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29 YO Female, 12 years of pain, rapidly increased widespread pain

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Kborsheim
Kborsheim

I need help or guidance into my health issues, no doctor seems to know or really care enough to continue doing tests to find a proper cause for my widespread pain.

My back pain started randomly and suddenly in high school one morning in class. I have had no traumatic injuries. I did play softball, basketball, and volleyball, however stopped playing at 12, 10, and 14 approximately. No injuries from any of these sports besides a nose injury.

Over the years it would be on and off pain, and then when I was 20 I had extreme lower back pain and went to the emergency dept. I had a follow up MRI which showed bulging discs or degenerative disc. at L4 L5 S1 ?? I don't have the report currently available.

Again on and off pain for a few years then at 28 it started to get much worse and more often.. probably 2 weeks out of every month I'd have pain in my lower back. this is when the pain gradually spread to my legs, calfs, ankles, hands, wrists. I had an EMG which was negative, autoimmune panel, negative, lymes, negative. 2nd MRI showed minor change with a central annular fissure in one disc. this MRI also showed that I have osteoarthritis in my spine.

Now I am weeks from my 30th birthday and the last several months the pain is extreme and every single day. I have been weak feeling, things feel heavier than they should including myself when walking. I walk slower when in this much pain. it is achey, dull and persistent. my upper legs on the top are the most painful. it is kind of tingly constant pain. my back will have sharp stabbing pain. pain can start from my ankles and work its way up, or start at my lower back or hips and go down.

I've been prescribed hydrocodone for 2 years now and this is the only relief I get. advil liquid gels, ibuprofen, tylenol, tramadol, gabapentin do not work for me. I'd say the last 6 months 1 pill wont do it for me, it helps but my pain is so severe and widespread that it's just not enough. does anyone have any insight into my case? thank you so much

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  • Kborsheim
    Kborsheim

    Posted

    I should add that my nerves aren't being pinched in my spine. Some possible diagnoses doctors have mentioned are: neuropathy, fibromyalgia and then one dr just said "I think it's your muscles."

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