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i had a large bi lateral PE in July 15 which nearly finished me off! was put down to a DVT from a long journey in a car (8 hours) - i was put on Warfarin, and sent home. I went to my GP and we came up with a plan (i didnt want to be on Warfarin - or anything else for that matter for life. So we planned that in December i would have a CT scan to make sure the PEs had gone, which i had - and they had gone. Then i came off of the warfarin at the end of January, and gave it around 6-8 weeks to get out of my system - then i had a Thrombophilia test to ascertain whether i was at risk of further PEs - the test showed i was not, and i was given the all clear - 1 week after the all clear, i started struggling to breath again, and recognised all the old symptoms plus a few more - chest pains etc - i took myself off to hospital, where i was scanned and found out i had several more PEs! - furter blood tests revealed that i have mild Protein C deficency in my blood - which is a known cause for PEs - so much for the tests eh - now i'm on Riveroxaba, and actually - i'm not so worried about taking it for life any more! - currently still have the PEs - but trying to get along as normal as possible - mind you i feel like a heavy smoker at the moment! PS - smokers usually die from these.
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