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Ankylosing Spondylitis

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  • I defeated AS

    I defeated ankylosing spondilit with mayr diet. I an I am not using medicines about 3 months. I'm fine, happy three months. I used medicines salazopyrin, endol over ten years. Last year i used humira. No gluten(bread, pasta, cake, etc.), no sugar(honey, fruit, sweet, etc. Forbidden) at meals. …

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  • Diagnosis help needed

    Could any one please help with some advice please. I am 38 and have had pain in my joint pretty much all my life (told it was growing pains) I have had investigations for RA in the past as I test positive for rheumatoid factor and CRP and ESR are both raised. I have recently had back MRI and …

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  • Helping my Partner

    Hi everyone. Firstly, pardon my ignorance on all issues AS. I'm rather new to this. I'm in a relatively new relationship with a woman who has recently been diagnosed with AS. She's been perfectly open about it, and we've discussed the illness in depth. She's a positive, …

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  • Can't stand the pain much longer

    Hi. I am new to this forum I am 68 but started spondylitis when I was about 4/5yrs and got worse over the years and now I have it severe in L1 to L5 in my spine which is inoperable and even physiotherapist say they can't help me as it is so bad I am now completely disabled and while the …

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  • New MRI of the Spine

    I had a new MRI of the spine, as I'm on my fourth Rheum because the Humira does not help me. He was thinking DISH and not AS because my 3rd gene test came back negative. But the MRI says it's AS. More importantly the MRI says my SPINE is MUCH worse (WooHoo) and it talks about anterior …

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  • MRI Scan - bad reaction?

    Has anyone suffered a bad reaction following a spinal MRI scan? I suffered (and am suffering) terrible muscle pain and muscle weakness following an MRI scan one month ago. My scan was standard (i.e. without a contrast dye being injected into the blood - I know the dye sometimes causes problems) …

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  • My mom is in severe pain

    Hi, My mom, 70, is suffering from Ankylosing spondylitis since 5 years. She is in a lot of pain. After MRI, we came to know that her 6 vertebraes are effected. The doctor has suggested operation but because of her age, we are not going for an operation. She is diabetic and has high blood pressure. …

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  • Tips for Daily Living with Ankylosing Spondylitis

    I'm 23 years old and just got diagnosed with AS in March of this year. It took years to reach this diagnosis and is taking a long time for my medication to be approved by Public Health. I was just wondering if anyone has any tips for managing daily pain. I commute for 2 hours each day and have …

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  • Diagnosed Ankylosing Spondylitis:Very bad condition

    I am 29 yr old girl, i used to have lower back pain since 7 years but recently i got to know from reumotologist that i have ankylosing spondylitis.I am bed rest and could not walk . I went to chiropractor, accupucture, physiotherapist but nothing works for me.i am on medication -diclo eapide50mg …

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  • Cant relax at night

    Does anyone else at night find it hard to relax! Everytime I relax my back it feels like it goes stiff and follows round to my ribs at the front if that makes sense like it's harder to breathe and my front is being sucked in

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  • Blurred Vision (Temporary - hours)

    Anyone else wake up sometimes to really blurred vision? It is really difficult to type this at the moment as I really cannot read the screen well at all. Occasionally, though it seems more frequently now, i wake up with really blurred vision, especially in my right eye. Over hours it …

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  • Ankylosing spondylitis and sun

    I was diagnosed with As for 2.5 years ago. I'm on biologics. Today we've been in the beach the whole day. Now my knee hurts really bad, I can't hardly walk. Does anyone of you with as recognize this? Is it common that as is more problematic during the summer?

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  • AS and other immune disorders.

    Curious what other immune problems having. I have AS along with mixed connective disease, Raynauds disease, secondary adrenal insuffiency and COPD. Get Iritis every couple months. Just had melanoma Lasered off 3 months ago. Is this the norm with AS? Had AS since 26, now 62.

