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Complex Regional Pain Syndrome

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  • Do my symptoms sound like CRPS after ACL reconstruction?

    Hi Everyone, 3 weeks ago I had an ACL reconstruction. The surgery went well and my knee is looking and feeling great! I had a femoral nerve block which they believe may not have worked as I was in a large amount of pain after surgery and I spent a few hours longer than I was supposed to in recovery....

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  • Hi, I am new here.

    I had rotator cuff surgery Dec.of 2016. My arm was in a sling for 6 weeks. The first day of physical therapy. My therapist said I had crps. My hand was very swollen. My ortho dr. Says it was not crps. The therapist says he's in denial. I have had NO pain. Just swelling in my hand. Plus stiff joints....

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  • CRPS - transfer from elbow injury to wrist and hand

    Hi everyone ​I am hoping someone can answer this for me. I experienced a severe blow to my elbow in a car accident and have now developed CRPS in my forearm, hand and wrist. Does anyone know if CRPS can transfer from the original site of injury (i.e. my elbow) down into my hand and wrist? Thank you!

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  • Disappointed with my 2nd spinal cord stimulator

    I suffer from rsd in my left leg and foot from a auto rollover almost 3 years ago, I was diagnosed when within days of the accident I started getting the worst pain and burning, I thought I was going to lose my mind. After 6 months I decided on getting a spinal cord stimulator but after 3 months of implant...

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  • CRPS treatments

    Hi, I have severe CRPS in my right foot/ankle/leg. So far it has been resistant to any of the treatments that have been tried. Today I went to the Walton centre in Liverpool for a bier block however, they were unable to carry out the procedure as when the specialist came to do it he said I have no veins...

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  • Newly diagnosed with CRPS after ankle surgery help !

    Hi, does anyone have this and could share how to overcome this. Complex  Neurological Pain Syndrome i was just diagnosed with early CRPS in my ankle after severe trauma and ankle surgery. a support group for this would be so helpful !  thank you so much!!? 

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  • Complex spine

    As anyone out there had lumber laminectomy/ fusion wich has failed.redone through the side to achieve insertion of lumber cages and new bigger pedicle screws.my neurosurgeon had only carried out this procedure on a dead body.he had to pull out down at level 5 as I could have lost the use of my left...

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  • Tightening in joints and legs

    I have extremely painful tightening of joints in legs and arms. It is very painful to loosen the joints. Once loosened it takes very little time before they tighten again. My legs ache also from this. My hand tightens also and I can only describe it like fingers made of metal which sounds stupid. I...

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  • Sick to sicker

    Hi! In March 2017 I was taken by ambulance to the hospital. I had no signs or symptoms. I was diagnosed with pneumonia. Within 24 hours I was put into a drug induced coma for 16 days. The doctors said they had to put me in the coma because I was pulling the tubes they had down my throat out. Anyway...

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  • What have you tried for CRPS?

    Hey everyone,   I have CRPS for 2 years and it has recently escalated from my left foot/ankle/leg to the entire right side of my body hip/back/shoulder/arm/wrist/hand.  I have been seeing a Pain Management Doctor since I was diagnosed and have recently been told that we are hitting the end...

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  • SCS advice...

    I was diagnosed with CRPS in 1996, way back when it was still called RSD. I only had it in my left arm then, and in 1999, I had a spinal cord stimulator implanted, which changed my life. I went back to school, I could work, and things were significantly improved. In 2007, after I lost the baby weight...

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  • Does CRPS reoccur after every injury?

    Hi all. I've been diagnosed with CPRS following a bad fall. Ive also developed a lesion and I've been battling an infection in my leg. I'm currently back in hospital, have been in and out four times in last 18 days. Are these infections/lesions linked to the CRPS? I have also had similar...

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  • Antidepressants for crps

    I was told I had Crps by my orthopedic doc after having a fractured shoulder, my hands are affected, have had physio and tried lyrica did not get on with it, I want to suggest to my doctor whether antidepressants would help but would like to know  if anyone has gone that route?

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  • Nail growth with crps

    The crps in my left foot means it is very difficult to cut my toenails due to the pain but they also grow extremely fast due to the crps. I have spoke to doctors about this and they haven't really gave me an answer, however I know fear that I may be getting an ingrown toe nail on this foot. Has...

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  • CRPS type 2 / atypical symptoms

    My arm was injured last year due to a cycling accident. I have been left with damage to ulnar nerve, and persistent pain. I have self diagnosed CRPS but healthcare workers seem reluctant to give me this label, saying I don't have enough symptoms. I previously had abnormal hair and nail growth; this...

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  • Crps after bi lateral hernia surgery

    I wanted to know if anyone has been diagnosed with this horrible condition after surgery for hernia repair, I had surgery in 2005 and a few weeks later I started having burning pain in pelvic, now recently, November 2016,i was in car accident and broke my hand it took 8 months for Dr's to listen...

