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Hi, im new here. Basically to cut a long story short i got ill 20yrs ago and was fobbed off with the ibs diagnosis. I had 2 hospital admissions in severe pain, swollen right abdo, white cell count so high theatre was waiting for me for suspected appendicitis and all they did was give me iv antibiotics and send me on my way. I eventually had my appendix removed by a scheduled appointment but it was fine. Since this time, i have suffered regular bouts of vomiting, chronic diorhhea (can never spell it!) my diet now consists of approximately 5 foods which DONT either make me vomit or spend the day in the loo I still have daily, a section of bowel on the right which, when i lie flat, can be seen. An x-ray in A&E once showed this section to be much narrower than the other side but that was all that was said. I have B12, low folate and im anemic. I suffer from itchy sore red eyes, im lactose inolerant and the fatigue gets so bad i cry. My initial tests were an endoscopy and a diagnosis of reflux and blood tests. All 20yrs ago. I have seen written on my notes "Regional Enteritis" but i was discharged before any other tests were done and told i had IBS. I have had some periods when i have felt fine and i do indeed suffer from IBS, but i can differentiate between the IBS symptoms and whatever else is going on. I asked for a referral back to the hospital in July last year and saw a Consultant in November who was shocked that I had not had a colonoscopy of any other tests initially. He did some bloods, and i had to do a stool sample which i struggled with as i have never ending watery stools. I had an ultrasound scan on the 4th December which was a great day to have it done as i was in agony that day. The scan was clear and the lady doing it said it was clearly my right bowel. I am due a follow up with the Consultant next week this being my 2nd appointment since my referral in July! Should I beg for a colonoscopy?! Nobody seems to care to be honest. I am constantly missing work as i have random attacks of diorhhea and i vomit often. I work with children and they insist i have 48hrs off every time i use the toilet at work for either. Pain wise, i have days where i am free from specific pain, nearly always have crampy type pains but when my diorhhea is bad and my right side clearly swollen, it is extremely painful. I have fainted during bowel movements and get wind pain so bad i cannot sit down. Unfortunately the smell i create is extremely toxic and highly embarrassing! Has anyone got any thoughts on all of this? sorry to go on and on but ANY advice would be appreciated. Should also add that initially, i lost a lot of weight, going from 8st 4 to 6st 4 in a very short time. Ive since struggled to gain wait, usually staying around the 7st 10 marker but when the diorhhea is bad i can lose over half a stone in a couple of days
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