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3 months no diagnosis, no hospital appointments

Posted , 4 users are following.

lisa68580
lisa68580

I've been off work for 3 months waiting on a proper diagnosis, I've been referred to ENT, Neurology and Cardio dept. In the past I was diagnosed as a migraine suffering but this is not like before hence new referrals. I'm a 47 year old woman I run a payroll for a uni and I can't use a VDU at the moment. Has anyone out there experienced screen distortion, sickness, sore eyes. I'm pretty much house bound as I get exhausted, dizzy and confused when I go out so much so I am not trusted to shop alone. I take Betahistine as it seems to enable me to move better. I have read so much over the past few months and waiting for any kind of diagnosis or appointment is just adding to the problem.

0 likes, 5 replies

5 Replies

  • judyan20
    judyan20 lisa68580

    Posted

    I have been told BT the neurologist that my dizzi ness is probably migrainous. I could not look at a screen and found cooking difficult. I referred myself for vestibular rehab and it helped a lot. This was a year ago and I still have bad days but mostly I am getting better. I take anti anxiety medication which is meant to prevent another migraine.

    I go for walks everyday and go shopping and meet friends for coffee. My life hasn't ended but it changed. My balance is much better as I do tai chi exercises everyday. I hope this is reassuring. I find mostly bad news on this site!

    • lisa68580
      lisa68580 judyan20

      Posted

      Thank you it is nice to get some positive feedback back.
  • frances72228
    frances72228 lisa68580

    Posted

    Have you read about magnesium deficiency? It's a long story, but I took a vitamin D supplement and ignored the advice about magnesium, and ended up feeling dizzy, my eyes did weird things, and felt sore and heavy, and I was very tired, and sort of confused. Haven't heard of sickness, but loss of appetite is a symptom. So I am currently restocking my body's magnesium store and starting to feel better. There are so many things it could be, but that is one possibility.
  • angiegirl
    angiegirl lisa68580

    Posted

    Sorry just lost my connection it's rubbish where I live.  So briefly I said I would like to try alternative therapy have you tried it and if so how did you find out where to start. I also have not been diagnosed yet. My Doctor is great and due to my complex medical condition I am restricted what I can try.  I am 59 and I have had it on and of for about 3 years I think.  You are right about the shopping as the stumbling rubs your life.  I hope you soon get diagnosed and sorry I'm not much help to you but as they say  "Keep smiling"  I know it's hard.  Take care.
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