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Cauda Equina Syndrome

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  • Long term ces

    I've had ces for 16 years I go for cystoscopy yearly check for bladder cancer as I heard long term use of intermittent catheter increases risk ? What annoys me most is the uncomfortable sensation when sitting for any more than 5 mins even on a padded chair and lying in bed on my back. The backside...

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  • Long term ces

    I've had ces for 16 years I go for cystoscopy yearly check for bladder cancer as I heard long term use of intermittent catheter increases risk ? What annoys me most is the uncomfortable sensation when sitting for any more than 5 mins even on a padded chair and lying in bed on my back. The backside...

    Posted
  • Recovery from Cauda Equina Syndrome

    I wanted to share a story of my boyfriends experience with CES because I had never heard of it until he was diagnosed, I searched for information on how he might recover and read so many traumatic stories I was devasted.  I could not find any positive outcomes. For people who might be newly learning...

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  • Cauda equina and muscle spasms

    Hi guys just wanted to share my story with you all. Around 3 years ago I developed severe lower back pain that was the result of a manual lifting job I had at the time. Over a year the symptoms got worse and caused severe nerve pain in my right leg which my GP diagnosed as sciatica. I was at my gp most...

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  • Continuing upper back and neck pain 7 months after surgery

    Hi again, first, thanks to everyone who replied to my post last month.  So frustrated. Still dealing with chronic upper back and neck pain, now seven months after surgery for Cauda Equina Syndrome. In February I saw my surgeon and a physiatrist. They both believe that my ongoing back pain is due...

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  • Cauda Equina - Compacted Blood Vessels

    I have had CES symptoms on and off for a good few years.  Ankle, Leg, repeat UTIs and testicle infections. Has anyone any experience of CES caused by compacted blood vessels? I have had 4/5 normal MRIs which did not show any problem. I have been looking at previous EMG results and found sometimes...

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  • learning to walk all over again after CES

    Good evening everyone on this amazing site.  So gald I found it. My back went out after getting up out of bed. I layed on the floor for three hours and every time I moved my lower back hurt. So I called my mom, talked to her for a while,had lunch on the floor. As long as I didn't move, I was...

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  • Still finding it difficult to pass urine and defecate

    It's been ten months after I have undergone surgery for CES. Though the numbness that I experienced in my saddle area and legs have gone down, I still have back pain and also find it difficult to pass urine and to defecate. I am very worried. I need help please. Thanks

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  • My experience of Cauda Equina Syndrome

    I thought I'd post about my experience of Cauda Equina Syndrome (CES) in case it's of any use to anyone. I'm a 30-year-old woman. In spring 2010 my lower back suddenly became painful. It didn't get better. Over the summer I tried various things - painkillers, the chiropractor, the gym,...

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  • Cauda Equina Slow Onset - Difficult Getting Diagnosis

    I am having difficulty getting a diagnosis when I have all or most of the symptoms of slow onset cauda equina.   ( i.e. Calf weakness and urine retention.These cause a lot of bladder infections and foot problems.   I would like to hear from any other patient's who have had a similar...

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  • Pregnancy after Cauda Equina Syndrome

    Hi there, I was diagnosed with CES in December 2012, aged 22. After having surgery at L5/S1 level i was left with no feeling in my saddle area which still stands today. I am now nearly 4 months pregnant with my first child and am just curious as to how my back will cope as i get bigger. Is there anyone...

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  • Does vomiting mean anything with CES?

    Hi all, For background my story so far is here... https://patient.info/forums/discuss/could-this-be-slow-onset-ces--623935 In short I suspect I have a form of CES. Over the last two weeks there have been 6 or 7 occasions where I've just started vomiting out of nowhere. I have not felt ill...

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  • All the symptoms, no diagnosis

    urinary retention began 13 days ago. Since then have had MRI W/o contrast of brain, and no contrast MRI of thoracic and lumbar spine. I do have mild herniation at L5/S1 but nothing compressing on caudical nerve bundle, I have saddle numbness, feet, pelvic and rectal numbness, I have been self cathing....

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  • CES and chronic back pain

    Last August I had emergency surgery for a herniated disc impinging on my spinal cord. I now have Cauda Equina Syndrome and nerve damage causing numbness and weakness to my left leg, buttocks and foot, as well as some weakness and numbness to my right leg. I am lucky that my CES did not leave me with...

