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Hidradenitis Suppurativa

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  • Clindamycin

    I’m curious if others have had a similar positive experience with clindamycin phosphate lotion? I was seeing a doctor for an unrelated reason and she mentioned this and wrote me a prescription. I had told her know one I had ever seen about my HS has mentioned this. She said she doesn’t think a lot of...

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  • Clindamycin

    I’m curious if others have had a similar positive experience with clindamycin phosphate lotion? I was seeing a doctor for an unrelated reason and she mentioned this and wrote me a prescription. I had told her know one I had ever seen about my HS has mentioned this. She said she doesn’t think a lot of...

    Posted
  • HS and AIP

    Ok folks. I quit smoking and yes, my boils aren’t as bad as they were but they are still there. I say smoking helped by 20% overall. They get worse around my time of the month and are constantly there. I’ve been stubborn and haven’t wanted to do much more. I’ve done tons of research and apparently the...

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  • Nothing seems to work for me! HELP

    So i have been suffering from HS for 5 years now. It comes and go especially when it's almost the time of the month then it'll be the worse!! I cant even wear any tops or dresses that i want cause this thing is smelly and it's big! it leaves dark marks on my armpits!! But still, i am clueless...

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  • Is it hidradenitis suppurativa or what?

    Hi I'm 21 year old female. I'm am so fed up with this, Since I was 18, I started getting these dark spots on My inner thighs,I can't remember to much but eventually they went away,kinda looked like small bruise. I remember I'd always get a small surface boil a week before my period,and...

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  • Suicidal Thoughts while going through HS

    I’m 18. I usually am a person who helps others, happy all the time, always would have a smile on my face. 2 years ago I was diagnosed with HS. In the beginning it wasn’t so bad. I was going to school, hanging out with friends, had a life. The second year everything went left. I had gotten to stage 3...

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  • Found the Hydrodenitus supprativa cure?

    I have been researching information on hydrodenitus supprativa for my husband who had a chronic condition with huge boils under his armpit and buttocks for almost 20 years...it more recently was in his armpits though and he would have huge boils twice a month he would have to get drained. I had him try...

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  • Diet, weight loss&remedies? HELP?!

    So, I've been suffering with HS since I was about 18, it really flared up when I went to university, I had one or two boils here and there in my teens but thought nothing of it. Now at 22, I get regular flare ups, multiple, often extremely painful boils on my thighs and buttocks, and most recently...

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  • Help

    I just found out I have this. I'm already depressed. Have no health insurance. Summer is here. Now I can't wear tank tops. What soaps can I use? And deordant. Any information will help me. Thank you in advance

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  • HS & working out/weight loss

    Hi everyone, I'm 26 & I have had HS going on 14 years or so now. In the past 3-4 years I have seen it gradually get worse. I have gained 30lbs in that time as well. I'm finding it harder and harder to work out because the pain is so bad. Some days it hurts to walk nevertheless get on a treadmill....

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  • Any advice please

    Hi. im 25 years old and ive been dealing with this since i was about 14 or 15. I never really knew what it was until recently, never knew it had a name or anything. When it first  showed up it was on my inner thighs. Just one here and there. When I was 20 they got pretty bad and i finally went to...

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  • HS and body odor

    Hey guys i was wondering if anybody Else is dealing with body odor due to H.S . If so what's your  solution  My  dermatologist  Has my set up for  surgery soon  To remove my sweat glance .hopefully that will help Answers please

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  • Hidradenitis Suppurativa Groin Surgery outcome

    I talked to my plastic surgeon about having the surgery on my groins to get rid of the markings and to cease the cysts from coming back. He said he would have to reconstruct my whole vagina. Has anyone ever had this done? I don’t want it to look weird, I’m 18 and would like to have a normal looking vagina....

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  • HS & Humira??? Help!!!

    Hey, I’ve dealing with HS since 2009 but I didn’t get diagnosed until 2011. Since then I have had several surgeries since 2011. The HS have become some what at a standstill to say the least. It comes every 2 to 3 months now. When at one point I was having surgery for every two weeks at one point. I just...

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  • Has anyone tried Humira to treat HS?

    I'm in stage three of HS and my dermatologist has suggested Humira.  We've tried A LOT of other things already like diet and antibiotics but I have had no success.  From what I've read, it's a new treatment for HS.   Has anyone tried this yet?  Humira is used for other...

