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Complex Regional Pain Syndrome

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  • Crps full body and head /face /mouth

    Hello all. I have crps 18 months. It started in my left ankle after a sprain.  Within a few months I was diabogosies and worked hard to get off crutches.  To this day I still don’t use them.  12 months into it things starting going wrong. It spread to all limbs neck back hips....  ...

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  • CRPS without pain?

     I had wrist surgery six months ago and almost immediately develop CRPS symptoms. I had abnormal swelling, abnormal sweating in the affected wrist,  abnormal hand color and stiffness.  My doctor diagnosed my condition as CR PS. I have lost the swelling but the other symptoms prevail. I...

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  • Duloxetine for CRPS

    My doctor prescribed Duloxetine for my CRPS/nerve problem in my wrist. Has anyone been cured using that med and if so how long before improvement started. I don't like taking the med but if might help I will continue.

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  • Pain meds

    Has anyone heard of the website PainMeds Only and if so what do you think. I'm at my wits end trying to deal with this pain and have the doctors look at you like your a junky

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  • CRPS from work injury

    Looking for anyone who's CRPS is from a work injury. Anyone dealing with a worker's compensation company who is not approving recommended nerve block procedure?

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  • CRPS family support

    I'm not sure my spouse will ever habe the slightest clue of the amount of pain I'm in. Even after it is explained by the doctor that diagnosed me I still don't think he has a clue. Can anybody relate? I also have a problem with my sciatica on my left side which is pretty much where all my...

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  • CRPS at a lost for words

    I'm new here and but not new to the pain i feel. I am now finding out that all this pain is not in my head. However my ortho doctor has told me at this point she is not sure what to do. I have be prescribed amitriptylne which did nothing. I didnt dare ask for any pain meds even though the pain is...

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  • Help!

    Since 2016, I have had 4 operations on my foot/leg. A debridement, a tension release, a fusion and a neuroma removal. I originally broke a bone in my foot in 2015. I them broke 2 bones in it this year (no reason why I broke them) Since then, the pain has moved to my knee, thigh and hip. No doctor seems...

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  • All seem so scary

    When they start to talk about putting anything near my spine it scares me. Before i had my 3 ruptured disc repaired i got that epidural steroid injection and it put every muscle in my body into a frozen state. It hurt so bad i cried for hours and i couldn't move. Every nerve in my body was screaming....

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  • Neuromodulation

    Hi, I have had numerous surgery on my foot and leg with has resulted in me having CRPS. I have seen so many different consultants. My pain consultant wants me to have neuromodulation or a spinal cord stimulator. I’m obviously very scared about this and I didn’t want them messing about with my back. I...

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  • What have you tried for CRPS?

    Hey everyone,   I have CRPS for 2 years and it has recently escalated from my left foot/ankle/leg to the entire right side of my body hip/back/shoulder/arm/wrist/hand.  I have been seeing a Pain Management Doctor since I was diagnosed and have recently been told that we are hitting the end...

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  • recent crps diagnosis

    Hello everyone.New to forum.After a knee surgery as a result from a work injury i was recently diagnosed with crps nos.every test known to science was performed to come up with this diagnosis.My question is concerning workers comp they state that this is not crps .Is crps the same as crps  -nos

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  • Do my symptoms sound like CRPS after ACL reconstruction?

    Hi Everyone, 3 weeks ago I had an ACL reconstruction. The surgery went well and my knee is looking and feeling great! I had a femoral nerve block which they believe may not have worked as I was in a large amount of pain after surgery and I spent a few hours longer than I was supposed to in recovery....

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  • Suggestions for pain

    Hi, I was recently diagnosed with this in my left foot and I've noticed the less I walk the more the nerves react when I do walk, is this normal? I've been on Neurotin for 6 wks and haven't felt a change, any suggestions I would greatly appreciate it.

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  • Help- anyone on Tapentadol?

    Hello, I started on Tapentadol about 2 months ago, started on 50mg twice daily, increased to 50mg morning + 100mg at night as it wasn't doing enough to control pain at night. Before starting I had to come off the meds I had been taking, Amytriptaline and Pregabalin. I know that both of these drugs...

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  • CRPS foot and leg braces

    Hi. I've had CRPS in my right foot going on 4 years now. The pain has spread to just below my knee. Most days I cannot wear shoes, I have to resort back to my walking boot but even with that I'm finding it harder to walk on that foot. Are there any companies out there that sell walking aids to...

