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Cauda Equina Syndrome

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  • Cauda Equina: My Experience

    So, before I get started I have to say I write this with a measure of guilt. Many people here have heart-rending stories and trust me I feel for all of you. But, compared to many stories I seem to have fewer symptoms. I went back and forth about writing my story and it took a great deal of convincing...

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  • My cord equina story 6 weeks post op

    Hi I'm 33 and had back problems for 10 years I had a diskectomy in 2014 then in September I went to my local A&E and they sent me away saying I needed to see my specialists they couldn't help me when I was complaining of severe pain in legs and back . I waited three weeks to see my surgeon...

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  • My experience of Cauda Equina Syndrome

    I thought I'd post about my experience of Cauda Equina Syndrome (CES) in case it's of any use to anyone. I'm a 30-year-old woman. In spring 2010 my lower back suddenly became painful. It didn't get better. Over the summer I tried various things - painkillers, the chiropractor, the gym,...

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  • All the symptoms, no diagnosis

    urinary retention began 13 days ago. Since then have had MRI W/o contrast of brain, and no contrast MRI of thoracic and lumbar spine. I do have mild herniation at L5/S1 but nothing compressing on caudical nerve bundle, I have saddle numbness, feet, pelvic and rectal numbness, I have been self cathing....

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  • I was tested for Ces but the doctor has ruled it out

    on Tuesday this week I went to my doctor after experiencing numbness in my right buttock and having difficulty urinating and having constipation for three days. I also had lower back pain. I had an MRI done and it showed significant prolapse of the L4/L5 disc which is intending the thecal sac. I am deeply...

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  • Recovery from Cauda Equina Syndrome

    I wanted to share a story of my boyfriends experience with CES because I had never heard of it until he was diagnosed, I searched for information on how he might recover and read so many traumatic stories I was devasted.  I could not find any positive outcomes. For people who might be newly learning...

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  • MRI and CES

    Hello everyone, This is a question about imaging and CES which I hope someone can help me with. I had a private MRI which showed compression at L4/L5.  At this stage I had some CES symptoms but not that serious.  Two days later I had a catastrophic collapse with the most intense pain and...

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  • Still finding it difficult to pass urine and defecate

    It's been ten months after I have undergone surgery for CES. Though the numbness that I experienced in my saddle area and legs have gone down, I still have back pain and also find it difficult to pass urine and to defecate. I am very worried. I need help please. Thanks

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  • Depressed after 12 months of constant pain .

    I had surgery 18 months ago on a herniated disc which was causing ces, after my op I felt so much better everything went back to normal. But 6 months down the line the pain returned now I'm in constant pain, I walk with a limp, and I'm fed up with being fobbed off with more pain relief that isn't...

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  • When a catheter is needed

    I was recently diagnosed with cauda equina syndrome and had surgery to relieve pressure. Now I'm in recover. I'm generally holding 80-180ml in my bladder and they want me under 100 or else they want to put a catheter in me. I feel this is a but aggressive and can do more harm than good. Just...

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  • Medical Negligence

    If you have red flag symptoms of Cauda Equina Syndrome (CES) such as bilateral leg numbness with pins & needles; numbness in the 'saddle' area and problems with bladder or bowel then I would expect you to be referred for an emergency MRI and if you are diagnosed with CES I would expect you...

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  • Symptoms of Cauda Equina Syndrome but no firm diagnosis?

    Hi everyone I am currently in a frustrating, not to mention worrying situation with regard to my condition at present. This seems like a really helpful community so I'm glad that I have stumbled across it. To get the full story across, this post will no doubt be a tad lengthy, but I will try and...

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  • CES and anaemia.

    Hello all, I wondered if anyone had been diagnosed with anaemia (I am told my score was 10.2) following CES? I had a CES episode 1 year ago, had two operations and 4 months n hospital.  All the usual CES stuff of course, but anaemia?  I am scheduled to have the necessary tests for colorectal...

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  • Ces

    Still in pain no power in my legs another scan they said it was ok but my anal exam I felt hardly anything. They say I've got nerve root inflammation but when I was diagnosed and finally rushed to hospital I had been left three days before with one of the red flags as my brain wasn't teĺing me...

