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Cauda Equina Syndrome

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  • Recovery from Cauda Equina Syndrome

    I wanted to share a story of my boyfriends experience with CES because I had never heard of it until he was diagnosed, I searched for information on how he might recover and read so many traumatic stories I was devasted.  I could not find any positive outcomes. For people who might be newly learning...

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  • All the symptoms, no diagnosis

    urinary retention began 13 days ago. Since then have had MRI W/o contrast of brain, and no contrast MRI of thoracic and lumbar spine. I do have mild herniation at L5/S1 but nothing compressing on caudical nerve bundle, I have saddle numbness, feet, pelvic and rectal numbness, I have been self cathing....

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  • CES and chronic back pain

    Last August I had emergency surgery for a herniated disc impinging on my spinal cord. I now have Cauda Equina Syndrome and nerve damage causing numbness and weakness to my left leg, buttocks and foot, as well as some weakness and numbness to my right leg. I am lucky that my CES did not leave me with...

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  • ACDF

    I have just had surgury called acdf c5 c6 c7. They found bone on bone no discs left. I had titiaum spaces put in then plates then a cage. It's 3 weeks today I still have dead arm with intense ache and pins and needs. Arm and right hand. As any one else had this surgury and the problem. I also have...

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  • Do I have Cauda Equina Syndrome ??

    I am a healthy 19 year old girl but a few months ago I noticed a lump / swelling on my lower back but thought nothing of it. I started getting weird tingly sensations down my legs, feet, and bum at various times and locations. It started off quite rare and within the last 3 weeks has become extremely...

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  • New to CES

    Hi all, 24 year old man started having some buttock and back pain in late September 2015 gradually getting worse for a couple of weeks dr’s and physio originally suspected a herniated disc (slipped disc) after mri in February turned out to be a rear form of spinal tumor called a clear cell meningioma!...

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  • Cauda Equina Slow Onset - Difficult Getting Diagnosis

    I am having difficulty getting a diagnosis when I have all or most of the symptoms of slow onset cauda equina.   ( i.e. Calf weakness and urine retention.These cause a lot of bladder infections and foot problems.   I would like to hear from any other patient's who have had a similar...

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  • Caude Equina Slow Onset Testicle Infection

    I wonder if anyone has found themselves in this situation? I have had another testicle infection presumably caused by CES Slow Onset and self catheterising. The infection is not clearing. At the outset, I was given Ciprofloxacin and after 8 weeks my GP wanted me to stop taking it, despite the fact I...

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  • Work related issues any advice or help appreciated

    Hi this is my first time posting. Im currently in the process of returning to work after more than a Year of therapy after emergency surgery for CES. An i am having to do a bunch of paperwork like an accomadations form. Now i realise not very many people with CES have the ability to go back to work im...

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  • Still finding it difficult to pass urine and defecate

    It's been ten months after I have undergone surgery for CES. Though the numbness that I experienced in my saddle area and legs have gone down, I still have back pain and also find it difficult to pass urine and to defecate. I am very worried. I need help please. Thanks

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  • Cauda Equina Slow Onset - Getting A Diagnosis - Which MRI?

    I have all the symptoms cauda equina including calf weakness and numbness, repeated bladder infections and a good few more. The incidents I started as sporadic and now almost everyday. I have found it very difficult to get a diagnosis about what may be causing the problem.  All the MRIs via my GP...

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  • A Test of S1

    I recently did two tests to check for possible impingement of my S1 nerve root after being unable to get a diagnosis. The tests came from Dr Corenman's web site and involved walking 20 feet on tip toe.The idea is to check for lack of calf strength. I managed the twenty feet like someone doing a white...

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  • Could this be slow onset CES?

    Hi all, This could be a long post, please bear with me! I am a 43 year old man that has suffered with back pain for almost 25 years. At first it was mild to moderate lower backache that would last around a week before feeling better. As time went on these episodes became more frequent and of longer...

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  • 1 month post op CES

    Hi folks, My wife had L4-L5 Laminectomy-Disectomy for CES 1 month back in US. Here is the short story- Back pain issues from past 8-9 months. Sciatica started in Dec and 1 week after that doctor prescribed oral steroids. Just 2-3 days after that the CES symptoms(saddle numbness and incontinence) started...

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  • Stay positive...it could always be worse

    This is my first post and I am little more than 3 weeks removed from an emergency bilateral hemilaminectomy of L5-S1. I was extremely lucky as my local ER recognized immediately I was presenting with CES and I was operated on within 24 hours of the onset of saddle numbness and inability to clear my...

