Skip to content
Ad

Ankylosing Spondylitis

All discussions in this group

Next
  • I have pain in lower back and diagnosed with HlA B27

    Its been 2 weeks , that I am suffering from pain in lower back . the report says its because of the developement of HLA B27 , ankylosing spondylitis. The doctors are giving steroids , what to do , what is proper care for this. I am 16 years.  Please help

    Last reply
  • Irritating , annoying comments about chronic pain .

    Don’t you hate it when the able-bodied try to encourage you with cliches that no longer apply to chronic pain patients? The one that irritates me most is, “If you can dream it, you can do it!”. or, "the power of positive thinking" ... Here's one of my favorites just keep moving and be...

    Last reply
  • Weird feeling in spine

    Hi all, I was diagnosed with AS in July. My bloods were negative for the HLA but AS showed up in my MRI. I also have disk herniation C5/6.   My symptoms are as with AS.. back pain early hours in the morning, through to morning so affects my sleep etc. In the last few weeks I have been getting...

    Last reply
  • What do my xray results mean?...

    Okay this is my xray results... Xray cervical spine- Straightening of the normal cervical lordosis. Discovertebral height, soft tissue planes and bony alignment preserved. No facet joint arthropathy. No cervical ribs or apical lung lesions.  Mild cervicothoracic scoliosis convex to the left....

    Last reply
  • In the process of diagnosis

    Hi everyone I am new here... I am 40 years old and my pain started at 25. I actually did a pretty good job at fracturing my spine at 19. They put my pain down to wear and tear and consequences of the fractures until recently. I will explain that the fractures were only stable fractures without any consequences...

    Last reply
  • How do you know if AS is in remission?

    Hey all. My CRP, ESR and ANA are all normal. No signs of acute sacroillitis in recent MRI but some damage due to chronic inflammation. Generally I feel better than I did 3months ago. No fatigue, no fever, sleeping through the night, no night sweats, vision is normal, stomach has calmed down etc ...

    Last reply
  • Seropositive AS possible?

    HI all, ​I'm a 40 year old female and I've suffered from worsening back, hip, neck and buttock/sciatic pain for the last two years or more. This year I have developed morning stiffness every day lasting over an hour an a half, which gets better with moderate activity and worsens with rest. I...

    Last reply
  • Just been notified i have scoliosis

    Hey guys new to the forum..  after many many months of issues and multiple other symptoms for god knows whats disorders/diseases i was told i have scoliosis a couple of days ago I get back, neck, chest and shoulder pains aswell as pains and sometimes numbness and loss of feeling in my arms and legs.....

    Last reply
  • MRI results

    Can anyone tell me what this means please? It says "There is subarticular sclerosis with areas of subarticular fatty replacement in the anterior sacroiliac joints bilaterrally and articular surface irregularities in keeping with chronic inflammation" I know it means I have AS but how bad...

    Last reply
  • New member VERY SCARED

    Hi I️ have been in THE MOST AGONIZING pain , I️ woke up one morning my left hip my front of left thigh into my calf ( which the calf was numb in the front ) was just on fire felt like my muscles were in a meat grinder ! Ran to chiropractor MADE IT WORSE , Ran to PT made it worse yesterday I️ went to...

    Last reply
  • CBD

    Hi all I have chronic pain and all the usual remedies do not give me any relief CBD has a good record for relieving pain. Anyone had any experience of this drug?

    Last reply
  • Ankylosing spondylitis and whiplash

    Does anyone have both ankylosing spondylitis and whiplash? Have you had any luck with physical therapi? I suffer from a whiplash after a car accident, ive had some problems with my neck and upper back since then (4 years). Then I was diagnosed with ankylosing spondylitis. My physical therapist doesnt...

    Last reply
  • Pregnant with AS

    Hi everyone, I really need some advice from any women who have recently had babies whilst suffering from  an AS flare. I have been diagnosed for 14 years - had my first child 7 years ago and was symptom free during my entire pregnancy and labour. I am now 31 weeks pregnant and have been suffering...

    Last reply
  • Anybody been on Cosentyx ?

    And if so, plase supply some feedback. Also, is it true that remecade is the choice of drug for AS patients? I was on humera for a short spell and the results were not good so I went back on remecade. Eventually once  again  I would like to "try" something else, humera was not the...

    Last reply
  • Benepali injections

    I've been taking for 7 weeks and up to now have had no improvement in fact if anything I feel worse but rheumatologist tell me it can take up to 3 months to be effective. I have noticed however that I am constantly very thirsty / dry. Does anybody else have this symptom ?

    Last reply
  • Ankylosing Spondylitis diagnosed in older people?

    I have painful, tender sacroiliac joints - as well as trochanteric bursitis - which means I have pain all around my pelvis and down my legs to my knees.  In the morning my lower back is very stiff and I'm unable to put socks on when sitting on the edge of the bed.  The pain can wake me...