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  • Hi, I am new here.

    I had rotator cuff surgery Dec.of 2016. My arm was in a sling for 6 weeks. The first day of physical therapy. My therapist said I had crps. My hand was very swollen. My ortho dr. Says it was not crps. The therapist says he's in denial. I have had NO pain. Just swelling in my hand. Plus stiff joints....

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  • CRPS - transfer from elbow injury to wrist and hand

    Hi everyone ​I am hoping someone can answer this for me. I experienced a severe blow to my elbow in a car accident and have now developed CRPS in my forearm, hand and wrist. Does anyone know if CRPS can transfer from the original site of injury (i.e. my elbow) down into my hand and wrist? Thank you!

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  • Disappointed with my 2nd spinal cord stimulator

    I suffer from rsd in my left leg and foot from a auto rollover almost 3 years ago, I was diagnosed when within days of the accident I started getting the worst pain and burning, I thought I was going to lose my mind. After 6 months I decided on getting a spinal cord stimulator but after 3 months of implant...

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  • CRPS treatments

    Hi, I have severe CRPS in my right foot/ankle/leg. So far it has been resistant to any of the treatments that have been tried. Today I went to the Walton centre in Liverpool for a bier block however, they were unable to carry out the procedure as when the specialist came to do it he said I have no veins...

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  • Newly diagnosed with CRPS after ankle surgery help !

    Hi, does anyone have this and could share how to overcome this. Complex  Neurological Pain Syndrome i was just diagnosed with early CRPS in my ankle after severe trauma and ankle surgery. a support group for this would be so helpful !  thank you so much!!? 

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  • Complex spine

    As anyone out there had lumber laminectomy/ fusion wich has failed.redone through the side to achieve insertion of lumber cages and new bigger pedicle screws.my neurosurgeon had only carried out this procedure on a dead body.he had to pull out down at level 5 as I could have lost the use of my left...

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  • Tightening in joints and legs

    I have extremely painful tightening of joints in legs and arms. It is very painful to loosen the joints. Once loosened it takes very little time before they tighten again. My legs ache also from this. My hand tightens also and I can only describe it like fingers made of metal which sounds stupid. I...

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  • Sick to sicker

    Hi! In March 2017 I was taken by ambulance to the hospital. I had no signs or symptoms. I was diagnosed with pneumonia. Within 24 hours I was put into a drug induced coma for 16 days. The doctors said they had to put me in the coma because I was pulling the tubes they had down my throat out. Anyway...

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  • SCS advice...

    I was diagnosed with CRPS in 1996, way back when it was still called RSD. I only had it in my left arm then, and in 1999, I had a spinal cord stimulator implanted, which changed my life. I went back to school, I could work, and things were significantly improved. In 2007, after I lost the baby weight...

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  • Does CRPS reoccur after every injury?

    Hi all. I've been diagnosed with CPRS following a bad fall. Ive also developed a lesion and I've been battling an infection in my leg. I'm currently back in hospital, have been in and out four times in last 18 days. Are these infections/lesions linked to the CRPS? I have also had similar...

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  • Antidepressants for crps

    I was told I had Crps by my orthopedic doc after having a fractured shoulder, my hands are affected, have had physio and tried lyrica did not get on with it, I want to suggest to my doctor whether antidepressants would help but would like to know  if anyone has gone that route?

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  • Nail growth with crps

    The crps in my left foot means it is very difficult to cut my toenails due to the pain but they also grow extremely fast due to the crps. I have spoke to doctors about this and they haven't really gave me an answer, however I know fear that I may be getting an ingrown toe nail on this foot. Has...

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  • CRPS type 2 / atypical symptoms

    My arm was injured last year due to a cycling accident. I have been left with damage to ulnar nerve, and persistent pain. I have self diagnosed CRPS but healthcare workers seem reluctant to give me this label, saying I don't have enough symptoms. I previously had abnormal hair and nail growth; this...

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  • Crps after bi lateral hernia surgery

    I wanted to know if anyone has been diagnosed with this horrible condition after surgery for hernia repair, I had surgery in 2005 and a few weeks later I started having burning pain in pelvic, now recently, November 2016,i was in car accident and broke my hand it took 8 months for Dr's to listen...

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