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  • There's always hope

    Hey I'm an 18 year old who severely hurt my back at the gym. After letting sciatica live within me for months and just brushing it off I pushed it over the edge and got CES. I went to the ER And they sent me home with teradol and told me to tough it out. Went back to my family doctor 3 or 4 days...

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  • Does vomiting mean anything with CES?

    Hi all, For background my story so far is here... https://patient.info/forums/discuss/could-this-be-slow-onset-ces--623935 In short I suspect I have a form of CES. Over the last two weeks there have been 6 or 7 occasions where I've just started vomiting out of nowhere. I have not felt ill...

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  • Cauda Equina: My Experience

    So, before I get started I have to say I write this with a measure of guilt. Many people here have heart-rending stories and trust me I feel for all of you. But, compared to many stories I seem to have fewer symptoms. I went back and forth about writing my story and it took a great deal of convincing...

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  • My cord equina story 6 weeks post op

    Hi I'm 33 and had back problems for 10 years I had a diskectomy in 2014 then in September I went to my local A&E and they sent me away saying I needed to see my specialists they couldn't help me when I was complaining of severe pain in legs and back . I waited three weeks to see my surgeon...

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  • My experience of Cauda Equina Syndrome

    I thought I'd post about my experience of Cauda Equina Syndrome (CES) in case it's of any use to anyone. I'm a 30-year-old woman. In spring 2010 my lower back suddenly became painful. It didn't get better. Over the summer I tried various things - painkillers, the chiropractor, the gym,...

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  • I was tested for Ces but the doctor has ruled it out

    on Tuesday this week I went to my doctor after experiencing numbness in my right buttock and having difficulty urinating and having constipation for three days. I also had lower back pain. I had an MRI done and it showed significant prolapse of the L4/L5 disc which is intending the thecal sac. I am deeply...

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  • MRI and CES

    Hello everyone, This is a question about imaging and CES which I hope someone can help me with. I had a private MRI which showed compression at L4/L5.  At this stage I had some CES symptoms but not that serious.  Two days later I had a catastrophic collapse with the most intense pain and...

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  • Depressed after 12 months of constant pain .

    I had surgery 18 months ago on a herniated disc which was causing ces, after my op I felt so much better everything went back to normal. But 6 months down the line the pain returned now I'm in constant pain, I walk with a limp, and I'm fed up with being fobbed off with more pain relief that isn't...

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  • When a catheter is needed

    I was recently diagnosed with cauda equina syndrome and had surgery to relieve pressure. Now I'm in recover. I'm generally holding 80-180ml in my bladder and they want me under 100 or else they want to put a catheter in me. I feel this is a but aggressive and can do more harm than good. Just...

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  • Medical Negligence

    If you have red flag symptoms of Cauda Equina Syndrome (CES) such as bilateral leg numbness with pins & needles; numbness in the 'saddle' area and problems with bladder or bowel then I would expect you to be referred for an emergency MRI and if you are diagnosed with CES I would expect you...

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  • Symptoms of Cauda Equina Syndrome but no firm diagnosis?

    Hi everyone I am currently in a frustrating, not to mention worrying situation with regard to my condition at present. This seems like a really helpful community so I'm glad that I have stumbled across it. To get the full story across, this post will no doubt be a tad lengthy, but I will try and...

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  • CES and anaemia.

    Hello all, I wondered if anyone had been diagnosed with anaemia (I am told my score was 10.2) following CES? I had a CES episode 1 year ago, had two operations and 4 months n hospital.  All the usual CES stuff of course, but anaemia?  I am scheduled to have the necessary tests for colorectal...

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  • Ces

    Still in pain no power in my legs another scan they said it was ok but my anal exam I felt hardly anything. They say I've got nerve root inflammation but when I was diagnosed and finally rushed to hospital I had been left three days before with one of the red flags as my brain wasn't teĺing me...

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  • Pregnancy after cauda equina

    I was diagnosed with cauda equina almost 2 years ago and was rushed in for emergency surgery. I can no longer feel most of my feet, up the backs of my legs, most of my butt and my lady parts are completely numb. I can't use the bathroom normal anymore because the muscles don't work. I just found...

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  • Recovery

    i had injections in my spine 3 weeks ago and pain has eased. I also reduced lyrica from 600 to 3oo daily and amnetryptyline from 30 to 20 ,. I'm moving better and praying that I can retain what I got. Never ever give up ,

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