25 yrs of suffering
Posted , 4 users are following.
Hi all
firstly I like to say I'm sorry for all what you all go through
ive had HS since I was 13 yrs old 25 yrs of suffering this condition and still suffer I grow between 10 to 31 a wk ,I have over 100 surgeries a yr 64% of my body is damaged
ive tried so many treatments and sadly never worked
but I never give up so pls don't you
the best thing I've had was they removed my skin and let it regrow it self very painful and took around 7 months to heal but never had any grow for 3 years now they are growing back
as its a lot of areas they could not do it all in one so each section was done separate so far under my arms is the only one that lasted that long other areas only a few months
June last year I was having my stomach removed went in for surgery and woke up from a coma 13 days later I had severe anaphylaxis allergy to ATRICURIUM which is given as a mussel relaxant while in surgery
yes iv got demons from the ordeal but I can't let that stop me from my goal of being normal wearing clothes that don't have blood on them , waking up in a clean bed with out being smothered in blood , living on pain killers every day , my body looking like a patch work quilt full of dressings
I'm not a doctor but gone through a lot with HS if u would like to ask me a question I might be able to give you advice about my experiences
DONT GIVE UP xx
1 like, 7 replies
kaymate lisa23476
Posted
You might've read in previous posts about cutting out nightshades. I try not to have this group of vegetables in my diet, eg potatoes, tomatoes, aubergines etc. It does seem to work, so ill stick with it. For some reason, i can tolerate peppers?? I'm 61 and have had this since my teens. I sincerely hope I've not depressed anyone by saying that, but the outbreaks do appear to get less with age and diet control.
Kay xx
lisa23476 kaymate
Posted
Thanks for replying
I'm not letting this beat me I struggle every day
But I have amazing family beside me so I stay strong for them
I did see about foods so i have sent an email to get booked in to find out what foods it might be (hoping it's not chocolate ) lol
Thanks again Kay and I wish u amazing Christmas xx
hypercat lisa23476
Posted
I will pass on some good news - mine got a lot less since I have got older and I am now 61. I really hope yours do too. I am not sure if you are in the UK but if you are I hope you are claiming DLA or PIP as you should qualify.
I think you are amazing - I really do. Lots of hugs Bev xx
lisa23476 hypercat
Posted
I've heard that the older you get the less they are growing but mine seems to be growing in a lot more places just this yr they are nearly down to my knees on my legs
Yes I live in the uk not far from Portsmouth
I don't claim I work full time been in the same job for nearly 21 yrs as from February
my babies are 17-19 and my partner well wot can I say apart from I will never get any one as amazing as him
I change my tablets every 3 months but never with any difference in my self apart from side affects and OMG I've had some side affects
lisa23476 hypercat
Posted
Lisa xx
hypercat lisa23476
Posted
lisa23476 hypercat
Posted
We tried getting help last yr when I was recovering from being in the coma had to learn to walk talk ect ect
My partner took off 10 wks with me then had to go back to work still needed help and we could not have a nurse unless we paid £25 an hr
Thanks for that X