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Complex Regional Pain Syndrome

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  • Possible new symptoms

    Hi, CRPS in right leg from a trip and fall on the job over 3 years ago. In addition to the burning pins and needles and feeling like a hammer is pounding on my knee I'm now experiencing the feeling that a bug is crawling up my leg. Of course nothing is there. Has anyone else experienced this?

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  • Need to have a leaky valve on my leg repaired, but have RSD.

    I have had RSD on my left foot for almost 10 years and is in remission.  I need to  have a leaky leg valve repaired but do not know if this would trigger a relapse of the RSD.   Has anyone has had any surgery that triggered a relapse? My Doctor is worried about this and so am I.  …

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  • Remission and CRPS

    Is there anyone in here who completely recovered from ALL symptoms of CRPS and resumed a normal life with regular activity? 🙏🏻🙏🏻

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  • Hair Loss with CRPS

    Hello I was wondering if anyone has experienced hair loss from CRPS? I was diagnosed over a year ago after being injured at work. It was initially my back/rib/torso area but has spreaded to my shoulder/arm/wrist/hand/lower leg and foot. About 4 months ago I noticed my hair begin to become very …

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  • The pain never stops

    every second of everyday. The pain in feet just won't stop. My brain only know one typic . It's pain! I have tried everything known to mankind and nothing works. Day after day, year after year,pain,pain,PAIN! Dr. Treat me like I'm making it up and I get no solution. Why won't it …

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  • Anyone with CRPS of the bladder?

    Mine started in my right ankle after surgery in late Feb of this year and slowly made it's way up the leg. I have some swelling now on the other leg with some of that funny discoloration but no pain so I wasn't thinking that my CRPS was really spreading. However, my old bladder issues are …

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  • So weird

    Well it's been just over a week since I saw the doctor and told him about my chest issues. It's now done it three times all right along with a flair up. On top of all that today my left arm out of no where went ice cold and turned purplish😟 and when I moved any part it was …

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  • Not yet diagnosed officially

    Even though I haven’t been officially diagnosed by Neuro specialist, I have seen several doctors who say CPRS type 1 is what I have. I am 2.5 months post ankle fracture now. 4 weeks after fracture I was experiencing severe pain and burning from ankle to calf. My foot was dark purple. I went to …

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  • Hyperbaric Oxygen Chamber as CRPS treatment

    I’ve been researching Hyper Baric oxygen chamber as a treatment . It’s VERY expensive here to do it and requires many times to do it. Has anyone done this? Looked into it? Had success with it? I would love to hear people’s thoughts.

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  • Going for a Pain Pump Trial next week!

    I had the series of three lumbar sympathetic blocks which we all knew weren't going to work but you have to go through the motions or insurance isn't going to pay for the high dollar stuff LOL.  Dr. E gave me two options but he was pushing for a dorsal root ganglion spinal cord …

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  • CRPD

    I have CRPS, since 2008, after a work related injury. It seems like none of the doctors I have seen either have no clue or just don't want to listen to what I'm telling them. I have CRPS in my right arm and have learned to coop with the serve Pain, but the constant dropping things, not …

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  • I suffer from CRPS TYPE1. Any one can help

    Hi, I do live in oxford. Ive being diagnosed for 1 year and half with crps type1. Ive been doing hydrotherepy fisio as well but it looks is fetting worse than before. I do have on my foot but when the worse days starts i do not want to live the worse pain that never stops. Im taking Pregabilen 450 …

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  • Generalised - and worsening - pain in arms and legs

    For the past two or three months now I have had increasing pain in my arms and legs and throughout my body in general. The pains started in my legs following a month off work with a flu virus, and have continued - and gradually worsened - during this time.  The pain has become constant …

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  • Son diagnosed with crps, need to get him help.

    Hi all, I am not a sufferer of crps, but my 15 year old son is, I have joined this group to try and gain some advice. We are in the UK, so the advice I am looking for will primarily (at this point) come from sufferers with this awful condition come from this country. About 6 years ago my son was …

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  • Diagnosis time frame??

    Hi everyone, I’m new to this forum but not to the site. I have posted about frozen shoulder and neurological pain, which brings me here.  In December I had an arthroscopic capsule release to help frozen shoulder. Not long after that I started to get quite severe nerve pain in the wrist. It …

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  • Hopelessness

    hi, I just don't know. Everyday seems the same. Nothing means anything life sucks. I just don't know what to do.i can hardly leave the house and when I do it's seems pointless. My health has taken over. When I get medicated and relieve some of the pain I am zombie when I'm not …

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  • Newly diagnosed with CRPS after ankle surgery help !

    Hi, does anyone have this and could share how to overcome this. Complex  Neurological Pain Syndrome i was just diagnosed with early CRPS in my ankle after severe trauma and ankle surgery. a support group for this would be so helpful !  thank you so much!!? 