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  • Food allergy connection

    Just started on this cite. I wanted to share my story and hopefully it will help others. I’ve had HS for 10 years.  I have not had medical insurance this whole time. I would go to the urgent cares in severe pain. They always gave me antibiotics and a few times it was so bad I had to have them...

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  • I’ve been in so much pain and depressed, what should i do?

    So hey guess my name is Ariel. I was just on google trying to find out more information about HS and came across this chat. I am so grateful to read about you guys stories because I’ve been feeling so alone. Like no one understand how painful this thing is. I had this for a couple years but not as bad...

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  • Referral finally came through!!

    I finally got a referral to see the dermatologist. It’s on 2nd of may. I have already taken the long term antibiotics and all the other normal ones. Does anyone know what is after antibiotic treatment? 

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  • Elimination diet!

    Tomorrow I’m starting the elimination diet. I’m very nervous but right now any change that’ll help would be good right! Wish me good look! I’ll let you know the updates as I go. Anyone who have any advice feel free to contribute. 

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  • Help with the tunneling

    I was wondering do anyone know how to reduce the tunneling left from the boils? Mines is minor buts it’s on my vagina area. Any product suggestions? Or home remedies? 

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  • HS after 60

    my HS started 3 years ago in my 60,s my dermatologist says this is very unusual,  i was wondering if anyone else's started later in life and if you know why it would trigger this late on ? My dermatologist is also talking about me taking dapsone has anyone tried it and if so how did it work...

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  • Relationship advice

    Hello, I apologize for being so blunt, but when it comes intercourse and oral sex what is the best way to handle these situations with your partner. I’m nervous to let him go down there and see everything up close and personal 

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  • Reclaiming my life back from hs

    I have been AIP 7 months and i do not regret it. So happy to be able to walk and sleep again. So happy to be able to lift my arms and strech a bit. Sure it takes time but now ik that food is medicine and the only thing that has ever helped me get closer to remission

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  • New to this site. Help and advice

    HI went to the doctors again for my HS. He's told me that there is nothing I can do about it only advice he gave me was to use Hair removal cream. I'm so upset and fed up with this condition 10 years Its been now. I'm already suffering from anxiety and depression and this is making it worse....

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  • I need advice

    I have to ask I have stage 3 h s I have so many boils I am even getting them in the private has anyone else gotten them there I don't want to have it lanced I have cut alot out of everyday life I walk don't shave and still getting them

    Posted
  • New to HS.. Tips, relief, advice please

    So I'm not offically diagnosed yet, but have an appointment with my Dr. Ive had two abcess like bumps drained at the hospital from my underarm on two seperate occasions. and thats when the Dr there mentioned HS. (I had also had two in my crotch area but they didnt need drained) Im so stressed out...

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  • HS & Anal Fistula?

    About 8 months ago I was washing myself and felt pain and a slight bump. It felt long, more like I was touching a vein, really close to the anus. Fast foward, it grow larger and started to drain. I tried home remedies, but eventually sought help from a derm who diagnosed me with HS. Aside from the boil,...

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  • Lanced Boil?

    Hi everyone, i was recently diagnosed with HS. Since my early teens, I used to break out on my buttocks, and I thought I just got had ingrown hairs and idk. I just thought okay it's something I can fix. Anyway, I never found a fix and I would get these pimples that never really popped and would...

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  • Does anyone suffer HS and Mutliple Sclerosis

    Hi everyone very happy to have joined a group who will know exactly how one feels living with and managing HS. I have suffered with HS for over 25 years but have now been diagnosed with Multiple Sclerosis also, (RRMS) The challenge that lies ahead of me is my neurologist has very little knowledge of...

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  • HS - Referral to Hospital

    Saw a doctor at my surgery who specialises in dermatology and has put me on Lymecycline and also referred me to the Hospital. She said I had scarring and adhesions. She said the hospital can prescribe stronger drugs and also said minor surgery may be necessary. Does anyone know what drugs they would...

    Posted
  • Accutane not sure I can keep taking it

    Can anyone give me any advice I've been taking Accutane for 5 weeks and I've been having a really bad break out for 3 weeks , and I've had to go back into antibiotics again which I didn't want, I'm feeling like I want to stop, I haven't read great things for this for HS , having...

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