Posted , 4 users are following.
First off sorry for grammar and typing, my good hand is useless...
My name is matt and I recently got diagnosed. It's mainly in my foot and hand but the pain spreads and shoots a lot further.
I was at the hospital and 6 times and thank god the 4th doc mentioned he thought it was this.. Then we went to a few higher end hospitals and saw the head orthopaedic doctor without a referall because my extremeties were so swollen and she confirmed and diagnosed me.
I'm sure you're aware of how much pain it is. I've been told it's more painful than cancer.
I take 4mg hydromorphone, naproxen and 300mg of ganapentin 3x a day. Which to honest makes me very dopey but for my amount of pain it isn't working
I was curiois how other people dealt with the pain. I'm going to be going to a very high end pain mngmt clinic, and do physio 3 times a week.. Also counselling to talk about living in chorionic pain
0 likes, 8 replies