    Last reply
  • Raising awareness in Australia

    Hello everyone I have been on this site for a few months now I suffer from spondyloarthritis mainly alkolysing spondylitis and psoriatic arthritis. I’m speaking to mainly people in Australia but everyone is welcome to join in on this conversation. I am serverly disabled from my condition and I have...

    Last reply
  • What constitutes 'hip involvement' in AS?

    42 yr old male, being investigated for AS and referred to Rheumy, and in the last few weeks my right groin has begun clicking whenever I flex my knee/leg by more than 90 degrees -  it makes a noise but doesn't cause pain necessarily. Do people think this indicates hip involvement in the diesease?...

    Last reply
  • How quickly can AS progress?

    Hi - first post here, currently being investigated for AS. 42-yr-old male, B27 negative and bloods normal. Lower back pain last few months, particularly in morning. However this has progressed to thoracic pain which is when I went to the GP. Felt like I'd worked out every morning. This has continued...

    Last reply
  • Is this A S

    I have developed severe pain in the left hip buttock back area which makes standing hard and walking harder especially as it makes me bend over / forward Is this AS and if so what are my options re treatment Thank you all in advance

    Last reply
  • New to Naproxen

    Hi Everyone! I've been diagnosed with AS for over a year. I have refused to take medication until today. I did some housework and made a bad move. I can't walk properly as my lower back hurts so badly. So I have opened the cupboard and took Naproxen with Omelrazole as this was prescribed a year...

    Last reply
  • Does this sound like AS?

    During both my pregnancies I had a lot of pain in SI joints but it cleared up within 3months of having both my son's. But I still have some stiffness and mild pain in that area (which doesn't really bother me in general). I did injure the joint during my first labor though. I do have pretty bad...

    Last reply
  • Pain every day for the last 5 years had enough

    Hi I have had AS for 10 years now I am 28 now.  I have had both my hips replaced due to this illness and thought after the ops were over I would be pain free. I take humira and methoject but my pain levels are still so bad. I on about 9 codein a day. Just think what the point of taking all these...

    Last reply
  • AS and loss of apetite/hunger

    Hi all I'm wondering if there's anyone else out there who's experiencing loss of appetite and hunger? I'm never hungry. I can go 2 days without eating at all. During the weekends I barely eat at all, during the week it's easier to remember to eat because I see that my coworkers...

    Last reply
  • AS + a 3 day old scoliosis, what to do?

    I felt first symptoms of AS a year and 8 months ago - pains in SI joint. After a few weeks the pains were gone. I had a similar episode this spring and it resolved itself without intervention.My GP dismissed on both occasions the possibility of arthritis even though I have raised the question. ...

    Posted
  • To take Humira or not

    I got diagnosed with AS about 4 years ago, I'm 56 now. I've been extremely stiff for years and had bouts of debilitating back pain/sciatica in my early 30s, but was never diagnosed. I was seeing a Physiotherapist for a few years and she said there is something seriously wrong with your body....

    Last reply
  • AS and Diet

    Hello, I was diagnosed with AS last April.  I know I have had it for many, many years.  I then had a heart attack in May.   I have two questions. 1.  Has anyone had any heart issues related to their AS? 2.  Has a diet change helped anyone reduce their flares? Thanks in advance...

    Last reply
  • MRI tomorrow - is it gonna hurt?

    Hi. I've got an MRI booked tomorrow evening for full spine and "pelvis SIJ both" (what does that mean?? I'm worried because I can't lay on my back on something flat for long before I get excruciating pain - will this hurt like that? I have no idea what SIJ means - will it mean contrasting...

    Last reply
  • MRI and AS

    How good is MRI at picking up AS in beginning stages? If you have normal spinal mobility but intermittent SI area pain and 2nd half of night back pain?

    Last reply
  • Discomfort at the heart while breathing

    Hello,    I have been suffereing from AS since 2008, I used to be fit with my regular exercises. Unfortunately, last year I went to Gym and made myself trouble with my lower, upper back pain and chest pain. Somehow I regained my health with Yoga and other exercises. These days I am feeling...

    Posted
  • AS & Move from India to the USA

    I was detected with AS at the age of 17 (now 30). The flare ups have been more persistent in the last 3-4 years with work keeping me super busy and life style turning sedentary.  I am planning to start on Biologics treatment in India (Infimab). However there is a possibility that I may relocate...

    Last reply
  • Need advice. Possible AS diagnosis

    So the past few weeks I've been stressing about this AS stuff. I remember learning about it in respiratory and echocardiography school years ago with its effects on the aorta and lungs. 2 years ago I've had this waxing and waning SI joint area pain that when it flared up caused me to have a hard...

    Last reply
Next


We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.