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Ankylosing Spondylitis

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  • I recently injured my mid back between the shoulders

    I was doing some work under the sink in late February. The pressure of lying on my back left me in considerable pain and I was bed ridden for a few days. I had some Percocet left from an old injury, which kept me mobile until my doctor returned from vacation. I had an x-ray done, which did not show...

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  • Re; Ankylosing Spondylitis

    hi. I have been diagnosed with Ankylosing Spondylitis in the last 6 years. And I am on These medicines; Meloxican Omeprazole 20 mg, Sulazine EC, Sulfasalazine, Now they want to proscribed  new medicin called Golimumab ! I  have not had much pain for the last 5 month as I used to get...

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  • Ankylosing spondylitis - Humira

    Hi, I was diagnosed with Ankylosing spondylitis and Doctor advised me to take Humira which I have taken for 3 months. Then when I had my MRI the inflammation was reduced by 50%. Therefore Doctor asked me to continue this for another 6 months so it will go away. I need to know after this if I can stop...

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  • I feel worried

    I'm a 42 year old female married with 4 kids. My doctor tested me a couple of years ago an it came back positive for it. An recently been having neck pains an shoulder pain. My dad has it an he found out 6 years ago. What should I do

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  • Heel pain and Achilles tendon pain because of AS

    I just got diagnosed with AS after long time treatment (2 years) of heel pain and Achilles tendon pain with no relief. I got HLAB27 positive and doctor ask to take NSAID (Arcoxia 60mg) daily and Salazopyrine + Metroxate. I started to take medicines for one month and still have lot of pain if stop taking...

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  • Weird feeling in spine

    Hi all, I was diagnosed with AS in July. My bloods were negative for the HLA but AS showed up in my MRI. I also have disk herniation C5/6.   My symptoms are as with AS.. back pain early hours in the morning, through to morning so affects my sleep etc. In the last few weeks I have been getting...

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  • Recently diagnosed and worried about the future

    Hi I’m 19 and I’ve recently been diagnosed with AS. I was heartbroken but not as scared because my mother and grandmother have AS.  However I’m worried about what the future might hold for me. I’ve already had to change my job because of it and I’ve had a real struggle with my depression. The doctors...

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  • Cbd oil

    A friend suggested I try cbd oil for pain relief. Having suffered from AS for 30 years and really struggling now im giving it a try. Doesnt seem to be making any difference. Anyone tried it.

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  • Ruptured quadriceps tendon surgery

    Hello, I ruptured my quadriceps tendon 10 months ago. I had surgery to repair the tendon. Had the surgery 10 days after the Diagnosis. My question is how important is getting the surgery as soon as possible for the quadriceps tendon? My knee won't bend that well and was told that it could be caused...

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  • Anybody been on Cosentyx ?

    And if so, plase supply some feedback. Also, is it true that remecade is the choice of drug for AS patients? I was on humera for a short spell and the results were not good so I went back on remecade. Eventually once  again  I would like to "try" something else, humera was not the...

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  • Exercise recomme

    I got diagnosed with AS about a year ago and the pain has gotten worse in the last 7 month. I went gluten free and it has helped with the pain a bit, and I tried yoga but I had to stop because my achilles tendonitis got worse and now I am going to physical therapy for it. I have started Humira but it...

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  • AS and Aortic Root Disease

    Hi all, ​   So, we have been watching the size of my aortic root grow for the past five years.  It has been growing at a steady rate of 2-3 mm per year and is currently at 5 cm wide right at the root where the aortic valves are.  I am in the process of scheduling a second visit with my...

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  • Enterococcus gallinarum

    yesterday, 9-mar-18, scientists found Enterococcus gallinarum bacteria as main gut bacteria who triggers autoimmune diseases and thinks that we can create vaccine to prevent diseases. we can also treat them effectively. just search google news for Enterococcus gallinarum for more info.

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  • Looking for advise on AS/ Spondylitis arthropathy

    Hi, recently I have been diagnosed with AS & potentially psoriatic arthritis. I'm 25 & as you can imagine heartbroken.  Drs want to start me on biological treatments. After Naproxen brought on lesions which they deemed guttate psoriasis. Now here's my concerns and worries... I'm...

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  • Cosentyx miracle drug?

    I have AS and been on Enbrel with great success for many years. During some flare ups I was switched to other biologists but always came back to Enbrel. A couple of years ago I started to get a lot of pain and inflammation in my feet that would only go away with a step down treatment of a very high dose...