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  • Weak legs

    Morning guys.  I am wondering can anyone tell me why CRPS cause weakness in limbs and how I can help mine ? It started in left ankle nearly two year ago. Got mobile within 5 months with physio.  But a year into it the time of a disease spread to all limbs back neck head face.  Last …

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  • Looking for other in the CRPS community to talk with

    Hello All, I have had CRPS for 15 years. And, although this is one of the most awful conditions, im still fihhting to love life to its fullest everyday. My current support system is amazing and I work to bless my community with love and kindness everyday. However, my condition fluctuates and I …

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  • Is CRPS curable?

    I have had CRPS in my wrist since surgery 15 months ago. It is somewhat better but not great. Does anyone get totally cured from CRPS.

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  • Keto diet and chronic pain

     I started my journey into the keto diet as a way to try to cut down on the amount of gabapentin I was taking, I figured if it worked for the epileptics, it might work that way for me LOL.  But, I found a scholarly place on the internet chock full of all sort of tidbits about the keto …

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  • Zimbalta. Side effects

    Does anyone take Zimbalta? I just started taking 20 mg. Once a day. This is my first day. It made me feel sleepy and I felt a little nausea. I took it in the morning, U think I will take it at night instead. I am just wondering if the nausea issue will get better in time as my body gets used to it. …

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  • Airplane travels with CRPS

    Hi there. I'm doing a 6 hour flight in a few weeks. Wondering if anyone has experience sitting in a confined area for a long time. One of my triggers is sitting or bending my knees for more than an hour. Any advice on medication that may help me sleep or relax me during the flight?

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  • Memorial weekend

    To all veterans and everyone. Have a great weekend ,pain or no pain respect our veterans everyday year around. Have a safe one.

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  • Meatloaf

    I made a meatloaf tonight and it was delicious. First time in several years. My wife overslept and I started it at 6:30pm. A small victory is my derive circumstances. Yes, I really suffered while making it but in the end she and I were very happy with the outcome. Time to rest and fall asleep …

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  • Share any good news nice thoughts ..

    I know we are all in severe pain and suffering but today I would like to share good news/thoughts. Maybe nice things people did or said for you or something you did that was thoughtful kind ,,, I had severe arms spasm yesterday. I have full body /head face crps.  The day was endless.  But …

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  • Has anyone done Graded motor imagery/mirror therapy?

    I ordered the handbook and a mirror box which looks like a do-it-yourself sort of thing after my PT seemed to be kind of jumbled about actually doing it.  She has the theory down, just not the practicalities of the how to do it.  LOL we may both be using the handbook and the mirror box. &# …

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  • TERRIFIED TO MOVE. I'M IN A CONSTANT FLARE UP NOW

    Yes, it's true I'm in a constant flare up now the better of 2 weeks now. Last night I decided to sit up on my couch for a few minutes to caress my 17yr old ailing cat with lung cancer with my right hand as he laid on my lap. Sitting really is something that I cannot do but for a few …

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  • Screwed

    When to MUSC pain clinic biggest hospital in Charleston SC and the doc said that there is nothing that he could do. He even said that if he knew that it was me coming that he would have informed me ahead of time not to come. I wasn't charged. Even as my head was shaved with lidocaine patches …

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  • WHO MODERATES?

    Who moderates or reads what we all are posting? THIS MESSAGE IS FOR YOU AND YOUR MODERATORS. If there is something you can do or someone you can get in touch with to help, please act. We need help. I need help. Guide us in a solid direction to a facility that we be able to help treat our …

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  • WHO MODERATES?

    Who moderates or reads what we all are posting? THIS MESSAGE IS FOR YOU AND YOUR MODERATORS. If there is something you can do or someone you can get in touch with to help, please act. We need help. I need help. Guide us in a solid direction to a facility that we be able to help treat our …

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  • Reply to my 2 followers

    Just woke up after I realized I only got 3 hrs sleep not 4. Excruciating occipital headache. It's time to tell my story. Will do it soon. I'm so exhausted. Yes, I have lidocaine cream 4% an 5%. I have 5% lidocaine patches as well. Everyday I scrape the patches with my fingernail with 4% …

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  • The weather

    Holy guacamole!  I was diagnosed with CRPS a few months ago, due to an ankle fracture.  I had actually made some good improvements and was hoping to get back to work in the very near future.  Enter the weather.  Humidity struck a couple of days ago.  So did rain.  And, …

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  • Need some advice

    I am an 18year old female For 2 years i have suffered with widespread chronic pain in muscle and joints, for 4 years i have suffered with seizures, anxiety and depression. I have also suffer with sleep problems, muscle spasms, headaches, migraines, internal tremors, vision problems, …

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