Skip to content

Ankylosing Spondylitis

All discussions in this group

Next
  • Ankyloseing spindylitis

    I have been diagnosed with as waiting for both hips to be replaced my ankles knees wrist shoulders and spine are all affected by it no matter what I take doesn't seem to work I am taking sulferfusane 500 mil 2twice a day and 10 mil of pregnisone did try methetrexsate was no good any ideas how to...

    Posted
  • Diet

    I was diagnosed in January with AS. I had back and hip pain for years and it was so good to figure out what it was. Just letting everyone know that I changed my diet to an “auto immune protocol diet”. It sometimes too hard to follow but I’m doing it about 80/20 and it’s been tremendous for me. It’s...

    Last reply
  • My doctors don’t seem to care. I need advice.

    My name is Courtney and I’m 22 years old. I’ve been dealing with lower back and hip pain for about 5 years now and it’s been getting progressively worse. I’m not exaggerating when I say that I’m in pain every single day. I’m convinced that I have Ankylosing Spondylitis but none of my testing shows inflammation....

    Last reply
  • Tingling sensation in hands

    I've been diagnosed with AS for over two years now. I'm on Naproxen at the moment. I've had pain on my lower back, hips, heals, shoulders, neck,right leg. Stiffness in my middle back area. Recently I have tingling and numb sensation in my left hand (mainly but sometimes both), also my fingers....

    Last reply
  • MRI Scan - bad reaction?

    Has anyone suffered a bad reaction following a spinal MRI scan? I suffered (and am suffering) terrible muscle pain and muscle weakness following an MRI scan one month ago. My scan was standard (i.e. without a contrast dye being injected into the blood - I know the dye sometimes causes problems) and...

    Last reply
  • Tooth abscess.

    I have been in hospital for two weeks having a wisdom tooth removed due to an abscess which had infected my ear canal, throat, eye socket and adjacent teeth. They operated to remove the tooth but they didn't get all the infected tissue so they had to operate again. I put it in writing that I had...

    Last reply
  • Years and Years

    May be a long story, I injured my back at 23 and about  a month after I developed Iritis. Over they years my lower back and upper spine had stiffened up considerably. I am now a 58 year old male. During physicals my doctor would tell me my mobility in both my neck and lower spine was horrible, 30%...

    Last reply
  • I have feelings too

    Does anyone ever get sad about their AS? I’m 35 with no children, no way I can have one in the condition I’m in I don’t even think I could carry one with my back/neck/hip problems.  I’m also sad about the things I can no longer do that my friends can or what ever.  I’m going to see a therapist...

    Last reply
  • New diagnosis of AS

    I have just been put on a 3month trial of Humira after being on steroids for nearly 2 years for what they thought was PMR (I could still have both). What I want to ask is how quickly will I know if this is working or not. Have those that take this drug found a huge difference in how they feel on a day...

    Last reply
  • "Mechanical pain"

    Hi everyone, I've been reading your posts and found them very helpful. It's thanks to the power of Google that I started suspecting AS might be exactly what I have. However! Like some people here, that's not what the rheumatologist thought today. I should be ecstatic that he believes I have...

    Last reply
  • HLA B27, MRI and Ankylosing Spondylitis

    My Son had a recent MRI and no-one has explained the findings with us, as yet - We're mainly going off a brief report written by a Rheumatologist. If anyone could help with the following, I'd be extremely grateful: "Some changes in lower part of Sacroiliac Joint on both sides, but this...

    Last reply
  • Newly diagnosed with ankylosing spondylitis

    Hi all,  Sorry this will be a long first post,but I think it's important to get the whole story out there to get your full feedback. I guess I should start by saying I'm a 26 year old man.  Back in December 2016 I began having an issue with constant dizziness and issues with my balance....

    Last reply
  • Type of Pain Comparison for AS?

    Hi. I was unofficially diagnosed with AS by my gp but he sent me to the specialist to get it confirmed and I've been sent home twice now with nothing but "you don't fit the criteria" and "don't let the pain stop you live your life".  I believe it's because I don't...

    Last reply
  • Cosentyx miracle drug?

    I have AS and been on Enbrel with great success for many years. During some flare ups I was switched to other biologists but always came back to Enbrel. A couple of years ago I started to get a lot of pain and inflammation in my feet that would only go away with a step down treatment of a very high dose...

    Last reply
  • Lump on clavicle

    Hi, I have Ankylosing Spondylitis and recently noticed a lump on my clavicle.  I thought it was a glad but it has gotten bigger.i know autoimmune diseases can do all kinds of fun stuff to the body.  Has anyone with AS ever experienced anything like this? I went to the Dr and she referred my...

