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Ankylosing Spondylitis

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  • CBD

    Hi all I have chronic pain and all the usual remedies do not give me any relief CBD has a good record for relieving pain. Anyone had any experience of this drug?

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  • How quickly can AS progress?

    Hi - first post here, currently being investigated for AS. 42-yr-old male, B27 negative and bloods normal. Lower back pain last few months, particularly in morning. However this has progressed to thoracic pain which is when I went to the GP. Felt like I'd worked out every morning. This has continued...

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  • Is this A S

    I have developed severe pain in the left hip buttock back area which makes standing hard and walking harder especially as it makes me bend over / forward Is this AS and if so what are my options re treatment Thank you all in advance

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  • New to Naproxen

    Hi Everyone! I've been diagnosed with AS for over a year. I have refused to take medication until today. I did some housework and made a bad move. I can't walk properly as my lower back hurts so badly. So I have opened the cupboard and took Naproxen with Omelrazole as this was prescribed a year...

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  • Does this sound like AS?

    During both my pregnancies I had a lot of pain in SI joints but it cleared up within 3months of having both my son's. But I still have some stiffness and mild pain in that area (which doesn't really bother me in general). I did injure the joint during my first labor though. I do have pretty bad...

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  • Pain every day for the last 5 years had enough

    Hi I have had AS for 10 years now I am 28 now.  I have had both my hips replaced due to this illness and thought after the ops were over I would be pain free. I take humira and methoject but my pain levels are still so bad. I on about 9 codein a day. Just think what the point of taking all these...

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  • AS and loss of apetite/hunger

    Hi all I'm wondering if there's anyone else out there who's experiencing loss of appetite and hunger? I'm never hungry. I can go 2 days without eating at all. During the weekends I barely eat at all, during the week it's easier to remember to eat because I see that my coworkers...

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  • Anybody been on Cosentyx ?

    And if so, plase supply some feedback. Also, is it true that remecade is the choice of drug for AS patients? I was on humera for a short spell and the results were not good so I went back on remecade. Eventually once  again  I would like to "try" something else, humera was not the...

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  • AS + a 3 day old scoliosis, what to do?

    I felt first symptoms of AS a year and 8 months ago - pains in SI joint. After a few weeks the pains were gone. I had a similar episode this spring and it resolved itself without intervention.My GP dismissed on both occasions the possibility of arthritis even though I have raised the question. ...

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  • To take Humira or not

    I got diagnosed with AS about 4 years ago, I'm 56 now. I've been extremely stiff for years and had bouts of debilitating back pain/sciatica in my early 30s, but was never diagnosed. I was seeing a Physiotherapist for a few years and she said there is something seriously wrong with your body....

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  • AS and Diet

    Hello, I was diagnosed with AS last April.  I know I have had it for many, many years.  I then had a heart attack in May.   I have two questions. 1.  Has anyone had any heart issues related to their AS? 2.  Has a diet change helped anyone reduce their flares? Thanks in advance...

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  • MRI tomorrow - is it gonna hurt?

    Hi. I've got an MRI booked tomorrow evening for full spine and "pelvis SIJ both" (what does that mean?? I'm worried because I can't lay on my back on something flat for long before I get excruciating pain - will this hurt like that? I have no idea what SIJ means - will it mean contrasting...

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  • MRI and AS

    How good is MRI at picking up AS in beginning stages? If you have normal spinal mobility but intermittent SI area pain and 2nd half of night back pain?

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  • Discomfort at the heart while breathing

    Hello,    I have been suffereing from AS since 2008, I used to be fit with my regular exercises. Unfortunately, last year I went to Gym and made myself trouble with my lower, upper back pain and chest pain. Somehow I regained my health with Yoga and other exercises. These days I am feeling...

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  • AS & Move from India to the USA

    I was detected with AS at the age of 17 (now 30). The flare ups have been more persistent in the last 3-4 years with work keeping me super busy and life style turning sedentary.  I am planning to start on Biologics treatment in India (Infimab). However there is a possibility that I may relocate...

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  • Need advice. Possible AS diagnosis

    So the past few weeks I've been stressing about this AS stuff. I remember learning about it in respiratory and echocardiography school years ago with its effects on the aorta and lungs. 2 years ago I've had this waxing and waning SI joint area pain that when it flared up caused me to have a hard...

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  • Newly diagnosed with ankylosing spondylitis

    Hi all,  Sorry this will be a long first post,but I think it's important to get the whole story out there to get your full feedback. I guess I should start by saying I'm a 26 year old man.  Back in December 2016 I began having an issue with constant dizziness and issues with my balance....

