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Ankylosing Spondylitis

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  • To take Humira or not

    I got diagnosed with AS about 4 years ago, I'm 56 now. I've been extremely stiff for years and had bouts of debilitating back pain/sciatica in my early 30s, but was never diagnosed. I was seeing a Physiotherapist for a few years and she said there is something seriously wrong with your body....

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  • I'm a hypochondriac with AS

    Hi, I'm from Croatia and I've been diagnosed with AS when I was 11 years old, I've been through a lot, we've all been. But, right now I show no symptoms, 3-4 years ago I was on a medicine called "remicade" and that basically "cured" me. I have had no symptoms ever...

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  • Advise regarding Benepali Pen and AS

    Need some advise - My fiancee is 35 years old and a farmer.  Has been diagnosed with AS and has been on the Benepali injection for 5 weeks.  His symptoms of tireness and fagitue has got a lot worse over the past 2 weeks.  Is this normal on the injection and it is supposed to...

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  • SI pain

    does AS always have SI involvement?  So someone that has no x-ray evidence does not have AS?  59 yo female At this age Rheumatologist says if I have AS, this joint would be fused.  "Minimal degenerative changes" Everything else is positive for AS, just no SI involvement.  Thoughts?

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  • My new research on our troubles!!!Its helps!!!

    Hi my name is Vlad was diagnosed in 2015,was granted Humira,but no medication has been taken for a 2 years now,on a beginning was on naproxen for 4 month,my stomach was destroyed.All that time I did fastings,no starch diet,then fruit diet.And all that time every evening I was searching,searching,searching,and...

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  • Do you think this is ankylosing spondylitis?

    Hi I've been getting more and more problems with my body the last months. It all started in April when I got diagnosed with a herniated disc in the neck. The herniated disc is probably because a heavy crash with my snowboard some time ago. After I got that diagnose I have been extremely worried...

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  • In constant pain gradually pain is getting worse what can I do

    Hi I am new on this site I was diagnosed with osteoarthritis of the spine and sciatica last year. I have recently also been diagnosed with with spondylitis at the top of my spine I feel constantly tired headaches at the back of my head. Pain I left leg foot and toes due to the sciatica. I am not sure...

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  • Partner recently diagnosed. Looking for advice

    Hey guys, my life partner has recently been diagnosed with Spondylitis. Hes very down, and often talks of suicicde. Hes just turned 34.Ive tried to press him on details but it often brings him down so we tend to avoid the subject. What i do know is that exercise helps with pain as does a low carb diet....

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  • Rock bottom

    I have had 2 failed operations lost the feeling in my right foot, you have to learn to live with the pain cause there is nothing else apart from tablets to help me. 3 years ago i was told there was nothing else they could do, 2 years ago they took my mobility car away from me and today I admit I have...

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  • Newly Diagnosed with AS, questions on activities?

    First, I would like to say this is a fantastic community. I have read through many posts and comments and have seen nothing but compassionate and helpful people. Keep it up everyone! I just wanted to share that I have recently been diagnosed with AS, it took many months of scans, tests and blood draws...

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  • Muscle Spasm in my side

    I am not sure if this is AS related, but I suspect it is. I did some housework at the WE and now I am in agony if I move, with a severe spasm on my right side of my back about 1/2 way up. It is also uncomfortable in the same place if I breathe deeply but that isn't a spasm. AS? ps How do you search...

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  • Help! :(

    Diagnosed with AS at the age of 17 (23 now) normally I get by okay with just my muscle relaxers and naproxen and codiene etc. However just over a week ago I woke up with the most excruciating pain behind my shoulder blades, I can't drive, do my job (I'm a nanny) or stop crying! It's wearing...

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  • Ankylosing Spondylitis HLA B27 Negative

    My experience in the UK is that, if you have AS but test negative for B27 you will almost certainly not be diagnosed; no GP will take you seriously and even if the X-Rays show positive fusion of the sacroiliac after years of sacroiliitis, and you have related symptoms (e.g. spinal fusion, costochondritis,...

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  • Inactivity is detrimental

    Inactivity can be the enemy of Ankylosing Spondylitis. Get off the couch and get moving. Unlike typical back pain, the pain of AS improves with activity. - AS1 Facebook Page Anyone disagree?

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  • V.L V.L
  • Morphine and ankylosing spondylitus

    Hi all So I've been diagnosed with a.s for 15 years I've done to many nsaid anti inflammatory s pain killers etc. I've been told by my rhumi that there's nothing else to be done.so I'm currently on nambumatone (anti inflammatory) and morphine.at my yearly check up I explained...