    Last reply
  • I feel worried

    I'm a 42 year old female married with 4 kids. My doctor tested me a couple of years ago an it came back positive for it. An recently been having neck pains an shoulder pain. My dad has it an he found out 6 years ago. What should I do

    Last reply
  • MRI on a good day?

    Hi. I've been getting lower back and hip pain on and off for a couple of years now. For the last few months it's been getting worse and waking me up in the very early morning, I can't turn over and am very stiff. As soon as I get up, it eases off and I maybe get a little pain during the day...

    Last reply
  • Benepali

    Hi guys. I've been on Benepali now for around 8 months. It has worked great for me and it's all I take apart from regular paracetamol. However I have noticed my joints seem to be sore. Especially my knees and elbows and the paracetamol doesnt really seem to touch it. It's funny cos these...

    Last reply
  • Consentyx feedback please

    Hi, I have recently been diagnosed with AS after suffering with RA for 17 years. Would say I am chronic at the moment with back, hips and right heel.  so tired I just want to lie down and sleep but I know that's probably the worst thing I could do!! Due to start Cosentyx next week but concerned...

    Last reply
  • Ankylosing spondylitis - Humira

    Hi, I was diagnosed with Ankylosing spondylitis and Doctor advised me to take Humira which I have taken for 3 months. Then when I had my MRI the inflammation was reduced by 50%. Therefore Doctor asked me to continue this for another 6 months so it will go away. I need to know after this if I can stop...

    Last reply
  • I recently injured my mid back between the shoulders

    I was doing some work under the sink in late February. The pressure of lying on my back left me in considerable pain and I was bed ridden for a few days. I had some Percocet left from an old injury, which kept me mobile until my doctor returned from vacation. I had an x-ray done, which did not show...

    Posted
  • Re; Ankylosing Spondylitis

    hi. I have been diagnosed with Ankylosing Spondylitis in the last 6 years. And I am on These medicines; Meloxican Omeprazole 20 mg, Sulazine EC, Sulfasalazine, Now they want to proscribed  new medicin called Golimumab ! I  have not had much pain for the last 5 month as I used to get...

    Last reply
  • Heel pain and Achilles tendon pain because of AS

    I just got diagnosed with AS after long time treatment (2 years) of heel pain and Achilles tendon pain with no relief. I got HLAB27 positive and doctor ask to take NSAID (Arcoxia 60mg) daily and Salazopyrine + Metroxate. I started to take medicines for one month and still have lot of pain if stop taking...

    Last reply
  • Weird feeling in spine

    Hi all, I was diagnosed with AS in July. My bloods were negative for the HLA but AS showed up in my MRI. I also have disk herniation C5/6.   My symptoms are as with AS.. back pain early hours in the morning, through to morning so affects my sleep etc. In the last few weeks I have been getting...

    Last reply
  • Recently diagnosed and worried about the future

    Hi I’m 19 and I’ve recently been diagnosed with AS. I was heartbroken but not as scared because my mother and grandmother have AS.  However I’m worried about what the future might hold for me. I’ve already had to change my job because of it and I’ve had a real struggle with my depression. The doctors...

    Last reply
  • Cbd oil

    A friend suggested I try cbd oil for pain relief. Having suffered from AS for 30 years and really struggling now im giving it a try. Doesnt seem to be making any difference. Anyone tried it.

    Last reply
  • Ruptured quadriceps tendon surgery

    Hello, I ruptured my quadriceps tendon 10 months ago. I had surgery to repair the tendon. Had the surgery 10 days after the Diagnosis. My question is how important is getting the surgery as soon as possible for the quadriceps tendon? My knee won't bend that well and was told that it could be caused...

    Last reply
  • Anybody been on Cosentyx ?

    And if so, plase supply some feedback. Also, is it true that remecade is the choice of drug for AS patients? I was on humera for a short spell and the results were not good so I went back on remecade. Eventually once  again  I would like to "try" something else, humera was not the...

    Last reply
  • Exercise recomme

    I got diagnosed with AS about a year ago and the pain has gotten worse in the last 7 month. I went gluten free and it has helped with the pain a bit, and I tried yoga but I had to stop because my achilles tendonitis got worse and now I am going to physical therapy for it. I have started Humira but it...

    Last reply
  • AS and Aortic Root Disease

    Hi all, ​   So, we have been watching the size of my aortic root grow for the past five years.  It has been growing at a steady rate of 2-3 mm per year and is currently at 5 cm wide right at the root where the aortic valves are.  I am in the process of scheduling a second visit with my...

    Posted
  • Enterococcus gallinarum

    yesterday, 9-mar-18, scientists found Enterococcus gallinarum bacteria as main gut bacteria who triggers autoimmune diseases and thinks that we can create vaccine to prevent diseases. we can also treat them effectively. just search google news for Enterococcus gallinarum for more info.

    Last reply
Next

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.