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I am still in shock, but write this less then 24hrs after being diagnosed with WG.
My GP and consultants knew a month ago, but i only found out yesterday after 4 months of thinking i had Lung Cancer and a thorocotomy.
I am not sure what to do/think, how i can plan my life now. I feel confused.
The consultant herself didn't know much about it, and i spoke to my GP this morning and even he doesnt know much about it. They need to research it. Meanwhile i've been referred to a reumatologist next week. What am i supposed to do between now and then!???
Continue reading articles on the net which say its life threatening and non-curable? The treatment is agressive and takes over your life.
Im only 26, am so active and a dancer by profession. Ive been through hell the last 4 months and thought yesterdays post-op follow up appointment was just routine. I honestly expected closure. I had no idea a new chapter would start...
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