Can HS affect my ears?

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Hi all I am new here and I am very glad to have found you all!

I had suffered persistent recurring cysts for years but dismissed them as unimportant until I awoke one morning with a huge red draining welt and the blood convinced me to go the Drs. That was approx 1 year ago, since then the HS has spread to my other axilla and yesterday to my groin.

The thing is I have been suffering for 10 years with recurring debilitating ear infections (affecting one or both ears) associated with boils in the outer and inner ear. The current one is a doozy and very painful. I have been referred to 5 audiologists in this time and none can find the source of the infection, is it possible this is HS in my ear? Could this have been where it all started off?

I did see one post where a gentleman suffered from abcesses on the outer ear.

To be honest I just wish I knew what the ear pain was I have felt like a hypochondriac for years and struggle to live as full a life as I would like and find the pain difficult to manage.

Sorry for being a whinger.

Love and Support to you all

xx

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4 Replies

  • Posted

    Hi,

    Please don't ever feel like your winging HS is a very painful condition and its looking as if patients like us are having to find out more about the condition for ourselfs as not enough research is going into it. I just wanted to say I have had HS for about 13 years and yes I have noticed my ears get very sore and a build up of wax and I also get small lumps in both I cannot say if it is related however the more people who let other HS sufferers know the more knowledge of the condition we have.

    Take very good care of yourself.

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  • Posted

    Hi thanks very much for your kind reply, Gosh 13 years you must get so frustrated at times. Like everyone else on here I have so many questions but there are not so many answers out there! I just dont want any more antibiotics been on them more or less straight for about a year now.

    I think the non research of HS is a disgrace!

    Take care and keep well Lolo

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  • Posted

    Hi,

    I had HS for about 5 years in my late teens and early 20's. I just wanted to let you know that it did affect behind my ears for a period of time. I found this the worst area as people caught sight of it. It did occassionally affect my groin but was mainly in the underarm area.

    You'll see I say had, I am VERY fortunate that the condition went away with time. I can't believe so little is known about this and doctors still don't know how to treat it and why it's caused. I still have scaring under my arms and at 27 I'm still have acne.

    I just wanted to say good luck and there is hope! x

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  • Posted

    I noticed it has been over a year since you have posted this.... Have you received confirmation that it is HS in your ears?

    I have always had problems with bad ear infections in both ears, I believe in heart that is what is behind it but have not heard any confirmations from others yet, only "suspected" like mine.

    TIA

    - Anita

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