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  • Advise regarding Benepali Pen and AS

    Need some advise - My fiancee is 35 years old and a farmer.  Has been diagnosed with AS and has been on the Benepali injection for 5 weeks.  His symptoms of tireness and fagitue has got a lot worse over the past 2 weeks.  Is this normal on the injection and it is supposed to...

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  • Ankylosing Spondylitis and Inflamatory Markers

    Does anyone have AS, but normal inflammatory markers? My old Rheum was pushing Humira 4 years ago, but I had no inflammation, so I declined. A more recent x-ray of my mid back shows it lit up like a Christmas tree and i am having pain here the last few months. So I guess the AS comes/goes? The reason...

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  • Swollen face and losing vision

    Hi Does anyone else have troublw with their face swelling and getting a black eye pluse losing vision? I have had uveitis a few months ago its not that i went to my eye specialist and besides dryness which is normal with having AS my eyes are structurally pefect But over the last year my eyesight...

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  • Ankylosing spondylitis and whiplash

    Does anyone have both ankylosing spondylitis and whiplash? Have you had any luck with physical therapi? I suffer from a whiplash after a car accident, ive had some problems with my neck and upper back since then (4 years). Then I was diagnosed with ankylosing spondylitis. My physical therapist doesnt...

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  • Consentyx feedback please

    Hi, I have recently been diagnosed with AS after suffering with RA for 17 years. Would say I am chronic at the moment with back, hips and right heel.  so tired I just want to lie down and sleep but I know that's probably the worst thing I could do!! Due to start Cosentyx next week but concerned...

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  • Benepali & part time to full time work

    Hi, I'm 37yrs just been diagnosed with AS. I suffer from back pain mostly during the night and waking up, although have recently started having pains in my hand, arm and feet, so not sure if this is the AS. I also have neck and head pain which i think is due to a disk herniation C5/6. Have tired...

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  • Ankylosing Spondylitis HLA B27 Negative

    My experience in the UK is that, if you have AS but test negative for B27 you will almost certainly not be diagnosed; no GP will take you seriously and even if the X-Rays show positive fusion of the sacroiliac after years of sacroiliitis, and you have related symptoms (e.g. spinal fusion, costochondritis,...

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  • Increased joint pain

    I have and intense joint pain in all joint except hips have had this disease over  15 years and I've never just this bad I've been on sulfasalaxine  mexetrate embrel Arava and  humors and now orencia started that a week ago also on rayos and precision I have never hurt this bad...

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  • SI pain

    does AS always have SI involvement?  So someone that has no x-ray evidence does not have AS?  59 yo female At this age Rheumatologist says if I have AS, this joint would be fused.  "Minimal degenerative changes" Everything else is positive for AS, just no SI involvement.  Thoughts?

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  • About hla b27

    Can any one help me out with the difference in between HLA B27 positive and HLA B27 negative

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  • 27 with AS looking for people to chat to

    Hey im 27 i have AS with grade 4 si joint disfuntion. The bottom of my lumber spine from s1 to l5 is completely calcified. I have 3 buldging discs a herniated disc and degenerative disc disease. I also cant feel the left side of my body and sometimes the inflammation in my eyes makes me go blind. I have...

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  • Biologics?

    I started taking Humira last summer. It was great, my back pain (almost) disappeared . I started to realize how much my back pain had actually affected my life. I really liked the Humira. At first I had some side effects like hair loss and bruising but that got better after a month or so. But then it...

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  • Fatigue, not depressed

    I've had a rough year. Last spring I (finally) was diagnosed with AS. I started taking Humira last summer. At first it was a bless, all my backpain was gone. I felt so good. Then the side effects came. Infection after infection. In the spring I had one UTI after another and they found that I had...

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  • Fear of autoinjector

    So i've been taking Enbrel for 9 weeks now. And last week i just got so f*****g anxious over taking the autoinjector. It has never happened before and now when i'm writing this i should take the injections. It is like some kind of self-presarvation that stops me from pushing the button. I know...

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  • Cbd oil

    A friend suggested I try cbd oil for pain relief. Having suffered from AS for 30 years and really struggling now im giving it a try. Doesnt seem to be making any difference. Anyone tried it.

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  • Ankolosing only occurs every 4 months?

    Hey, I'm new and just wondering about AS. I have recently been told my risks of having it but it's not confirmed from an osteopath just yet. My symptoms occurred after the birth of my child may 2016. Since then I have had a spasm attack/debilitating pain at every 4 month interval. It also always...

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