28, I don’t even know what’s going on :(

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SO for the past month ive been going thru all these changes. To start off I have genital hsv 1, diagnosed back in April. But in september, i went to my obgyn and was diagnosed with Bv (which i had no symptoms of). The next day I started getting these tears on my perineum. They would literally last maybe a day if that then heal, but then the next day show up again. Sometimes they would bleed, and sometimes there would be only one small tear or multiples. I literally have gone at most 2 days without a tear occuring. THEN I noticed that my labia seem to be changing. THEY seem to be a more pink color as well as more wrinkles when ive never noticed this until now, and its starting to spread farther and farther down. I MAY have mild itching every now and then but nothing major, no discharge. NO symptoms but the tears and change in my labia. COULD this be LS? i have an appt with my gyn next week. BUT Im freaking out 😦

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  • Posted

    I am no expert and was diagnosed only 5 months ago, but as your skin is light brown the whitening (which can be an LS symptom) may be causing it to look pink. The tearing also sounds like a symptom of LS, but I am no expert. I wonder if your other 2 diagnoses were correct. Will you be seeing the same doctor that made those diagnoses?

    My perineum was getting rough but didn't tear. I was starting to have occasional uncomfortable BMs which I assume was caused by small tears, but the discomfort would ease very quickly.

    After using a medium strength steroid (prescribed by the gyn) for several months I went back for a check up and she said I was coming along well. Will be seeing her again in a couple of weeks.

    In my case the LS was caused by low estrogen. I am long after menopause. You might want to have yours tested. I assume you are much younger.

    Don't get freaked out. According to my doctor this is a manageable condition. You could try using an over the counter cortisone until you can get to see the doctor.

    From what other women post they seem to have sex despite having LS. You should start using a condom though, particularly if the hsv diagnosis is correct. Ask your gyn which material would be best.

    Good luck.

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    • Posted

      jackie, It's Triamcinolone. Saw my GP recently for annual and informed him of the gyn issues, what I was using. He is the one who said it was mid strength. Said: lowest is over the counter, Triam mid strength, Clobetasol the strongest. Seemed quite knowledgeable about LS which surprised me; some women say their gyns give misdiagnoses.

      When were you diagnosed with LS? Were you told it was due to low estrogen? I'm hoping to find out which (if any) women were diagnosed after menopause, what their symptoms are and if it has worsened over time. It's a little difficult for me to differentiate between the improvement from the estradiol (for the av) and the steroid for the LS as the whole area is improved. Keep reading about flare-ups, but mine has been a gradual process that I assumed was the av progressing.

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    • Posted

      Thanks, Beverly. I'm seeing an LS specialist in mid-nov and I'll see what she thinks about Triamcinolone.

      I was diagnosed with LS by a gyn in July, and the symptoms I have are burning of the labia. I was indeed diagnosed after menopause, and was told to use the clobetasol for 2 wks when a flare up occurs, and I always use the estradiol twice/wk. I've had to use the clob 4 times since July, and that seems excesssive to me. I went to a new gyn recently who Rx'd Protopic that felt like someone poured gasoline on my labia. It burned all day long, so I only used it the one time. Am now searching for something that doesn't burn.

      Does the Triam help you? How long have you been using it?

      Jackie

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    • Posted

      The hsv 1 diagnosis was correct, it was confirmed by swab as well as blood test.

      I will be seeing the same doctor than diagnosed the BV, but not the herpes. im super nervous because obviously something is going on. MY vulva now looks as if has a rash. Ive been using coconut oil.

      this is a current picture

      image

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    • Posted

      jackie, do you mean you have used it for two straight weeks four times since July? I'm not sure if that is a lot. My gyn had me using a small amount of the steroid every night for a few months, went back for a follow up and she said things were coming along nicely. So I can only surmise that using mid level steroid for months worked well. Am now using it twice a week.

      Will see the gyn again in a couple of weeks. After Dec I will be away for the winter so I hope to have this sorted out. Am using the hormone cream every night in an attempt to keep PH level to discourage vag infection. Hope that goes back to twice a week soon.

      How long had you been using the hormone cream before the LS diagnosis? Did your doc mention any role the estrogen (or lack of) may be playing?

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    • Posted

      Beverly ... sorry it took so long to respond ... I shut off the computer every day at about 2:30p and don't turn it back on until about 8:15a. ANYway, yes I did use the clobetasol 2 wks each time, 4x since July. It's very nice to hear that you don't think that excessive!

      I had used the hormone cream for almost a year before the LS diagnosis. My first gyno (who happens to be a male) didn't even say anything at all about LS. Just told me that's what it was, handed me a prescription for clob, and said to use it for 2 wks and the burning would stop. Ha! What an ass!!! Needless to say, I don't see him any more. Naturally he said nothing to me about the role estrogen in LS. Not a word except for what I just told you.

      I will be very interested to hear what the gyn tells you. Please keep me posted. This Triam sounds like a pretty good deal. Are you on Medicare? Is it a Medicare approved drug? What did it cost you? Finally ... how long since your LS diagnosis, and were there any other drugs you used prior to the Triam? What are your symptoms and how often do you get them?

      Thanks,

      Jackie

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