled profusely. They say this doesn’t spread the cancer because the survival rate from pancreatic biopsies is the same as for those that don’t. have them?????  Hardly reassuring.

    I guess feeling crappy is a byproduct of treating prostrates.

    Barrie

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  • Posted

    It's been almost exactly 2 years since I had my RP. I had some complications right from the start with my urethra tube closing off, resulting in a further 2 surgeries. I still wear the lightest pad, but It is usually not even wet when I change it, so that I can live with, but it's the ED that I'm struggling with. I was told that both nerve bundles were saved, but so far I have had no luck. I've tried both Viagra and Cialis with no luck. Sometimes I feel like something is trying to happen, and I do get a little bigger, but nowhere near enough to do anything with.

    I'll give it a little longer before I resort to trying injections. I'm probably more depressed now than I was at the beginning because I was really hoping to have at least something going on by now.

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    • Posted

      Rick, 

      the sooner you strait injections it is better. Don’t waste your time.

      I started injections at 5 1/2 months post op. TRIMIX was too painful, BIMIX did not produce erections sufficient for penetration.

      i decided on implant and was implanted 4 days ago 9/5/18.

      So far recovery is not bad as I expected.

      Good luck with injections.

      MK

       

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    • Posted

      Do you take Cialis 5mg daily?  Even on days you don't have sex. I was told that is better than taking any ED drug just before you want sex.

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    • Posted

      I tried the 5mg for a month with no success, also, my drug plan would not cover the 5mg tablets, but they do cover the 20mg, both Cialis and Viagra. 

      Every couple of weeks I'll take a Viagra for 2 or 3 days in a row and although I still have not had an erection, it does get a little bigger. I've got a good supply of pills so I might as well use them.

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    • Posted

      Rick,

      do not waste your time on something that won’t work. If it would be for recovery and if erectile nerves recovered enough to react with PDE5i, it was already time to produce erection. As you report, it did not happen.

      If you live in USA and you are covered by insurance either employer sponsored or your private, you should be able to be approved for an implant. Implant after RPis meant as a tool to restore sexual function and is covered by most insurance plans.

      MK

       

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  • Posted

    Hi, i had mine removed 3 years ago, had plenty of ups and downs since then. Exercise defiantly helps, its a b***h to get going after years of being a couch potato but worth a try.

    As for ED, im on Viagra as and when i need it but i have also stumbled across CBD oil, it defiantly helps down below without a doubt, two drops a day or 1 capsule, it just seams to give it that little bit of extra life. if anyone else has any success with it , let us all know . Some people also say it helps with moods, so again worth a try. (CBD oil is an extract from the cannabis plant without the stuf in it that makes you high, it is also legal to buy in the UK)

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