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Complex Regional Pain Syndrome

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  • What should I do dont know about surgery

    Hi all I have had this nerve condition for 18 years and its affected my back, legs, feet, and ankles. I have been thru so many surgeries and I have had 3 or 4 neurostimulator implants put in. The last implant I had put in was from nevro and it's the one to where u can drive with it on there is...

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  • If only

    Can't sleep, can't sit. Suffering in miserable excruciating pain. I am burning up alive. Migraine type headache as well. Can't have covers on me above my waist. Shivering as well. I'm at the end of my rope. Lidocaine patches taped onto my face. Covered in them. No relief. This is why...

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  • I wish I knew where to start

    My story is unbelievable. My suffering is 24hrs a day. More than just RSD. I CANNOT TAKE THIS ANYMORE. I have no life at all. I'll be a 51yr old male in June. My family suffers as well seeing all of this happening to me. This is my 1st time ever joining a group of sufferers from RSD. Mine is very...

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  • Massage

    I tried light massage yesterday evening. Painful. 2:45am up again but did get 5hrs sleep on the couch again. Just hanging on. The burn is bad. Made sure my neck and ears weren'touched during massage. Expensive. Trying anything. At this time it makes 2 yrs since my life changing fall that started...

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  • Barely hanging on

    I want to give up so bad but I can't. I'm only living for my family these days and not for myself. This is so cruel. Ther nothing on this earth as painful as what I'm going through. I'm in my garage just to give my wife some space from me because I look so terribly ba. I just want to...

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  • Reply to my 2 followers

    Just woke up after I realized I only got 3 hrs sleep not 4. Excruciating occipital headache. It's time to tell my story. Will do it soon. I'm so exhausted. Yes, I have lidocaine cream 4% an 5%. I have 5% lidocaine patches as well. Everyday I scrape the patches with my fingernail with 4% lidocaine...

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  • CRPS family support

    I'm not sure my spouse will ever habe the slightest clue of the amount of pain I'm in. Even after it is explained by the doctor that diagnosed me I still don't think he has a clue. Can anybody relate? I also have a problem with my sciatica on my left side which is pretty much where all my...

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  • Doctor

    If there are any neurologist or pain docs with some suggestions I sure would appreciate it.

    Posted
  • Crps full body and head /face /mouth

    Hello all. I have crps 18 months. It started in my left ankle after a sprain.  Within a few months I was diabogosies and worked hard to get off crutches.  To this day I still don’t use them.  12 months into it things starting going wrong. It spread to all limbs neck back hips....  ...

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  • Experiencing deep pain in my shoulder joint.

    Hi I want to know if anyone that has CRPS in the wrist has had pain deep in the shoulder joint. The pain is so bad I cannot raise my arm up very far or it really is very painful. Also I am having muscel spasms in my forarm. If you do what can you recommend I do for it? I am in occupational therapy...

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  • Does pain come and go?

    I fractured my fibula back in December, and developed CRPS.  What an absolute nightmare.  There has been some sort of pain somewhere in my lower right leg anywhere from the knee down for over 2 months as well as a constant burning pain at the ankle.  Lots of electric shocks, shooting pain,...

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  • I'm terrified of future surgeries spreading CRPS

    I am new to this message board and would like some feedback regarding surgeries and the spread CRPS. In May of 2014 I had surgery to correct a hammer toe, and two claw toes, along with removing a neuroma nerve on my right foot. Everything went great and I was out walking every morning for the first...

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  • Is it really crps?

    I sprained my ankle in September and in December it was determined that I tore two ligament requiring surgery to repair. I am 7 weeks post surgery. First 3 weeks were non weight bearing followed by 3 weeks in walking boot. When I was in the splint I noticed sensitivity to my toes and leg (only areas...

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  • CRPS without pain?

     I had wrist surgery six months ago and almost immediately develop CRPS symptoms. I had abnormal swelling, abnormal sweating in the affected wrist,  abnormal hand color and stiffness.  My doctor diagnosed my condition as CR PS. I have lost the swelling but the other symptoms prevail. I...