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  • New to Naproxen

    Hi Everyone! I've been diagnosed with AS for over a year. I have refused to take medication until today. I did some housework and made a bad move. I can't walk properly as my lower back hurts so badly. So I have opened the cupboard and took Naproxen with Omelrazole as this was prescribed a year...

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  • MRI on a good day?

    Hi. I've been getting lower back and hip pain on and off for a couple of years now. For the last few months it's been getting worse and waking me up in the very early morning, I can't turn over and am very stiff. As soon as I get up, it eases off and I maybe get a little pain during the day...

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  • Spine correction surgery

    Has anyone had experience in spinal correction surgery called osteotomy to correct for bent over posture? I am considering this after having a compression fracture and not being able to stand up straight or hold back up without the use if my hands on my thighs.

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  • Seeking advice

    Hi, My boyfriend was diagnosed with A.S. quite a few years ago and im looking for advice on how to better manage his pain and progression.  He suffers alot with extreme pain and is finding it difficult to get any relief. Some doctors are unsure how to help because he also has a stomach condition...

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  • Cosentyx or Scapho in Ankylosing spondylitis

    I was advised scapho (secukinumab) By my rheumatologist . And i am on it since last 6 months and the results are better than remicade . Also its very cost effective if compared to other brands. Its just 15000 indian rupees or 240 usd for one vial. The best part about it is the side effects are very...

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  • Tingling in legs and hands

    Hi I was diagnosed with AS 20 years ago and have had lots of aches pains etc... with it, a few weeks ag a had a virus which triggered pain and stiffness in left side lower back, this eased but progressed to pain down my left leg, now I have tingling in legs and feet, does anyone else experience this?...

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  • Looking for anyone experienced in treatment with Cosentyx

    Hello!  there is a relatively similar thread but I am hoping to reach anyone who has had or is currently using cosentyx for AS. I am 24 y/o female recently diagnosed and researching biologic options as I need to select one for treatment.  Due to the unique mechanism of action of cosentyx...

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  • Possible AS? Advice would be appreciated

    Hi, my name is Harmonie and I am 21, I have experienced joint pain all throughout my life. As a teen, it was growing pains, later, I think as diagnosed with celiac disease and Hashimoto’s thyroiditis. I have had many blood tests to rule out any type of arthritis or inflammation. My Doctor told mea...

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  • Please need help now

    I've had cortisone injections in my both knees 6-7 weeks ago . today i woke up with a swollen right knee. i expected that the injection's effect would last longer. i want to know is there a cortisone medication with a long term effect . 

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  • solutoin

    I'm suffering from plid problems. From the last three years. Problems on L4-L5. Where is the best way to make a good surgery or in any country. Please tell us how effective the salon is.

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  • Ankylosing spondylitis and stomach pain

    Hi.just wondering if anyone ever had stomach problems related to AS? I'm a male, 37. Been diagnosed with AS about 5 years ago. Now 3 weeks ago i've got a pain which right in the stomach area, where the breastbone ends. It feels like something stuck in there, like a dull pain. Its there all the...

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  • As and memory loss

    Hello I’m a 35 year old female who was just diagnosed with ankylosing spondylitis.  On top of needing 2 hips and all of my joints / back being in constant pain I feel like I’m losing my mind.  I was incredibly sharp and I am forgetting everything now.  It’s effecting my life , everyone...

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  • What natural treatment helps with your AS Inflammation and pain?

    Hi all, I am newly diagnosed and new to this group. My rheumatolgist says I am in beginning stages of AS. MRI also shows I have fusion in my neck (C2, C3,C4,C5). I have decided to not take Humira or any other biologics. I am in search of a more natural AS remedy. Some nights it is hard to believe this...

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  • Any suggestions?

    Hi, I’m not sleeping due to pain. I have AS.  I was in a car accident last month and was hit very hard from behind. I have whiplash and a torn rotator cuff. My upper spine and right shoulder are keeping me up. I can’t get comfortable and it’s not improving.  It’s approximately my mid-thoracic...

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  • Can I rule out AS with an X-ray?

    Hi I'm 34 year old female that has been suffering with morning back pain for 8 years now. It started in my mid 20s in my lower back then the last 5 years or so it has been in the middle of my back behind my lungs/ bra strap area. I can't sleep for more than 5 hours without waking up from back...

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  • Left

    Anyone else have their partner walk out on them because they said  “I can’t do it anymore I can’t handle you being sick anymore it’s to hard”  This disease takes everything. 

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