Skip to content

Cauda Equina Syndrome

All discussions in this group

Next
  • Advice please on CES recovery and is full recovery possible ?

    hello everyone  I’m now 7 months post emergency decompression op ( microdiscecomy / laminectomy L4 L5) for sudden onset CES and I’m told I’m doing well.  Bladder & bowel  seem to be recovering ok and my backs not in pain ( huge relief and surprising as  the A&E dept …

    Last reply
  • When does the 48 hour clock start?

    Hello. I had surgery for CES in July of this year. My neurosurgeon told me that if surgery is performed within 48 hours, things will be generally better. now I’ve also read tidbits here saying the same thing. My question is, when does this clock start? now I know the easy answer is to say at the …

    Last reply
  • Recovery from Cauda Equina Syndrome

    I wanted to share a story of my boyfriends experience with CES because I had never heard of it until he was diagnosed, I searched for information on how he might recover and read so many traumatic stories I was devasted.  I could not find any positive outcomes. For people who might be newly …

    Last reply
  • learning to walk all over again after CES

    Good evening everyone on this amazing site.  So gald I found it. My back went out after getting up out of bed. I layed on the floor for three hours and every time I moved my lower back hurt. So I called my mom, talked to her for a while,had lunch on the floor. As long as I didn't move, I …

    Last reply
  • Pregnancy after Cauda Equina Syndrome

    Hi there, I was diagnosed with CES in December 2012, aged 22. After having surgery at L5/S1 level i was left with no feeling in my saddle area which still stands today. I am now nearly 4 months pregnant with my first child and am just curious as to how my back will cope as i get bigger. Is there …

    Last reply
  • Caudal equina vaginal delivery or c-section?

    I'm a caudal equina patient, have had a fusion 3 years ago and I'm currently pregnant with my second child. I'm 6 days over my due date and the doctor said we should arrange a c-section as there are no signs of labour and due to my neurological issues.Has anyone given birth vaginally …

    Posted
  • CES numbness changes

    Hi, I have previously posted in May 2017 regarding my CES diagnosis and the early stages of my recovery. On the whole I have made pretty good progress I think. I have always had some saddle numbness on the right side and some down the right calf area and the right foot. This improved for a few …

    Last reply
  • Cauda equina and muscle spasms

    Hi guys just wanted to share my story with you all. Around 3 years ago I developed severe lower back pain that was the result of a manual lifting job I had at the time. Over a year the symptoms got worse and caused severe nerve pain in my right leg which my GP diagnosed as sciatica. I was at my gp …

    Last reply
  • Help with MRI results

    I got my final results from MRI. Does any of this indicate that it could be cauda equina? MR Spine Lumbar (MR SPINE LUMBAR) - Final result (06/02/2018 6:02 PM) Procedure Note Interface, Imaging Results In - 06/02/2018 6:48 PM EDT MRI LUMBAR SPINE WITHOUT CONTRAST: HISTORY: Chronic low back …

    Last reply
  • How to know while waiting for MRI

    Hi there. My advanced Physiotherapist  has referred me for an MRI of lumbar region due to what she suspects is sacral nerve compression and possible Cauda Equina  Meanwhile my GP has found a severe bacterial vaginosis infection and I’m on antibiotics. I’ve never had anything like this …

    Last reply
  • Recovering from CES surgery.

    Eighteen months ago, I was diagnosed and operated on for CES. After the surgery, I have seen some great reliefs. The numbness in my feet have reduced drastically. Numbness in my saddle areas to have gone down. I have regained my erection but noticed that it does not stand for long. I doubt if I can …

    Last reply
  • Recovering from CES

    It's been 18 months after I have gone through the ces surgery. Even though there have been some improvements, I still struggle to urinate and empty my bowels. I have to force to urinate and empty my bowels. I most often suffer from constipation and sometimes will not attend to natures call at …

    Posted
  • Recovering from CES

    It's been 18 months after I have gone through the ces surgery. I can say that I have seen a great improvement over the periods. The numbness has reduced dramatically. I have gotten my erection but can't still stand for long even though I have not attempted having sexual intercourse. I can …

    Posted
  • Worried about Cauda Equina

    I do have significant DDD for my age (32) and also a lumbar herniated disc. I was given my first ESI that same day, the pain increased for a few days, then I was better for a few weeks where the pain was tolerable. About a month later, I had an even worse flare, had to go have another ESI the same …

    Last reply
  • Could I possibly have cauda equina syndrome?