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  • Feels like I have run a race

    Does anyone else have it where your legs/knees feel like you have done excess excercise the day before? My knees ache like hell and my legs feel like the muscles have run a half marathon (OK maybe 7 miles) the day before, when all I have done is take the dog for a gentle walk. By the way my chest/middle...

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  • Axial Spondyloarthropy

    Hi my rheumatologist suspect I have spondyloarthropy due to lower back pain and elevated esr levels. Sometimes i wake up with extreme pain that i cannot move - this happened on holiday and the pain woke me up. I get general aches and pain all over my body but I usually get lower back pain that sometimes...

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  • I need guidance...

    Hello, I have not formally been diagnosed with AS, however a rhuematologist told me several years ago, it was possible. All the biologics did not work for me.  I continue to get worse with pain and stiffness all throughout my body. I have Graves Disease but had the radioative iodine to shut down...

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  • Isolated

    Hi I am 28 years old. I was diagnose with ankolosing spondylitis when I was 20. I take humira but still suffer with neck greatly sometimes it a struggle to swallow. I also had both hips replaced totally in the last three yeArs. I was just woundering does anyone else feel isolated and can t do the normal...

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  • Phrenic Nerve issues with AS?

    Anyone have breathing issues with AS? I've got worsenning breathing  over the last few months. The chest x-rays show partial eventration of the right hemi-diapgram. In other words the diaphram is collapsing my lung(s). Reading up on this it says that this can be caused by damagae to the Phrenic...

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  • Chiropractic good for AS?

    Hi, I have lower back pain since 2014 especially morning . This have made me waking up more earlier and couldn't sleep back. My MRI result showed disc degeneration and tarlov cyst. At that time, I was not aware of AS. But now the pain radiate to neck, chest, wrist, knee slowly. My latest MRI showed...

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  • Jogging with AS

    Hello everyone and thanks for letting me join your nice forum I have had AS for several years now, a bit of a curvy spine but now on Humira which is amazing, I am still active (touch wood) and due to the Humira pain free. I like to road cycle for fitness but I feel its getting a bit dangerous and...

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  • MRI Scan - bad reaction?

    Has anyone suffered a bad reaction following a spinal MRI scan? I suffered (and am suffering) terrible muscle pain and muscle weakness following an MRI scan one month ago. My scan was standard (i.e. without a contrast dye being injected into the blood - I know the dye sometimes causes problems) and...

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  • Cosentyx miracle drug?

    I have AS and been on Enbrel with great success for many years. During some flare ups I was switched to other biologists but always came back to Enbrel. A couple of years ago I started to get a lot of pain and inflammation in my feet that would only go away with a step down treatment of a very high dose...

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  • AS, severe lower back pain, leg pain, New member

    Hello everyone that has pain issues. ​I will say first that I never gave people that said they had back pain sympathy. I guess it serves me right that I would now be dealing with it. ​I have been diagnosed with AS, l4-l5 herniation. I have had one surgery that didnt help relieve the pain. It seems like...

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  • AS and Fatigue

    I have had AS for a long time now, 20 years+, and was diagnosed 12 years ago. Since then I have just been prescribed CoCodamol and Dicloflenac for when the pain is really bad. However I try not to take them regularly as I do not want to become addicted or succumb to any of the other side effects. Also...

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  • Ankylosing spondilitys

    Hello guys from a 23 old male. I am depressed in the last two weeks since i dont know whats wrong with me. I have pain in my right wrist and in the heels more specifically near the toes. At night and in the mornings its very bad as i am not able to walk properly. I dont have any back pain for now at...

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  • No evidence of SI joints fusing but lots of pain

    So I've been undergoing diagnosis for AS for over two years now. I went for an MRI over a year ago and was told I had 'shiny bones' in my back, from how this was explained it means my bones are growing. I am in alot of pain, some days are better then others but I am never pain free. I am...

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  • Ankylosing Spondylitis progression

    When I have a flare the pain in my SJ, lower back and nowadays ribs & upper back.  But when not it a flare the stiffness and pain is more often than not in my ribs & upper back rather than my lower back & SJ (Though those are stiff/painful in the morning or after driving for some time)....

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  • SWOLLEN KNEES FOR ALMOST 10 MONTHS Ankylosing Spondylitis

    Just stopping in for some feedback on Cortisone shots in my knees . Since being diagnosed the majority of the pain is in my knees and SI joints as well as some stifness of my neck in the mornings.The stiffness has responded WONDEFULLY to the NSAIDS.but the SI and knees joints pain are a different...

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