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  • ACDF

    I have just had surgury called acdf c5 c6 c7. They found bone on bone no discs left. I had titiaum spaces put in then plates then a cage. It's 3 weeks today I still have dead arm with intense ache and pins and needs. Arm and right hand. As any one else had this surgury and the problem. I also have...

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  • Do I have Cauda Equina Syndrome ??

    I am a healthy 19 year old girl but a few months ago I noticed a lump / swelling on my lower back but thought nothing of it. I started getting weird tingly sensations down my legs, feet, and bum at various times and locations. It started off quite rare and within the last 3 weeks has become extremely...

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  • New to CES

    Hi all, 24 year old man started having some buttock and back pain in late September 2015 gradually getting worse for a couple of weeks dr’s and physio originally suspected a herniated disc (slipped disc) after mri in February turned out to be a rear form of spinal tumor called a clear cell meningioma!...

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  • Caude Equina Slow Onset Testicle Infection

    I wonder if anyone has found themselves in this situation? I have had another testicle infection presumably caused by CES Slow Onset and self catheterising. The infection is not clearing. At the outset, I was given Ciprofloxacin and after 8 weeks my GP wanted me to stop taking it, despite the fact I...

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  • Work related issues any advice or help appreciated

    Hi this is my first time posting. Im currently in the process of returning to work after more than a Year of therapy after emergency surgery for CES. An i am having to do a bunch of paperwork like an accomadations form. Now i realise not very many people with CES have the ability to go back to work im...

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  • Cauda Equina Slow Onset - Getting A Diagnosis - Which MRI?

    I have all the symptoms cauda equina including calf weakness and numbness, repeated bladder infections and a good few more. The incidents I started as sporadic and now almost everyday. I have found it very difficult to get a diagnosis about what may be causing the problem.  All the MRIs via my GP...

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  • A Test of S1

    I recently did two tests to check for possible impingement of my S1 nerve root after being unable to get a diagnosis. The tests came from Dr Corenman's web site and involved walking 20 feet on tip toe.The idea is to check for lack of calf strength. I managed the twenty feet like someone doing a white...

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  • Could this be slow onset CES?

    Hi all, This could be a long post, please bear with me! I am a 43 year old man that has suffered with back pain for almost 25 years. At first it was mild to moderate lower backache that would last around a week before feeling better. As time went on these episodes became more frequent and of longer...

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  • 1 month post op CES

    Hi folks, My wife had L4-L5 Laminectomy-Disectomy for CES 1 month back in US. Here is the short story- Back pain issues from past 8-9 months. Sciatica started in Dec and 1 week after that doctor prescribed oral steroids. Just 2-3 days after that the CES symptoms(saddle numbness and incontinence) started...

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  • Stay positive...it could always be worse

    This is my first post and I am little more than 3 weeks removed from an emergency bilateral hemilaminectomy of L5-S1. I was extremely lucky as my local ER recognized immediately I was presenting with CES and I was operated on within 24 hours of the onset of saddle numbness and inability to clear my...

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  • There's always hope

    Hey I'm an 18 year old who severely hurt my back at the gym. After letting sciatica live within me for months and just brushing it off I pushed it over the edge and got CES. I went to the ER And they sent me home with teradol and told me to tough it out. Went back to my family doctor 3 or 4 days...

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  • Cauda Equina: My Experience

    So, before I get started I have to say I write this with a measure of guilt. Many people here have heart-rending stories and trust me I feel for all of you. But, compared to many stories I seem to have fewer symptoms. I went back and forth about writing my story and it took a great deal of convincing...

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  • My cord equina story 6 weeks post op

    Hi I'm 33 and had back problems for 10 years I had a diskectomy in 2014 then in September I went to my local A&E and they sent me away saying I needed to see my specialists they couldn't help me when I was complaining of severe pain in legs and back . I waited three weeks to see my surgeon...

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  • I was tested for Ces but the doctor has ruled it out

    on Tuesday this week I went to my doctor after experiencing numbness in my right buttock and having difficulty urinating and having constipation for three days. I also had lower back pain. I had an MRI done and it showed significant prolapse of the L4/L5 disc which is intending the thecal sac. I am deeply...

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