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Complex Regional Pain Syndrome

Can you help? Discussions needing a reply

  • lucyr2 2

    Nail growth with crps

    The crps in my left foot means it is very difficult to cut my toenails due to the pain but they also grow extremely fast due to the crps. I have spoke to doctors about this and they haven't really gave me an answer, however I know fear that I may be getting an ingrown toe nail on this foot. Has anyone...

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  • lucyr2 2

    Nail growth with crps

    The crps in my left foot means it is very difficult to cut my toenails due to the pain but they also grow extremely fast due to the crps. I have spoke to doctors about this and they haven't really gave me an answer, however I know fear that I may be getting an ingrown toe nail on this foot. Has anyone...

    0 replies 0 votes Posted
  • lucyr2 2

    Theme park and Crps

    I now have crps in my hand as well as my foot, tommorow I am going to Alton towers theme park, and I'm just worried about the pain from vibrations etc on the rides, espesically in my hand. Has anyone had any experience with this?

    4 replies 0 votes Last reply
  • sally1711 1

    Extree fatigue with CRPS

    My 16 yr old son was diagnosed Aug 2014 after 14 months of uncertainty.  The last 2 'flare ups' have resulted in him sleeping excessively (17 hours a day) and feeling very lethargic.  Does anyone else feel like this, and do you have any recommendations of how to improve this?

    13 replies 0 votes Last reply
  • trishm7433 1

    CRPS

    I received a nerve injury during a rotator cuff surgery almost 6 months ago , my arm has not been the same since. I have a crushing twisted pain on inner side of arm where elbow bends as well as burning pain in forearm swelling in hand and wrist my hand and wrist are freezing cold all the time, I have...

    3 replies 1 vote Last reply
  • Monkaygirl 2

    Fear crps spreading to all 4 limbs but worry about telling people

    Hello, I am hoping to find someone with crps who can help? Had bad fall, elbow dislocated and fractured badly. Had radial head replaced, soon after surgery surgeon noticed classic symptoms I was diagnosed with crps in left arm, elbow and hand. My arm is locked at the elbow as if in sling. I think...

    7 replies 0 votes Last reply
  • dawn90956 2
  • jane05997 1

    Stellate Ganglion block

    Hi everybody, Please can somebody help my daughter has crps in her right hand after a car accident 4years ago,on Friday she had the stellate ganglion block at the time she felt her arm become warm again but yesterday she was in a lot of pain is this normal to feel rough after this procedure?

    5 replies 0 votes Last reply
  • Kamatsu 2
  • Chrissy1437 1

    I need help!

    Hello everybody. I'm new here...basically just trying to see if anybody with crps can tell me if my symptoms relate to crps. I have watched some YouTube videos trying to see if I can find something similar to what I'm going through but everything on there seems to be EXTREME cases...or I'm incorrect...

    5 replies 0 votes Last reply
  • lucyr2 2

    Crps

    I have crps in my left foot and I struggle to cut my nails on this foot due to the pain, does anybody else have this problem and any way to deal with it?

    4 replies 0 votes Last reply
  • katrina35798 2

    Mild CRPS?

    A little background. Two years ago I developed an unexplained stress fracture (confirmed with MRI, I'm not a runner, there was no specific injury) and was in a walking boot for 5 months and in a cast for one month (onset was May 2015, stopped treatment November 2015 with three months of PT following)....

    5 replies 0 votes Last reply
  • Survivor42 2

    SCS advice...

    I was diagnosed with CRPS in 1996, way back when it was still called RSD. I only had it in my left arm then, and in 1999, I had a spinal cord stimulator implanted, which changed my life. I went back to school, I could work, and things were significantly improved. In 2007, after I lost the baby weight...

    0 replies 1 vote Posted
  • candice28651 2

    CRPS treatments

    Hi, I have severe CRPS in my right foot/ankle/leg. So far it has been resistant to any of the treatments that have been tried. Today I went to the Walton centre in Liverpool for a bier block however, they were unable to carry out the procedure as when the specialist came to do it he said I have no veins...

    37 replies 1 vote Last reply
  • Tealeye777 2

    Possible CRPS ?

    Hello, I'm posting here hoping that maybe someone can tell me if my condition is CRPS. The clinic I go to is not helping, the doctor will not refer me to a neurologist. I have type 2 diebeties and nueropathy. But I had this happen last year in march. Started on my right thigh the size of a silver dollar....

    9 replies 0 votes Last reply
  • david37756 1
  • julia44010 2

    Ketamine to treat pain of Fibromalgia

    I have fibromalgia and take Oxycontin, having tried most other forms of pain relief without success. Now the doctor at the pain clinic wants me to go into hospital for a cure of Ketamine by perfusion pour 4 days. Has anyone tried it, does it work, and what are the potential problems? I am especially...

    5 replies 0 votes Last reply
  • karens176 1

    CRPS low mood, doesn't help!! Loss of license.

    Hi, I've beat this illness 13 years ago, but after an accident breaking my right leg and requiring surgery a year and a half ago, I've been left with CRPS again. In warrior mode I've soldiered on and kept upbeat, it's took a while and is still painful but I am back riding my horse, the feeling of freedom...

    3 replies 1 vote Last reply
  • Gogee123 2

    Crps and Perifial Neuropothy in both feet

    I went back to work and had to cut my hours to no more that 6 hours and only 20 hours. Right now the pain is almost unbearable. A Big 10!! Added to this I have RA. What can I do ? I need help. Does anyone have a saw? Kidding aside I can't bear this too much longer. Help!!

