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Hey im 27 i have AS with grade 4 si joint disfuntion. The bottom of my lumber spine from s1 to l5 is completely calcified. I have 3 buldging discs a herniated disc and degenerative disc disease. I also cant feel the left side of my body and sometimes the inflammation in my eyes makes me go blind. I have been in hospital 6 times this year for extreme pain .
Its sad when your writing a list of your problems when you have to stop and think did i forget anything?
With all this i am normally a very happy outgoing person bursting with posotive vibes even when the pain is unbearable but the last month as i have been weaning off the steroids i have become a vegtable and no amount of stretching or posotive vibes gives me any releif. I dont want to up the steroids as i put on 20kg in a few months mainly fluid but im only 5'2 it destroyed me.
Im writing this because i feel like when i go to the doctors they are not realistic in their expectations of me.
No one is a harder critic then i am i dont beleive in quiting but thats just it when i write out everything thats wrong with me and i see some people cant even move from.one slip discs i think well s**t like maybe im not a failure maybe this is just what it is.
I dont know what my point is im kind of high on painkillers but im just sick of feeling isolated and having no one to talk to that understands.
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