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  • High Tibial Osteotomy and CRPS

    Sorry in advance if this is long... I was injured at work on 7/2016 which involved the tearing of my left medial meniscus. 2wks after my injury I had my 1st Arthoscopic surgey and proceeded to do PT for the next 6mths. During this time I explained to my Dr. that I was still having pain and visible swelling....

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  • CRPS without pain?

     I had wrist surgery six months ago and almost immediately develop CRPS symptoms. I had abnormal swelling, abnormal sweating in the affected wrist,  abnormal hand color and stiffness.  My doctor diagnosed my condition as CR PS. I have lost the swelling but the other symptoms prevail. I...

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  • CRPS FROM LUMBAR SURGERY???

    My orthopedic surgeon diagnosed me with CRPS 13 months after a lumbar fusion. That was 5 years ago. Now my pain management dr, that has treated me for these 5 years , says I do not have CRPS because you can't get it from a back surgery. WHAT?? I was dumbfounded! Has anyone else contracted CRPS from...

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  • Hair Loss with CRPS

    Hello I was wondering if anyone has experienced hair loss from CRPS? I was diagnosed over a year ago after being injured at work. It was initially my back/rib/torso area but has spreaded to my shoulder/arm/wrist/hand/lower leg and foot. About 4 months ago I noticed my hair begin to become very rough...

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  • CRPS (RSD)

    I have been suffering from CRPS in both feet for about 2 1/2 years. I have took many different medicines to try & relieve the pain. Currently im being prescribed; 2400mg Gabapentin, 240mg Dihydracodine, 400mg Tramadol (sr), Paracetamol, 20mg Oxynorm (Oxycodone). All are the maximum dose...

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  • I'm lost and confused

    I was diagnosed with CRPS a couple of days ago after battling with it for 2 years but the doctor didn't explain anything to me about what was going on with the disease and after reading online all these horror stories I'm scared to death I don't know what to expect all I know is he says I...

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  • A single infusion of Ketamine???

    First, my specific question, then a bit of background information.  I’m being treated by a well-regarded CRPS specialist, who has scheduled me for one Ketamine IV infusion, which should take about four hours.  It’s this Friday, March 17th.  Does anyone have any ideas about why only one...

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  • Fear crps spreading to all 4 limbs but worry about telling people

    Hello, I am hoping to find someone with crps who can help? Had bad fall, elbow dislocated and fractured badly. Had radial head replaced, soon after surgery surgeon noticed classic symptoms I was diagnosed with crps in left arm, elbow and hand. My arm is locked at the elbow as if in sling. I think...

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  • Theme park and Crps

    I now have crps in my hand as well as my foot, tommorow I am going to Alton towers theme park, and I'm just worried about the pain from vibrations etc on the rides, espesically in my hand. Has anyone had any experience with this?

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  • Extree fatigue with CRPS

    My 16 yr old son was diagnosed Aug 2014 after 14 months of uncertainty.  The last 2 'flare ups' have resulted in him sleeping excessively (17 hours a day) and feeling very lethargic.  Does anyone else feel like this, and do you have any recommendations of how to improve this?

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  • CRPS

    I received a nerve injury during a rotator cuff surgery almost 6 months ago , my arm has not been the same since. I have a crushing twisted pain on inner side of arm where elbow bends as well as burning pain in forearm swelling in hand and wrist my hand and wrist are freezing cold all the time, I have...

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  • Stellate Ganglion block

    Hi everybody, Please can somebody help my daughter has crps in her right hand after a car accident 4years ago,on Friday she had the stellate ganglion block at the time she felt her arm become warm again but yesterday she was in a lot of pain is this normal to feel rough after this procedure?

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  • I need help!

    Hello everybody. I'm new here...basically just trying to see if anybody with crps can tell me if my symptoms relate to crps. I have watched some YouTube videos trying to see if I can find something similar to what I'm going through but everything on there seems to be EXTREME cases...or I'm...

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  • Crps

    I have crps in my left foot and I struggle to cut my nails on this foot due to the pain, does anybody else have this problem and any way to deal with it?

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  • Mild CRPS?

    A little background. Two years ago I developed an unexplained stress fracture (confirmed with MRI, I'm not a runner, there was no specific injury) and was in a walking boot for 5 months and in a cast for one month (onset was May 2015, stopped treatment November 2015 with three months of PT following)....

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  • Possible CRPS ?

    Hello, I'm posting here hoping that maybe someone can tell me if my condition is CRPS. The clinic I go to is not helping, the doctor will not refer me to a neurologist. I have type 2 diebeties and nueropathy. But I had this happen last year in march. Started on my right thigh the size of a silver...

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