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Hi. back in april 2016, i was diagnosed with HSP. Since then, I have been hospitalised three times, and I dont feel one step closer to be cured from this disease. I have tried prednisolone for a year, which did'nt work, I've tried dapsone, which kinda worked, but decreased my haemoglobin percentage down to a level too dangerous to continue the treatment. After dapsone I started on something called colchicin, which also made me very sick.
At the moment I don't take any medicine at all, but it's planned that I should take something called Methotrexate.
My doubt in the doctors abilities to give me the right treatment has slowly increased more and more, and simultaneously I'm gettting more frustrated and desperate to be done with this, and live a normal life again.
I'm searching for some advise. I will gladly share more of my experinces with HSP, if any of you are interrested in hearing it, and i would be greatful to hear which experinceses and advice you have.
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