22.5!
Posted , 12 users are following.
so exciting to be at this amount. I know it sounds like a lot to many of you, but I started at 60mg, had to move to 80mg, then back to 60. I am quite excited to be at this "low" dose.
doc suggested jumping to 20, but I decided to take a more cautious approach and do 22.5 first. she's always in a hurry . If this doesn't cause much of a fuss, then in a couple of weeks I might move down. I know my body and it will fuss pretty quickly if it's not happy.
anyway, I'm celebrating reaching this level. been a few days and so far so good (knock on wood). I even had two teeny weeny sips of wine (about a tablespoon) last night, my first in a year. yes, I know how to party :D.
1 like, 16 replies
EileenH LisaCACO
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tina-uk_cwall LisaCACO
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karren61208 tina-uk_cwall
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Can anyone tell me why drinking alcohol has such an immediate bad effect on the PMR sufferer? For me, it goes straight to my legs. I have never been much of drinker but I know what is good and am sad to pass up excellent wines and champagnes.
EileenH karren61208
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Pred is said to mimic aging - and aging does alter the way alcohol affects us. Maybe it is that?
karren61208 EileenH
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sue-dorset LisaCACO
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totally agree with Eileen. My tortoise is now on 4mgs and plodding along nicely thank you! Good luck.
Susanne_M_UK LisaCACO
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I've just reduced to 18mg today. I'm currently doing a 10% drop every 2 weeks and am doing ok. I think my rheumy is finally beginning to see it my way!
Since being diagnosed with GCA end of last year, I had never been able to get below 22.5, having had a couple of flares.
Again, I'm so pleased for you. :-)
tina-uk_cwall Susanne_M_UK
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lodgerUK_NE LisaCACO
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Yup, all the way from 60mg, two flares, 5 years and then Club Zero and still in remission nearly 4 years down the line.
However, I did go slowly and I mean slowly. Reduction Plans, Dead, Slow and Stop and Tortoise and Hare devised by patients for patients.
Visit the pinned section if you want free copies.
LayneTX lodgerUK_NE
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EileenH LayneTX
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If you follow this link
https://patient.info/forums/discuss/browse/polymyalgia-rheumatica-and-gca-1708
and look at the page further down where is says "Discussions in this group" you will see the top 2 threads say "pinned" against them, the rest don't.
margaret22251 LisaCACO
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margaret22251 LisaCACO
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Susanne_M_UK LisaCACO
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pat38625 LisaCACO
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