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Hi guys! I've been suffering from migraines since I was about 13 (I'm 20 now). My mum had migraines and so did my nana and my grand grandma and my auntie on my dads side so I don’t have the best genes! But for some reason in the past 3 years my migraines have turned into an even bigger monster than any others in my family’s history. I’ve had one every single day for just over 2 years. The last time I can remember actually properly fully not having at least a headache was 3 amazing days in september 2012. But then I was just back to ‘normal’ again and it was heart-breaking. I think the blame lies in the trigger of fluorescent lights in all my educational settings, obviously because of this I'm in constant pain, in school, then when I went to college and now that I am at university. Through this the doctor recommended migraleve (why a doctor would offer an addictive drug to a teenager in chronic pain I will never understand) and obviously for the first time in ages I was free from pain. Clearly that was going to bite me in the butt! So I used them within the stated dose but probably a little casually with paracetimol and ibuprofen and somewhere along the way I have created a transformative chronic migraine (this is my theory anyway it is all very confusing because my gp was awful and I didn’t have any other support other than my mum who is a dr but in a different field)
Ive been on and off different contrecptive pills for two years until my gp discovered I have high blood pressure. My mum also has high blood pressure but it was only picked up on when she was in her early 40s. BUT when she started taking her high blood pressure medication her migraines WENT AWAY COMPLETELY!! HEAVEN!!
One of my questions is has anyone else had a similar experience with blood pressure medication? I haven’t started taking mine yet as I do not want to take too many meds at the same time but its called RAMIPRIL
Whist all this drama with the migraleve and contraceptive pill was going on I started university and was trying out different preventative drugs none of which made any difference at all except making me put on weight. I’ve tried propanol, amatritalyne and pistofen. I’ve also had an MRI and that’s all fine. Also to be clear, I’ve had a 4 month period from December 2012 of absolutely no medication at all, (except about three triptans) to try and break the rebound headache cycle but there was absolutely no change at all. I didn’t even seem to get the “worse before it gets better” stage everyone always talks about. So I struggled on, on my own. Then after literally years of trying I got referred to the neurologist, who turned out to be a total bully and just repeatedly told me I was stressed and that they were tension headaches, he told me to have more baths (!) and try to relax more. As I’m sure all of you can imagine after waiting so long to get an appointment I came out absolutely distraught that he hadn’t even understood my condition and cried in the car park and all the way home. However I managed to get another appointment 5 months (Christmas time 2013) later with a more senior neurologist who has now asked me to completely stop all analgesics (so no paracetemol for me! And I had already stopped all codeine products) and gave me Topamax. I’ve been on it for just over 2 months now and I’m up to 150 (going up to 200 very soon) I’ve only had very minor side effects that I’m more than happy to deal with if the medications works but I haven’t felt anything in relation to it easing my head yet! sorry for the life story but I'm getting desperate!
What does it feel like when it starts to take effect? Is it obvious?
Have there been any success stories from any chronic daily migraine sufferers on Topamax?
Also I’ve seen on here that some people are on a combination of preventative drugs, if Topamax doesn’t work what step should I take next? Because my drs are hopeless and don’t seem to actually know anything about migraines
Also does anyone have info on the “migraine surgery”? Would my type of migraine respond to the surgery?
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