23 Years Old with Mild Emphysema
Posted , 5 users are following.
Hi All,
I am 23, a non-smoker and consider myself fit and healthy. I had a nasty cough for 8-10 weeks and have been susceptible to colds, feeling run down for stretches of time etc for about 6 months.
Hoping to get some reassurance or perhaps just a bit more information as I have recently had results from an xray which stated mild emphysema, prominent hilar regions compatible with COPD. My GP who gave me the results said he thought there must be a mistake and not to worry about it and muttered something about too much air in my lungs when having the xray. I called the radiologist who said he was an expert, you're supposed to have too much air in your lungs/they tell you to breathe in for the xray and that he was looking at my xray and the report he produced was correct. I feel like I've been passed from pillar to post with little to no reassurance or information - I wouldn't discount the possibility that my results have been mixed up with someone else's. Do you think this could be an error/who would you ask to be referred to for more testing? I had a spirometry test when I initially went to the GP who just said it was fine - SO CONFUSED. Has anyone else had a similar experience, confusion, been diagnosed and felt it can't be right? Maybe I am just in denial.
Thank you if you've made it to the end of this tangent!
Sorry for my rambling.
0 likes, 6 replies
Vee2 ryan27021994
Posted
Hi Ryan as you are so young you should ask for a blood test to eliminate alpha1 antitrypsin deficiency, also request a vitamin D test to be sure you are not deficient in vitamin D. If you are vitamin D deficient you will need to supplement with vitamin D3.
If you are doing good on the spirometry test it may be that you have very mild COPD however, you still need at the very least the ventolin inhaler, this will widen the bronchial airways and may result in your not coughing (I generally cough more when the airways have narrowed for whatever reason). Also when you get a cold you should go straight away to your doctor or the respiratory nurse at your doctors surgery and ask them to check your lungs to be sure you do not have a lung infection, which if it is the case you will need Anti biotics at least.
(If you ever cough up discoloured sputum this indicates you have an infection, ask the doc receptionist if you can have a sputum pot so that can be tested for infection and the correct antibiotic prescribed).
If your symptoms continue, ask for a referral to a specialist, but to get further advice do contact the British Lung Foundation helpline, contact details here:
https://www.blf.org.uk/
BLF will be able to advise you on Alpha1 also and there are links from the BLF website to the Alpha1 organisation if you want to contact their helpline as well.
Here is information on Alpha1:
https://patient.info/health/alpha-1-antitrypsin-deficiency-leaflet
Good Luck Ryan, you need some advice from the BLF about what to discuss with your GP.
Best wishes V
hypercat Vee2
Posted
Katinka46 ryan27021994
Posted
I think it is importnat that you have the test for Alpha-1-Anti-tripsin Deficiency. It is a simple blood test. I am amazed that your GP did not automatically request it. A non-smoker of 23 is very unlikely to have 'ordinary' emphysema. If A-1-A-T-D is eliminated then there are other possobilities. The conditon that I have, Obliterative Bronchioltis can look like Emphysema. In fact very early on in my case a consultant diagnosed emphysema. Push for more investigations. Can you do to another GP?
I obviously do not want to worry you, but you are worried already and not knowing what is wrong is a nightmare.
All the best and let us know how things go.
julie07318 ryan27021994
Posted
Im thinking if it was me in your position, go see the GP again and basically say, I am not happy with the results ive had, im not happy with the explanations ive been given. I would like to be referred to someone else for a 2nd opinion. And to discuss this matter fully with them. sorry i cant be more helpful. but as i say they may be someone very knowledgeable on here. love and best wishes julie xxxxxxxxx
Melinda6938 ryan27021994
Posted
Vee2 ryan27021994
Posted
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