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In August 2017 I had emergency surgery for a herniated disc that impinged on the L3 region of my spinal cord resulting in Cauda Equina Syndrome (CES). Almost two years later my recovery has been, for the most part, pretty good. I went from total paralysis of my lower body before and for two weeks after surgery, to two months with a walker, another month with walking sticks and then no supports. I had about five months of back spasms and pain from December 2017 to late April 2018, but now my back is okay. I am left with numbness and weakness on my lower left side, while my right side has healed almost completely.
However, since last November I have been dealing with chronic foot pain in my left foot, which is the side that is still most affected by the CES. The pain started when I began walking more to try and burn off steam and sleep better. The pain started on the front of my ankle, where the foot meets the leg, but over time I have also been getting a strange "full" sensation and pressure on the mid-top of my left foot, as well as a tugging sensation between my toes (as if the tendons are being pulled back), and sometimes a feeling like something is gripping hard around the ankles on my left foot and also a burning sensation in my outer and front shins on my left leg. All of this is at times quite painful and possible because of the CES nerve damage, kind of tingly feeling.
This isn't what I would call spasticity, though it does feel like the muscles and tendons are tight and won't turn off.
I bought new orthotics and newer support shoes back in December, have seen physiotherapists for the last five months and had two XRays and I've just seen and ankle and foot specialist. The XRays showed mild osteoarthritis in the big toe (I'm 57, so not surprised), but no fractures or bone spurs. The physiotherapists and specialist haven't really provided a clear diagnosis or workable treatment the pain (just continue doing physio...lol) and none of the health professionals seem to understand or want to take into account that CES is contributing to the pain.
It's frustrating. Has anyone else experienced similar foot pain. Any treatment that worked?
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