26yrs old, Glimmer of hope for some CES patients. 12 months post operation

Posted , 6 users are following.

Diagnosed with CES aged 26yrs old, L5/S1 disc bulge. I was a healthy, football playing, gym go-er.

Over period of 8-10 weeks, severe loss of sensation in right leg, foot and buttocks. Also, retention in bladder and bowels, and sexual function. Severe pain in back and right leg.

I was rushed in to surgery to remove the part of disc causing the issues, after an emergency MRI scan (Having been turned away from A&E twice previously, over 3 weeks, and told just a sporting injury).

Now nearly 12 months post operation, and have re-gained full bladder, bowel and sexual function. Live 85-90% normal life, only exception is some nerve damage down right leg which means I can no longer jog/run (As can't push off my calf normally). But can walk fine, which is main thing.

Having read online about other CES experiences, and how terribly others have been left affected, hopefully this offers a small glimpse of hope that not all CES patients are left with life changing issues.

Keep up the physio and back stretches, makes a big difference to recovery.

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  • Posted

    I had urgent surgury in 2008 6 days that changed my life. ring me I can give u advice u were turned away twice I think u could win a claim. U have lost 15 to 20% of use in ur right leg. I think u have a chance of getting no win no fee. I was left for 6 days I lost bladder and bowel I got bags I have mobility issues. I sued and the hospital settled out of court 1.2 million I received. I have had other problem through this ces syndrome I had my bladder removed it was left in but went septic I have had 2 massive hernia operation I have had 2 colostomy revisions. . my back was left unstable last year I had c5 c6 c7 new spaces plates screws cages all in titanium. then 2 weeks ago I had massive back surgury I had everything done l3 l4 I had had disc trimmed I have had screws rods plate cages that move I have had my spine stabilised. it at to be done. I had 23 staple out today. the surgeon said he could see my nerve damage from the previous causa equine. I am the worst outcome ces in the UK.

    I think u have a claim are u in the UK.

    my mobile number is 074 25173840. text me 1st.

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  • Posted

    Its been over a year now having cauda equina l5 -s1 the several times I've been in the hospital i 've had mris. done yet they've said i don't need immediate surgery and everyone including myself is. trying to push it off i went through giving birth this way too ( now 9mo) and that story is still up on my profile but my nerve pain affects my walking near the ankle i feel it all the time i also have the herniated discs in same spot and stenosis. I'm not sure how much longer it'll be this way i'm still hoping theres a cure for me without surgery I do pt & traction and would like to go back to a chiropractor. I believe nothing is impossible ...

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  • Posted

    Thank you for giving me hope. You have made me to believe that afterall no matter how long it will take i will definitely get well someday. I am also gradually getting their. i am now having an erection just that it does it stand for long and not too hard for sex. i have gotten my urinal and bowel back but i strain to urinate and also seriously suffering from constipation. There is still some minor pains in the surgery area so though i wake now, i still limb small. sometimes i do feel that may be i may not get better again because it is 1 year and 11 months after my diagnosis and surgery. But with what i have read from you being your experience as far as recovery from CES is concerned i am so sure that i shall also get there soon. Thank you very much for sharing your experience with us. BUT i still have to force i urinate. What advice do you have for me? Thank you

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    • Posted

      EriOklah

      Hi Eric ... I have retention issues as well and what I do is every 90 minutes I go pee. Sometimes

      it takes a bit to go, but most times I'm ready, it sure beats having to self catheter.

      Constipation is a whole different game. I have no answers, suggestions or hints. If you find the

      answer, please share! Be well!

      Report Reply

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