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25% of CP patient doesn't have pain.

Posted , 7 users are following.

norbert01
norbert01

I have been diagnosed with CP a year ago. As long as I behave myself no fatty foods, no alcohol, etc, I feel well. Is my pancreas still being damaged? Any advice would be much appreciated.

Thanks, Norbert

0 likes, 13 replies

13 Replies

  • robin0
    robin0 norbert01

    Posted

    yes. no cure for the disease wether chronic or acute. Damage is done anf ot becomes a pain management exercise as well as lifestyle management
    • norbert01
      norbert01 robin0

      Posted

      Many thanks Robin for your advice.

      Best regards, Norbert

  • nettie76045
    nettie76045 norbert01

    Posted

    Hi Norbert,

    I am in a similar position. As long as I watch my diet/lifestyle I am fine. Hardly any pain at all.

    Once pancreas is damaged there is no way back thouhg. 

    Best wishes

    • norbert01
      norbert01 nettie76045

      Posted

      Hi nettie76045,

      Thanks for you advice. I have quit alcohol completely for over a year now. I living a pain free life for the moment, and I just hope it remains like that for more years to come. But some doctors do not believe that i've got CP. They believe that a CP patient should have a lot of pain and amylase level should be 500 u/l plus. They call it mild acute pancreatitis.

  • stuart13
    stuart13 norbert01

    Posted

    CP is a progressive disease but you could well die of old age before it packs in completely. Don't smoke or drink alcohol, eat sensibly, and don't over exert yourself.
    • norbert01
      norbert01 stuart13

      Posted

      Thanks Stuart13. I just hope it does not detoriorate and starts getting nasty.
  • stuart13
    stuart13 norbert01

    Posted

    Amylase is only raised during a flare-up and even when when CP is advanced it may never increase. Doctors should know this.
  • sue50084
    sue50084 norbert01

    Posted

    Hi Norbert. I have a similar experience as I have never had the dire pain described by others. And if I eat VERY carefully. no alchohol, I am not ill. I understand that not every pancreatitis sufferer has the pain. I keep my fingers crossed,
    • nettie76045
      nettie76045 sue50084

      Posted

      Same here Sue. No pain, just a slight burning feeling from time to time.

      I think we are lucky, although keeping fingers crossed as well.

       

    • norbert01
      norbert01 nettie76045

      Posted

      Have you done CT scan of your pancreas lately? It is important to know whether there are calcification present. This will at least give you an indication on where you stand. I did mine in April last year and everything was normal. But my level of amylase keeps going up. Now my doctor want me to do an Utra sound which I will do in maybe 3 month time. The reason I ask is that, at times when there is no calcification, doctors tell you not to worry. Sometimes they don't even believe it's chronic but said mild attacks when we behave nasty. So what do you think?
    • sue50084
      sue50084 norbert01

      Posted

      Oh yes, thanks for asking. I have had CT scans, last year most recently, and ultra sound. All show "severe calcification", Good news is it hasn't deteriorated more for the last 4 years, which may be due to luck (?) or to my careful lifestyle, Having said careful I am quite physically fit & very busy in my life, it;s just around eating & drinking I am so modest.
  • nettie76045
    nettie76045 norbert01

    Posted

    I had a ultra sound/endoscopy last September. It showed inflammation, scar tissue, cysts, and slight clacification. My amylase was ok.

    Having another major check up in a couple of months, just to see whether it is stable or not.

    Dr said there is nothing he can do for me in the meantime. If (!!) I get pains : "I will see you in A and E"   is what he said.

    I fear the pains but they might never come which makes me try and forget about CP. It's still always there in the back of my mind though.

    If your amylase is raised it is an obvious sign that something is wrong whether it is chronic or acute.

    I am proof that having CP does not automatically mean Pain. Maybe that goes for you as well... Hope so.

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