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  • Pregnancy after cauda equina

    I was diagnosed with cauda equina almost 2 years ago and was rushed in for emergency surgery. I can no longer feel most of my feet, up the backs of my legs, most of my butt and my lady parts are completely numb. I can't use the bathroom normal anymore because the muscles don't work. I just found...

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  • Recovery

    i had injections in my spine 3 weeks ago and pain has eased. I also reduced lyrica from 600 to 3oo daily and amnetryptyline from 30 to 20 ,. I'm moving better and praying that I can retain what I got. Never ever give up ,

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  • hi my CES back story

    Hi everyone, I wanted to chime in here... I have had 3 major back surgeries on my L4-5 left side over the last 15 years the first being back in 2004 when my sciatica was so bad I couldn't stand up... The Dr. took a year of dragging thier feet and screwing around with shots to finally get me in for...

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  • 3 weeks since CES surgery

    Hi, I have just joined this site and thought I would post my recent story with CES. I am male and 36. To cut a long story short on March 29 2017, a few days after my initial onset of back pain, I had the first red flag symptons of CES namely numbness in right buttock/top of leg and foot. Shortly afterwards...

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  • Injections

    I had surgery in November 14 and left with saddle anestesia radiating down left leg. Lot of pain in ankle and foot. I was put on lyrics 300mg am/pm, and amnetriptyline 20 mg am/pm. Lyrica affecting my memory and I tried to reduce but found I couldn't cope without high dose. I had spinal injections...

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  • My CES Story - 1 week in

    Hi my name is Adam, 34 years old, and have been healthy, fit and strong for all of my life, never broke a bone or had surgery. My career is going great and I've been married to the most amazing women for over 4 years who gave birth to our first child, a beautiful baby boy on 18th November. For...

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  • Cauda Equina recovery

    Hey my brother suffered a tumor compressing his nerves.. 8 months post op hes able to take few steps with walker and full support. Ive heard it takes 3 years to get all functions back? Will his situation change in terms of walking also he has bladder incontinence does that get better with time? It was...

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  • CES on one side?

    Does CES present itself in both sides or could it be in just one side only? So here is my story, and I am very, very concerned I could be having CES. On Thursday I was building some Ikea cabinets and my lower back hut really bad right after, i took a hot bath and went to bed. In the morning I woke up...

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  • Can i claim pip for ces

    Started with it in january had mri in febuary was diagonsed 2 week later had operation 17th march now struggle to walk any distance without pain in my left leg.

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  • Cauda equina

    Hi, I have severe pain in my anus area, frequent diarrhea & Bowel incontinence for last 4-5 years . In 2013 I underwent a laser surgery for anal fistula . Since then I have this problem . Now since 2016 I have developed numbness in my legs and feet. My vitamin b12 level was too low , since I am...

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  • Drop foot /foot drop

    I have been on this site before reading all the comments and conversations about ces but just now feel I'm able to write about my experience. it been nearly 4 years since my back surgery.it all started in may or 2013  ( I was 39 )with a sore lower back which I would have once a year and would...

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  • Struggling at work

    Hi. I have just founf this support group and have been reading the comments. I have had CES since 2011 and have been trying to live a normal life even though I walk with a limp and have no feeling at the back of my legs and my left foot. I have to self catheterise and have total safddlebag anaesthesia....

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  • Have you had these treatments?

    I am so excited to have found this site. I have been feeling very alone lately and exhausted from explaining to people that I did not simply herniate a disc last year.  I have recently had a worsening of pain and I am looking for any other stories out there that may relate to mine. As a kid/young...

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  • Slow onset Cauda Equina with bowel problems.

    Hello people. I would like some help if possible please. Has anyone on here had experience of slow onset cauda equina with related BOWEL problems as opposed to bladder problems. I can't seem to find any information or people who have experienced it. It seems the slow onset is more commonly accompanied...

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  • misdiagnosed with sciatica

    hi, i was diagnosed with sciatica for 8 weeks suffering horrendous pain, i was taken in for emergency surgery after begging for an mri. on the eve of the mri i was told i had ces...the damage i have been left with is awful yet the gps carry on with their buisness and day to day lives....apparently the...

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  • CES and ED

    Hello, I'm a 22 y/o male who just had an emergency laminectomy done on 2/27/17. I couldn't feel my lower half and was experiencing some incontinence. I was flown out via helicopter to get the surgery done, which went great, no pain in lower back after years. I'm home now after spending...

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