    7 replies 0 votes Last reply
  • Monkaygirl 2

    Tightening in joints and legs

    I have extremely painful tightening of joints in legs and arms. It is very painful to loosen the joints. Once loosened it takes very little time before they tighten again. My legs ache also from this. My hand tightens also and I can only describe it like fingers made of metal which sounds stupid. I...

    28 replies 0 votes Last reply
  • mammalu 2

    Help/information please.

    I had an ankle fusion 9 years ago, for severe osteoarthritis, and now have arthritis in my foot. Over the last 2-3 months my foot, ankle and lower leg has become swollen, painfull. I do get burning feeling, but it's not too bad, about the same as if I had used 'dencorub'.  The feeling goes 1/2 way up...

    2 replies 0 votes Last reply
  • tunajon 2

    A single infusion of Ketamine???

    First, my specific question, then a bit of background information.  I’m being treated by a well-regarded CRPS specialist, who has scheduled me for one Ketamine IV infusion, which should take about four hours.  It’s this Friday, March 17th.  Does anyone have any ideas about why only one would be scheduled? ...

    4 replies 0 votes Last reply
  • Chrissie141010 2

    Multiple ailments...

    I broke three of the metatarsal more specifically 2, 3 and 4 in my left foot. This was followed by some DVT of 20cm long at three different points in my left calf. Last July 2016 of was diagnosed with CPRS/RSD in my left foot. This is very problematic on its own, but I have arthritis in my shoulders,...

    0 replies 1 vote Posted
  • sophiepixiel 1

    Something that's currently helping.

    I've been suffering with CRPS in my primary hand and wrist after my conservatory door slammed shut on it in November 2015, recently I was told by pain management they were running out of options having only tried the infusion... So they gave me some anesthetic type patches they help with the pain but...

    3 replies 0 votes Last reply
  • dct 2

    rsd

    i had mid foot fusion last year, march 30, 2016, i was told it takes a full year for full recovery.  the first 9 months my ortho sugeon kept saying, just takes time, after that she said you have to go see a pain management dr. and you can go back to work on sit down duty.  cant work, there is not sit...

    0 replies 1 vote Posted
  • christyl87594 2

    Disappointed with my 2nd spinal cord stimulator

    I suffer from rsd in my left leg and foot from a auto rollover almost 3 years ago, I was diagnosed when within days of the accident I started getting the worst pain and burning, I thought I was going to lose my mind. After 6 months I decided on getting a spinal cord stimulator but after 3 months of implant...

    3 replies 0 votes Last reply
  • tony burgerman 1

    crps pain releif

    my daughter has been diagnosed with crps and is in extreme pain,IT started in her foot which is now purple,swollen,and she has no feeling in it. IT is now in her knee she is on all the usual .medication but to no avail she has been in hospital for the last 5 week .DOES ANYBODY OF ANY CREAMS THAT MAY...

    4 replies 0 votes Last reply
  • vicky87059 3

    Loss of function

    I fractured my distal radius in may and have since been diagnosed with CRPS. I am finding I have very limited range of movement in my wrist and I cannot supinate at all ( turn palm upwards ) -and very very limited function in pronation flexion and extension despite twice weekly physio and occupational...

    12 replies 0 votes Last reply
  • andy77456 2

    CRPS & Dermatitis

    Hello everyone, I hope you are all having a very LPD. I was wondering if any of you have been diagnosed with subacute dermatitis (or equivalent) in addition to or as a result of your RSD/CRPS?

    0 replies 0 votes Posted
  • michelle04212 1

    Ankle Sprain

    Hi my name is Michelle I fell and sprang my ankle at least that whats the doctor said at er but it has been 4 years and it's still hurts extremely bad so I went back and they said since I'm a diabetic it's gonna take awhile but it's been over 4 years and it kind of feel like when I walk the side of my...

    1 reply 0 votes Last reply
  • antscott 2

    Fight or flight response

    Hi ​With CPRS how do you come out of the fight or flight mode? I can't shake this constant state of high anxiety, like bolts of electricty are flowing through me. Really need this to calm so i can focus on getting the foot better. Thanks

    7 replies 0 votes Last reply
  • palmer48 1

    CRPS help for a friend

    hi my name is Megan and although i do not suffer from CRPS myself, i have a very close friend who does and she has just had a small relapse. I try and find the right words to say to Rachel but I don't think it feels the same to her coming from me because I don't truly understand what is going on with...

    2 replies 0 votes Last reply
  • MaMac 2

    Do I go for surgery?

    After two months of fear because my hand is numb, swollen, and too stiff to use after it came out of plaster following a broken wrist and being discharged from hospital with the encouraging words "You should get some of the use of your hand back eventually..." I finally got to see another consultant. ...

    10 replies 0 votes Last reply
  • Lulu104 2

    Anyone diagnosed with CRPS after root canal work?

    Hi there I'm new to this forum. I was diagnosed with CRPS 3 years ago after root canal work. It has spread to my face, jaw, neck, left arm and chest area. Took docs 9 months to diagnose hence the extensive spread. It was very debilitating but went into remission then I was diagnosed with breast cancer...

    4 replies 0 votes Last reply
  • Pixie76 1
  • heather72469 3

    CRPS

    i have been told I have Crps but it is hard to actually diagnose this as there are so man different symptoms, my question is has anyone tried lyrica? I have read lots of bad reactions to this drug and truthfully am wondering whether to just put up with it. I mean I am not in agony, just continuous stiffness...

    13 replies 0 votes Last reply
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