23 with severe ED; severe heart palpitations in stomach. Vascular issue?
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Hi guys,
I am new here. I am a 23 year old guy, about 6 ft. tall and 185lbs. For a while now I have been experiencing an extremely strong pulsation in my stomach (about half way between my bellybutton and rib cage, but right in the center). Sometimes it is associated with pain or discomfort. When it is beating the strongest and hardest is usually when I absolutely need to lay down and sleep. It continues to beat hard as I sleep whereas one would think it would keep me up. I always feel my heart beat stronger in this location more than my chest. Sometimes I barely feel my heart beating in my chest at all. I went to my primary care who insisted that it is normal and that I am "trim" so it is okay. First of all, I am not trim so that makes no sense and it does not just happen when I lay down: sitting, standing, etc (you can even see it!). I forgot about it for a while but now I want to revisit this. I was diagnosed with a sleep disorder characterized by extreme daytime sleepiness and fatigue, and I wonder if a vascular problem could be something I am dealing with as a chronic problem. I was born 9 weeks prematurely, so maybe this is some sort of defect that went undetected.
Symptoms:
Dull ache in legs/knees (trouble sleeping)
Dull pain in testicles
Dull ache in lower back (could not sleep)
Urinary retention and pain (urologists thinks interstitial cystitis)
Cold hands/feet
Erectile dysfunction (no morning erections at all, not even able to get erection when medically induced for a penile ultrasound. Doc just prescribed viagra and cialis - both of which do not have any effect on me at all.)
Extremely premature ejaculation (chronic)
Fatigue
Increase in fat around waist and breast area despite regular exercise
Decrease in muscle/bone in legs and arms (and butt)
Weight gain in face
Extremely receding hairline (though this most likely is genetic, I knew it was coming one day, but still happening very quickly for my age).
If I were to show you a side by side of me in 2016 to now in 2019, you would be shocked, and the crazy thing is, I am much more active now, though I get fatigued easily. My legs look so skinny, I have no butt, and my love handles are growing like crazy even as I exercise and eat super healthy. My hair loss is terrible, and I am gaining much more weight in my face. My arms are also thinner even though I am working them out more. I have seen 3 Urologists (one of which was a complete dumbass), an endocrinologist who says my levels are fine (though my testosterone is low in the normal range), my primary care, and my gastroenterologist over the years. No luck at this point. I am completely unable to be sexually active at all, I fatigue so easily, my mind ad body are so tired and unfocused.
Please, please please, can someone give me some advice. Should I see a cardiologist? I feel like it is the only department I haven't tried but I am tired of people telling me I am a normal healthy 23 year old because I sure as hell am not. Has anyone had these experiences? especially the heart beat in stomach and ED problems? Thank you so much!
-T
0 likes, 2 replies
Scotgal t.82214
Posted
First of all, you are right, you are not a normal healthy 23 year old. I have three adult sons and
if any of them had had your problems at 23, they would have been seeking answers as well.
The fact that you were born 9 weeks early does not mean you have some sort of defect that has remained undetected, however you mention that your legs (muscles and bones )are not real developed. You could possibly have a coarctation of the aorta; a condition present from birth that is a narrowing in a segment of the aorta that may affect development of the lower limbs, but you said your arms are not increasing in size despite working out. You also mention
that you have cold hands/feet, I've had that my whole life and I learned at 40 (I'm 66 now) that
I have a congenital heart defect (an atrial septal defect) and uncorrected defects such as the one I have can and do cause some degree of heart failure as one ages. I had to stop working
at 40 due to my defect, if I hadn't I wouldn't be here today. I would strongly suggest you see
a cardiologist since you haven't seen one yet. Good luck to you, you are too young not to have
a better quality of life.
nathan72802 Scotgal
Posted
Scotgal, you are indeed lucky to be alive! I was also born with an atrial septal defect. I also had only one functioning kidney and narrowing of the ureter from the good kidney to the bladder. They told my parents not to name me, go see me, or get attached as I would not live. That was for the first 10 days. My birth certificate still says "baby boy" and I'm 63! LOL I found out recently that around the time, don't know whether it was before or after the surgery, that if they didn't fix it I wouldn't make it to puberty. I had the surgery to correct it as well as several other things. I've lived a pretty good life except that I've never been that strong, and fatigue easily. I've always had trouble with a low threshold to getting out of breath and am convinced there's something that has not been picked up on that is more than just being out of shape. I've had 2 stress tests and the first one I just made it far enough. The second one they had to stop and induce the stress medicinally. Quite some time ago when I was a respiratory therapist, I did pulmonary function test on myself which showed that my lung capacities were somewhere between 60 and 70 percent. That takes into account your age, height, and weight. I dismissed the results as operator bias. Some years later I had another one done by someone else for specific reasons, and the results were similar. I am pretty obese with most of the weight around the belly. I know, not good. Now there was a significant difference in my weight for the worst but still the same predicted lung volumes. ???????