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My granddaughter had decompression surgery for Chiari Malformation, Jan 4 2017 its only been a little over a month, but symptons seem to be coming back she never sleeps through the night crys unless mommy or mamaw are holding her, grabs her head alot and her temper is out of this world, we know she is in pain you can just tell and it breaks your heart,she does have her good days or rather hours but mostly you can tell she is not feeling good, she will absolutely not take anything orally for pain since the surgery she will throw it up instantely, we now give her suppositories with tylenol all the time its the only way to help her, has anyone else delt with a toddler after the surgery we are not sure whether to be alarmed or not she goes back to the neurologist March 25th to her checkup iv heard that sometimes they will have to do surgery again i pray she doesnt, she was so misserable, iv read alot from adults on here does anyone alse have a baby going through this? Thanks. ( My daughter is going to get on here also)
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