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Hi guys just wanted to share my story with you all. Around 3 years ago I developed severe lower back pain that was the result of a manual lifting job I had at the time. Over a year the symptoms got worse and caused severe nerve pain in my right leg which my GP diagnosed as sciatica. I was at my gp most months asking for stronger pain meds as the pain was nearly unbearable. Around 2 years ago I remember it was a Friday and I made an emergency appointment to see my GP as the pain was so bad and I was struggling to walk more than a few meters at a time without stopping. At my appointment my GP didn’t examine me although I told him that I had a strange feeling in my testicles and they felt numb. He said he would give me stronger pain meds and refer me to the hospital to get a mri scan but the wait would be a few months.
The next morning I awoke to find that my legs, feet, anus, penis and testicles were all numb. Not knowing much about medical conditions I tried to carry on as normal until I mentioned my symptoms to my brother who is a paramedic. He told me that my symptoms were very serious and that it sounded like QE. This was the first time I had heard of it. My parents picked me up and rushed me to the Hospital. Within an hour I had had an MRI scan and the doctor confirmed Qauda Equina syndrome. I was told that I would need emergency surgery there and then and was put into an ambulance and rushed to Cardiff hospital where the a surgeon was waiting to do the surgery. The surgery took 3 hours and I remember waking up very sore but the extreme nerve pain had gone. I stayed in hospital nearly 10 days as I was retaining urine so eventually left with catheters so that I could relieve myself.
After leaving hospital I found myself walking with a limp which I worked hard to try and stop. I had no bowel problems but would self catheter 3 times a day to stop any UTI’s occurring.
Other than the normally lower back pain the nerve pain had gone.
It’s roughly two years now since my operation and I now have most of the feeling back in my saddle area and no longer need to use a catheter. I can also get a normal erection and ejaculate normally. My limp has gone although I still find myself limping when I’m tired as I have slight foot drop in my left foot.
My biggest concerns at present are the muscle wastage in my left calf and foot. The instep of my left foot has gone very high and my foot looks withered?
I have also developed severe muscle cramps in both calf’s and feet especially at night? My feet and toes will contorted and the pain is unreal. I often have to dive out of bed. Has anyone else experienced this? I was just wondering if this is a normal symptom after cauda equina? And if there is any medication that could help?
I forgot to say that I was 33 having the surgery and I’m now 35. I do feel very lucky as I know that there are a lot of people that don’t make such good recoveries. Any help or advice would be greatly appreciative
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