    I have had back problems since childhood. Five years ago at age 53 I had a lumbar laminectomy to relieve severe spinal stenosis. The surgery was successful; my pain evaporated and I had strength in my legs again. Almost a year ago I had gastric bypass surgery to lose the excess weight I blame on …

    Last reply
  • Confussed by possible diagnosis of ces

    Last year on may 30 I had microdiscetomy on L5 S1 where "A large piece of the disc" was removed (I put that in quoates because that was the MDs exact words he didn't understand how I had went almost 7 months before coming to see him. At the begging of April I was helping do some yard …

    Last reply
  • Long term ces

    I've had ces for 16 years I go for cystoscopy yearly check for bladder cancer as I heard long term use of intermittent catheter increases risk ? What annoys me most is the uncomfortable sensation when sitting for any more than 5 mins even on a padded chair and lying in bed on my back. The …

    Last reply
  • My CES Story - 1 week in

    Hi my name is Adam, 34 years old, and have been healthy, fit and strong for all of my life, never broke a bone or had surgery. My career is going great and I've been married to the most amazing women for over 4 years who gave birth to our first child, a beautiful baby boy on 18th November. …

    Last reply
  • Continuing upper back and neck pain 7 months after surgery

    Hi again, first, thanks to everyone who replied to my post last month.  So frustrated. Still dealing with chronic upper back and neck pain, now seven months after surgery for Cauda Equina Syndrome. In February I saw my surgeon and a physiatrist. They both believe that my ongoing back pain is …

    Last reply
  • Cauda Equina - Compacted Blood Vessels

    I have had CES symptoms on and off for a good few years.  Ankle, Leg, repeat UTIs and testicle infections. Has anyone any experience of CES caused by compacted blood vessels? I have had 4/5 normal MRIs which did not show any problem. I have been looking at previous EMG results and found …

    Last reply
  • Still finding it difficult to pass urine and defecate

    It's been ten months after I have undergone surgery for CES. Though the numbness that I experienced in my saddle area and legs have gone down, I still have back pain and also find it difficult to pass urine and to defecate. I am very worried. I need help please. Thanks

    Last reply
  • My experience of Cauda Equina Syndrome

    I thought I'd post about my experience of Cauda Equina Syndrome (CES) in case it's of any use to anyone. I'm a 30-year-old woman. In spring 2010 my lower back suddenly became painful. It didn't get better. Over the summer I tried various things - painkillers, the chiropractor, the …

    Last reply
  • Cauda Equina Slow Onset - Difficult Getting Diagnosis

    I am having difficulty getting a diagnosis when I have all or most of the symptoms of slow onset cauda equina.   ( i.e. Calf weakness and urine retention.These cause a lot of bladder infections and foot problems.   I would like to hear from any other patient's who have had a …

    Last reply
  • Does vomiting mean anything with CES?

    Hi all, For background my story so far is here... https://patient.info/forums/discuss/could-this-be-slow-onset-ces--623935 In short I suspect I have a form of CES. Over the last two weeks there have been 6 or 7 occasions where I've just started vomiting out of nowhere. I have not felt …

    Last reply
  • All the symptoms, no diagnosis

    urinary retention began 13 days ago. Since then have had MRI W/o contrast of brain, and no contrast MRI of thoracic and lumbar spine. I do have mild herniation at L5/S1 but nothing compressing on caudical nerve bundle, I have saddle numbness, feet, pelvic and rectal numbness, I have been self …

    Last reply
  • CES and chronic back pain

    Last August I had emergency surgery for a herniated disc impinging on my spinal cord. I now have Cauda Equina Syndrome and nerve damage causing numbness and weakness to my left leg, buttocks and foot, as well as some weakness and numbness to my right leg. I am lucky that my CES did not leave me …

    Last reply
  • ACDF

    I have just had surgury called acdf c5 c6 c7. They found bone on bone no discs left. I had titiaum spaces put in then plates then a cage. It's 3 weeks today I still have dead arm with intense ache and pins and needs. Arm and right hand. As any one else had this surgury and the problem. I also …

    Last reply
  • Do I have Cauda Equina Syndrome ??

    I am a healthy 19 year old girl but a few months ago I noticed a lump / swelling on my lower back but thought nothing of it. I started getting weird tingly sensations down my legs, feet, and bum at various times and locations. It started off quite rare and within the last 3 weeks has become …

    Last reply
  • New to CES

    Hi all, 24 year old man started having some buttock and back pain in late September 2015 gradually getting worse for a couple of weeks dr’s and physio originally suspected a herniated disc (slipped disc) after mri in February turned out to be a rear form of spinal tumor called a clear cell …

    Last reply
Next

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.