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i have been suffering with hip and groin pain for over 10 years and like most people I was fobbed off by my as having a 'weak core' and told I needed physio. I was extremely active for those ten years, used to be in the gym 6 days a week and even ran half marathons. In the last year my symptoms got worse with extreme groin/hip pain which my GP put down to a strained muscle. It eventually got so bad that I was in agony in both my legs and hips and could not walk without clinging on to the walls or furniture so I took myself to A&E. The Drs couldn't believe I had been getting around and actually asked me in bewilderment how I had been getting to work or just managing to leave the house? I was unable to lift my legs off the floor, under examination. I admitted was hospitalised for 4 days in December and put on steroids 60mg which worked instantly and was told I would get an apt with a Rheumatologist in January to discus treatment, I didn't actually get one until March and by this point I had tapered off my steroids and the pain had started to come back. I was told that anti TNF would be the best option for me, however I had to wait 2 months due to the NICE guidance. It's now June and I'm still waiting, I'm currently on methotrexate (makes me exhausted and very depressed) and sulfasalizine, though my rheumy told me they were unlikely to work. I'm now in constant pain and can't get around without a cane, I've also had to move back to Yorkshire with my parents (I live and work in London) as I have no one to help me in London (I live alone) and often need help getting dressed/getting shopping etc. I'm so frustrated I was diagnosed in December and I still waiting for treatment.
I wanted to know if any one else has had extreme groin pain with AS. It feels like my muscles are being ripped to shreds some days, and I have no strength in my legs and have to pick them up and lift them with my arms to get into bed - is this normal with AS? My rheumy says my hip is damaged, so maybe it's due to this?
i asked for a cortisone injection into the hip, but I'd had a needle aspiration in my hip to draw fluid whilst in hospital which showed infection So my rheumy is scared to give me one in case I get septic arthritis.
I just want to be able to be active again and get my life back on track, and would love some support.
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