Pregnancy after Cauda Equina Syndrome

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Hi there,

I was diagnosed with CES in December 2012, aged 22. After having surgery at L5/S1 level i was left with no feeling in my saddle area which still stands today. I am now nearly 4 months pregnant with my first child and am just curious as to how my back will cope as i get bigger. Is there anyone who has had a similar experience to mine who could give me an idea?

Many Thanks

Natasha

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  • Posted

    I'm 2 and a half years post op and have absolutely no feeling in my saddle area and I am now 7 and a half months pregnant. I did pretty good until the last week and it's really starting to get harder. My back stiffens up and getting out of bed in the morning isn't easy. But I have a pretty high tolerance to pain so i deal pretty well. I don't have much feeling in the bottom of my feet or legs and neuropathy and severe muscle weakness so so far my legs have been my biggest problem. I'm going to a specialist in 2 weeks to figure out how we are going to deliver. Since I have to push to pee I don't think natural birth will be my best option. You have to make sure your doctor understands the severity of your condition because it took me 3 obs to find one who understood because his wife has back problems... Cuada equina isn't very common so a lot of doctors are somewhat ignorant to what we go thru

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    • Posted

      i am currently 2 months and i an curious as to what kind of birth u had to have, i am also worried that my symptoms will get worse after labor. can u let me know how ur experience was

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  • Posted

    I made a post about this with my story and have some on a few other comments to people. ( so rather then repeat alot of my back story check my comments and posts out ) but i will just tell you I haven't gotten the surgery and I have 6 weeks left to my 3rd pregnancy( im37) which the herniations and the cauda equina feel worse. I've had epidurals.with my other children before things got to this point but I'm soon planning to meet with an anastethiaologist to discuss what options i have etc..when i give birth. I would talk to your ob for referrals to see what options youmight have ( epidurals are long needle that's injected into the mid lower spine and numbs you similar to cauda but you feel the pressure of birth or when you need to pee and you aren't allowed out of bed. However for people like us that have or have had c.e i personally wouldnt do it and on my post a comment from someone who did have the surgery couldn't get an epidural anyway because they told her she had scar tissue and couldn't do it , she also needed a c. Section for delivery . No one since i found out i was pregnant could give answers of if things would be better or worse in my case and I've been seen by alot of people however a neurologist was surprised I've lasted this long w/o surgery . I'd defiantly keep talking to your ob office to find out who you can see to gets options, opinions etc... And have a rough idea of ways to handle your situation

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  • Posted

    Hello Natasha,

    In May 2015 I had a Lumbar Laminectomy and in November 2015 a Spine Fusion, which it was a total success. By February 2016 I was pregnant with my first baby and didn't experience any discomfort other than the normal ache once I reached my 7th month. My Dr was a little concerned about the delivery and that was also successful, nothing other than what it was expected.

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  • Posted

    I have CES Slow Onset and never had an operation. My experience with nerve impingement @ S1 is anything can happen. It seems to defy the laws of physics. I can carry a heavy weight - no problem at all which you will be pleased to hear.

    What I have found is that if I walk over a hard surface with hard soled shoes, every possible symptom gets much worse - calf, bladder etc. The solution is simple. Get very soft 6 mm poron inner soles from a podiatrist, they work wonders.

    I think it probably works because the soles act as a form of suspension that reduces pressure on the lower back while walking and therefore reduces nerve impingement.

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  • Posted

    thank u for starting this discussion i was looking everywhere for information and i could only find people who got ces from pregnancy not the other way around and i am currently 2 months and trying to weigh my options on whats the best route to take to not have to be bed ridden or more symptomatic after birth

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