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I wanted to write my own story on here in hope that I can communicate with people that are going through the same thing, or have been through the same thing, and would take the time on reassuring the ones who are still on this nightmare of a journey that things can get better.
I am a 23yr old Female, my headache started March 2015, and ever since I havent had a moment without it.
My headache feels like a very tight pressure all around my head - like my head is being squeezed hard. I have sore areas on my scalp. My face is numb + tingley(feels like little bugs are running across my face) and also my face can feel like its drooping when its physically not. I have all the symptoms of migraine - light/sound sensitivity, and also smells make me feel sick. My eyes constantly ache. I get a throbbing pressure in my gums and behind my nose and also feel pressure in my ears (like when you are on plane). I developed tinnitus a month after my headache and it hasnt stopped ever since. My neck, shoulders and top of my back constanly ache like hell to - which doesnt help when my job consists of sitting at a computer 8 hours a day!
I have seen 3 neurologists - one diagnosing me with chronic tension headache, the most recent 2 I have seen have told me chronic daily Migraine.
I have tried Amytriptaline,Nortriptyline,Propranalol, and Candersartan (Apologies for the spellings)- these have had no effect at all. I have had the steroid injections in my head which gave me no relief. I have bought a mouth guard from the dentist as she said it sounds like I am grinding my teeth at night- after a few months of wearing this I didnt notice any difference.
I saw a Chiropractor who told me my neck is pushing forwards and blamed my headache on this, but after 4 months of attending 3 times a week I felt no different. I have recently payed to find out if i have any food intolerences - which came back that I had, but after cutting out the foods I felt no different. I really am sick of false hope and really am at my witts end.
I am waiting on an appointment for my first botox injections.
Im finding it so hard to lead a normal life with this and often have suicidal thoughts. The only thing that stops me if the thought of leaving my loved ones behind.
Its a nightmare trying to work full time with this, but also know if I claimed any disability allowences it would certainly make things easier by not having to be stressed at work, but would mean no money to pay bills - this would lead to more stress.
I feel so trapped and feel like im never going to feel ok again. I now suffer from anxiety + depression. It really effects my relationship with my boyfriend as I am always down and miserable, and we can never do things togther because of my head. I met him 10 months ago when I had the headache, so he has never really met the real me!
I feel no one understands apart from the people I have been speaking to on this site, but everyones story is different.
I really need some words of wisdom, and to know even though I feel so lonely, I am not alone.
Can anyone out there please offer any advise or share anything that has helped you? I cannot bear the thought of living like this for the rest of my life, and refuse to!
Thanks for taking the time to read my post
I look forward to hearing from other people that are also suffering from this awful disease!
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