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  • Chest stiffness

    Hi, I have just been diagnosed with AS after having had an MRI. The scan didn't show any active inflammation but showed there had been some in the right SI joint with some osteoporosis on the thoracolumbar area of the spine. Today the doctor at the hospital did some different measurements and …

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  • AS HLAB27 plus inflamation

    Since 24 years old i was diagnosed with AS severe uveitis inflammation corticosteroids was given back them in the 80 s enormous pain eventually i have to replace both eye lenses for cataracts as the use of steroid drops cause it , in 2012 i was introduce to ENBREL 50 by the reumatologist the …

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  • Ankyloseing spindylitis

    I have been diagnosed with as waiting for both hips to be replaced my ankles knees wrist shoulders and spine are all affected by it no matter what I take doesn't seem to work I am taking sulferfusane 500 mil 2twice a day and 10 mil of pregnisone did try methetrexsate was no good any ideas how …

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  • Ankylosing Spondylitis and lung disease?

    I am certain I have Ankylosing Spondylitis that has just not been co firmed yet with MRI. I am HLA B27 positive and have had SI joint pain for many years and also anterior uveitis. X-ray does not show SI inflammation so I will have MRI soon. I was recently diagnosed with emphysema and am a non …

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  • Side effects from Cosentyx anyone?

    Hi, I've been taking Cosentyx for 3 months with great results in joint mobility and decreased pain which should make me super happy but for some reason I feel a bit down. I am not sure if it is just the stress in my life at the moment or if it is the medication since I have had the same …

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  • HLAB27

    I been sick after stop my medication but I restart and this work fast Enbrel work very fast 

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  • New diagnosis of AS

    I have just been put on a 3month trial of Humira after being on steroids for nearly 2 years for what they thought was PMR (I could still have both). What I want to ask is how quickly will I know if this is working or not. Have those that take this drug found a huge difference in how they feel on a …

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  • My doctors don’t seem to care. I need advice.

    My name is Courtney and I’m 22 years old. I’ve been dealing with lower back and hip pain for about 5 years now and it’s been getting progressively worse. I’m not exaggerating when I say that I’m in pain every single day. I’m convinced that I have Ankylosing Spondylitis but none of my testing shows …

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  • Tingling sensation in hands

    I've been diagnosed with AS for over two years now. I'm on Naproxen at the moment. I've had pain on my lower back, hips, heals, shoulders, neck,right leg. Stiffness in my middle back area. Recently I have tingling and numb sensation in my left hand (mainly but sometimes both), also my …

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  • Tooth abscess.

    I have been in hospital for two weeks having a wisdom tooth removed due to an abscess which had infected my ear canal, throat, eye socket and adjacent teeth. They operated to remove the tooth but they didn't get all the infected tissue so they had to operate again. I put it in writing that I …

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  • Years and Years

    May be a long story, I injured my back at 23 and about  a month after I developed Iritis. Over they years my lower back and upper spine had stiffened up considerably. I am now a 58 year old male. During physicals my doctor would tell me my mobility in both my neck and lower spine was horrible, …

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  • I have feelings too

    Does anyone ever get sad about their AS? I’m 35 with no children, no way I can have one in the condition I’m in I don’t even think I could carry one with my back/neck/hip problems.  I’m also sad about the things I can no longer do that my friends can or what ever.  I’m going to see a …

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  • "Mechanical pain"

    Hi everyone, I've been reading your posts and found them very helpful. It's thanks to the power of Google that I started suspecting AS might be exactly what I have. However! Like some people here, that's not what the rheumatologist thought today. I should be ecstatic that he believes I …

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  • HLA B27, MRI and Ankylosing Spondylitis

    My Son had a recent MRI and no-one has explained the findings with us, as yet - We're mainly going off a brief report written by a Rheumatologist. If anyone could help with the following, I'd be extremely grateful: "Some changes in lower part of Sacroiliac Joint on both sides, but …

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  • Newly diagnosed with ankylosing spondylitis

    Hi all,  Sorry this will be a long first post,but I think it's important to get the whole story out there to get your full feedback. I guess I should start by saying I'm a 26 year old man.  Back in December 2016 I began having an issue with constant dizziness and issues with my …

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  • Type of Pain Comparison for AS?

    Hi. I was unofficially diagnosed with AS by my gp but he sent me to the specialist to get it confirmed and I've been sent home twice now with nothing but "you don't fit the criteria" and "don't let the pain stop you live your life".  I believe it's because I …

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