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So I'm Jess,
I'm 20 newly diagnosed with pancreatitis, with very little to no information from doctors & hospitals. (Please be aware this is a bit of a long story! but in need of help) This year so far I have had 3 pretty bad 'attacks' all of which I have been admitted to hospital for, a few not so bad but still very frustrating & painful. The very first time I had an attack was new years day, after a night that consisted of only 3 drinks! I was seriously ill, vomiting around every 20 mins, extremely high temps, serious back pain to the point of physically not being able to stand, mild muscular convulsions, dehydration the works! I would have to say it was the sickest I have ever been. After about 8 hours of torture I rang my mum to take me to the hospital, after being admitted they assumed I had appendicitis straight away. Did blood work, which at the time the were sure was fine, ct scan, chest xray, ultrasound & then even an internal ultra sound. Coming to the conclusion I infact did not have appendicitis but a kidney stone. I was told I had to stay till it had passed for fear of blood poisioning if not. They were very slacked when it came to straining my urine for the stone, most of the time the collection pan fell into the toilet loosing most of the fluid inside! Needless to say they decided to discharge me anyway, and as I was about to be discharged later the next day they looked over my blood work & saw my lipase levels were about 1500. Because they never really explained this to me I had no idea weither it was good or bad but assumed it wasnt normal. They decided to keep me longer and do more blood work. After nearly another full day on fluids, antibiotics & no food my bloods came back with a lipase level of 550. But they still decided to discharge me with little information except see your doctor to get more tests, you have pancreatitis. Not knowing much about it & feeling a little better I let it go. Never was there a warning about triggers or to stay away from anything. No information at all.
Then a few months later was out for a friends birthday and had probably 2 drinks in the space of 3 hours went to have another & ended up unconsius & unresponsive on the floor of a bathroom for 2 hours with apparent convulsions. Paramedics tried to wake me but it wasnt happening (they actually fractured my thumb from pressing & bending on it to try & wake me & I still dont remeber) it wasnt until I was at the hospital that finally I started to answer some questions. They asked me if i was on meds or had any previous history of illness, all i saw was pancreatitis. By the time I was awake & able to sit up they had diagnosed me again with pancreatitis due to intox. Told me how I needed to lay of the alcohol & to make better choices & how I should have learned the first time. Which made me feel like I had done something wrong I have never had a problem with alcohol nor have I ever abused it, I hardly drink. But I know it takes me more that 3 drinks to end up like that, I left feeling worse than I had the last time physically & emotionally. As I had not been told alcohol was a trigger, nor am I an irresponsible juvenille which is how they made me feel!
Again later that afternoon I ended up in hospital again as my symptoms were worse, all of the original symptoms but with the added bonus of extreme chest pain & elevated heart rate. To which they again discharged me after fluids, more chest xrays & cts and again with pancreatitis, doctors referal & no real information besides lay of the alcohol & fatty foods.
Since then I have cut back on my fatty food intake & completely wiped my alcohol but still feel really crappy. It has affected me emotionally as well as physically because it has made me feel guilty for some reason. Like I should have known, thats definately the vibe I got from the last to doctors at the hopsital. I just feel like ive been given this label & been left to sort it out myself with no real regard for me, because they think Im just some silly young girl who binges on the alcohol. If I had known the cause I definately wouldnt have gone back for more. And even though I have cut out both of those things I still do not always feel 100% And I dont want to go back for help because I feel embarrased.
I know my story is long & my spelling & punctuation not the best! But I just would really love some advice or even some people in similar situations!
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