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Hello, I am a 20 year old girl and i've recently been diagnosed with HS. I've had the problems relating to it for around 2 years now and was even initially diagnosed with acne. I'm learning just how ignorant doctors are to this absolutely dreadful experience and I feel like I can't talk to anyone. My mummy is absolutely brilliant but I'm too embarrased to be completely open about what I'm going through and I feel so lonely and isolated. I got my first perianal abscess a month ago, it was massive- 19cm in size and i was admitted to hospital to have it drained. I have HS in and around my groin and all over and in between my buttocks and i could not be any more depressed and embarrased over it. I'm currently on bedrest and I'm a student at university (which i'm now behind in) and have a job and i can't drive or leave the house without fear of getting and infection or making anything worse, i can tell the wound is going to take so long to heal. I am a very active person and I live to go to the gym and this has just rendered me immobile and I'm finding it extremely difficult to cope as I have such issues over me weight as it is and pyschologically, doing nothing all day every day is taking its toll on my mental state of mind. Yesterday, I attempted light exercise for the first time and now today I have a hot, sore red lump in my groin which might be another abscess! is this what its always going to be like? I'm a young girl and the humiliation is taking its toll on my life
1 like, 12 replies
lindsey92322 megan04424
Posted
I had my first one whilst I was at uni 10 years ago, I had alot going on at
that moment in time. For me stress is a hugh part of this horrendous
condition.
We all need to remember that were not super women...
my recommendation to you would be to try and cut down on the amount of stuff your doing.. relax more destress etc..... most importantly tell your mum hunny.
University is stressful in its own right, hopefully you have found a good
dermatologist. .. it can be bought down in serverity. Just remember that what works for one person may not work for you.
Xx
megan04424 lindsey92322
Posted
one of the doctors i went to see about it called it 'sweaty bum disease'. It was so hurtful and offensive.
I have a hospital appointment on the 10th march and i will definitely be enquiring about a dermatologist.
x
lindsey92322 megan04424
Posted
diagnosed with other issues.
Glad you have an appointment soon
let me know how you get on hun xx
Chez78 megan04424
Posted
I myself have been dealing with HS for 20 years only being 36 now it has been over half my life. Lindsey is right on what works for some doesnt work for others so just try not to get down when something will work at first and then stop. I know i have felt like is this gonna run my life and in a way yes but you learn to adapt and you wont always feel this bad. a big thing for me was my diet and yes stress ... the more i stick to what foods dont cause as many outbreaks and the less stress i have in my life the better i do. I got very down for a while when my doctors just seemed to run out of solutions and i even had a doctor that their main specialty was HS so i get the feeling of helplessnes. and talk to your mom I myself do turn to others with it cuz it does make me feel better but sometimes there is noting like venting to mom to feel better and mine has actually gotten on board and helped me with researching on my own non madicinal ways to try to make this miserable thing called HS better for me. I know it is such a embarasing thing but get a support group around you of people you love .... in my case it has made this whole nightmare a bit better .. keep your head up.
megan04424 Chez78
Posted
I'm really seeing that home remedies seem to work the best for people because the doctors are so useless so i ordered some turmeric capsules, zinc gluconate, burdock root and fish oils!! not sure which are myths and which arent but im desperate to try anything!
Chez78 megan04424
Posted
megan04424 Chez78
Posted
are there any surgery options? i read about people having their sweat glands removed but im not sure how effective that would be.
i know no remedy is long term but it would be great to get away from the recurring abscesses. my perianal wound at the minute has only healed slightly after 2 very long weeks so i will just have to be patient before im on my feet again!
do u think its possible to still lead an active lifestyle because i dont know what i would do if i couldnt get to the gym.
thanks
Chez78 megan04424
Posted
crystal_08850 megan04424
Posted
hsierra megan04424
Posted
wonders. Its worth a try i hope it works for you like it did for me.
whoshunny15289 megan04424
Posted
meagan81387 megan04424
Posted
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