23 year old male suffering from HSP/ vasculitis for 2 months
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Hi everbody. I am a 23 year old male suffering from HSP/ vasculitis. I have been suffering with this for over 2 months now and i am becoming worried it may not clear. I first noticed the red blood spots (perpura) on my lower legs which within days spread to my thigs. I have visited my doctors on a couple of occasions and they did blood tests. They took blood tests to test for a throat disease, kidney failiure, blood clotting and to check my white blood cells. They all came back negative. She diagnosed me with HSP and vasculitis. She mentioned i may need steriods to clear it up but i was never given them. She also took a urine sample which had a trace of blood in there, so my kidneys were checked again and everything was fine. A couple of weeks went by and it wasnt bothering me anymore, then the weekend came. I went to a football match which involved alot of walking. That night i was in agony. I couldn't walk as my knees and ankles were hurting really bad. The perpura had scabbed up and my feet were swollen. I decided to visit A&E. They did more blood tests on me to make sure nothing had got worse. The doctor came back and told me everything was okay. This doctor never mentioned the steroids but gave me anti-inflammatories (for the inflamed blood vessils), which never worked in the end. That was the first time my joints started to severley hurt. I was off work from this point on. After 5 days rest my perpura pretty much vanished and i felt new again, so on the saturday i decided to go to the football match again. Bad idea, as that night i was back to square one in agony with my joints and swollen feet. I didnt go back to the hospital but decided to book and appointment with my local GP. Monday morning i was feeling a little better again after a days rest. I went to see the doctor and he read all my results from the hospital. He checked my stomach to feel for swelling and he said everything semt fine. I asked him if there was any medication to take for the perpua or the inflamed blood vessils themselves, but he said it would just clear on its own. He told me it could take a while to clear but will eventually clear by itself. I mentioned the steroids but he told me he didnt want to give me them as they can have negative side effects? So it confused me as 4 different doctors all had different oppinions on what medication i should take and shouldnt take. I have been off work for over a month now and not sure i wll be able to go back anytime soon as i have realised my joint pain comes back whenever i do any form of exercise. Last night i then started to have indesribable pains in stomach. I couldnt sleep and kept bringing up alot of wind. It started to make me feel sick and eventally i was slightly sick. I also had diarrhea. The last time i went to the toilet it was a redish colour which of course worried me. I am really starting to get abit depressed of this now as i can't do anything out of the house, i am literally bed ridden. It is such a shame to see other that are suffering from this as well, but kind of a relief we're not alone in this. Does anyone know how long it can take to clear up or when the symptoms start dying out? Or any ideas on to help with the pain and perpura in the process of it clearing up? Thank you for taking the time to read this and hopefully you find answers too.
1 like, 14 replies
harleycw Nectar1730
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Nectar1730 harleycw
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harleycw Nectar1730
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Magstah Nectar1730
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sorry to hear you're having such a bad time with HSP. I've been diagnosed with it very recently. Having had cancer, I don't want to take chemo drugs or steroids because of the side effects. I've read a bit about people not using dairy foods, or eating chocolate, and about them taking vitamin D and Calcium supplements.
I've quit using milk for a week now, and been taking soya milk/yoghurt instead. I've started on vitamin D and Calcium supplements. I can honestly say I am starting to feel better. Whether this might just be because the HSP is gradually clearing up on its own, or because quitting milk and taking supplements is working, it;s hard to say. I do know I feel better, so it at least hasn't hurt me!
Exercise wise, I am using an exercise bike at home, and doing stretching exercises instead of impact exercise like running or football. Again, this hasn't hurt me at least. Maybe give some of this a try and see if it helps? The one thing I do get is stomach cramps at times. Usually if I have drunk coffee or tea wihout having eaten.
Good luck with finding stuff that works for you.
Nectar1730 Magstah
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linda29209 Nectar1730
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Nectar1730 linda29209
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kelsey46525 Nectar1730
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I have also upped my intake of fruit and veg to between 8-10 a day and ensure I get extra sleep. I know it sucks being 23 and living like your 60. But i have been told if you remove all triggers and rebuild your immune systems you can return to normal.
Nectar1730 kelsey46525
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kelsey46525 Nectar1730
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harleycw Nectar1730
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More sleep - Good
Less or zero alcohol - Good
Arnica? - It's no better than a placebo, but then again, placebos are known to have some positive effect as long as you believe
Keep doing your own research.
kelsey46525 Nectar1730
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With something like HSP obviously it's not going to be a long lasting cure but it does help with every day life. Up to who ever if they try it but now working in events and being on feet it's has made all the difference
sky008 Nectar1730
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I've been suffering with this issue since June and it keeps getting worse. I've been to 11 dermatologists now, many of which prescribed steroid creams/gels, which just served to make the issue worse. The only thing that gives me relief is being off work for a week and not walking as much, it starts to clear up, the moment I'm back it work, I'm back at square one and it's like I've made no progress at all. It returns on the very same day.It is concentrated on my feet and ankles and by the end of the day my feet/ankles feel heavy/swollen. I can't pin point any triggers, other than being on my feet, which makes it worse. I do not drink and have never in my life.
Can you please give me any advice on what you did to heel the issue, if you managed to heel it. (I hope you did, cause it's really frustrating).
Any help or advice you could give me would be highly appreciated.
sky008 Nectar1730
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