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  • What have you tried for CRPS?

    Hey everyone,   I have CRPS for 2 years and it has recently escalated from my left foot/ankle/leg to the entire right side of my body hip/back/shoulder/arm/wrist/hand.  I have been seeing a Pain Management Doctor since I was diagnosed and have recently been told that we are hitting the end...

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  • Looking into Calmare therapy

    Hi I am wondering if anyone has tried Calmare therapy? I have only had CRPS for about 5 months but the pain is getting worse. I broke my distal radial bone and have a plate and 10 screws in there. Shortly after surgery began to have CRPS symptoms. The pain is no longer in my wrist but is in my shoulder...

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  • Do my symptoms sound like CRPS after ACL reconstruction?

    Hi Everyone, 3 weeks ago I had an ACL reconstruction. The surgery went well and my knee is looking and feeling great! I had a femoral nerve block which they believe may not have worked as I was in a large amount of pain after surgery and I spent a few hours longer than I was supposed to in recovery....

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  • Hi, I am new here.

    I had rotator cuff surgery Dec.of 2016. My arm was in a sling for 6 weeks. The first day of physical therapy. My therapist said I had crps. My hand was very swollen. My ortho dr. Says it was not crps. The therapist says he's in denial. I have had NO pain. Just swelling in my hand. Plus stiff joints....

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  • CBD cure CRPS?

    I HAVE TAKEN GABAPENTIN AND DULOXETINE FOR CRPS WITHOUT MUCH HELP. I WAS THINKING ABOUT TAKING CBD CAPSULES TO SEE IF IT WOULD HELP. IT IS LEGAL IN MAINE. I HAVE HEARD LIMITED INPUT ABOUT CBD FOR CRPS. IF ANYONE COULD ENLIGHTEN ME TO THEIR EXPERIENCES, WITH DOSE INFO, I WOULD BE APPRECIATIVE.

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  • Duloxetine for CRPS

    My doctor prescribed Duloxetine for my CRPS/nerve problem in my wrist. Has anyone been cured using that med and if so how long before improvement started. I don't like taking the med but if might help I will continue.

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  • Pain meds

    Has anyone heard of the website PainMeds Only and if so what do you think. I'm at my wits end trying to deal with this pain and have the doctors look at you like your a junky

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  • CRPS from work injury

    Looking for anyone who's CRPS is from a work injury. Anyone dealing with a worker's compensation company who is not approving recommended nerve block procedure?

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  • CRPS at a lost for words

    I'm new here and but not new to the pain i feel. I am now finding out that all this pain is not in my head. However my ortho doctor has told me at this point she is not sure what to do. I have be prescribed amitriptylne which did nothing. I didnt dare ask for any pain meds even though the pain is...

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  • Help!

    Since 2016, I have had 4 operations on my foot/leg. A debridement, a tension release, a fusion and a neuroma removal. I originally broke a bone in my foot in 2015. I them broke 2 bones in it this year (no reason why I broke them) Since then, the pain has moved to my knee, thigh and hip. No doctor seems...

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  • All seem so scary

    When they start to talk about putting anything near my spine it scares me. Before i had my 3 ruptured disc repaired i got that epidural steroid injection and it put every muscle in my body into a frozen state. It hurt so bad i cried for hours and i couldn't move. Every nerve in my body was screaming....

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  • Neuromodulation

    Hi, I have had numerous surgery on my foot and leg with has resulted in me having CRPS. I have seen so many different consultants. My pain consultant wants me to have neuromodulation or a spinal cord stimulator. I’m obviously very scared about this and I didn’t want them messing about with my back. I...

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  • recent crps diagnosis

    Hello everyone.New to forum.After a knee surgery as a result from a work injury i was recently diagnosed with crps nos.every test known to science was performed to come up with this diagnosis.My question is concerning workers comp they state that this is not crps .Is crps the same as crps  -nos

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