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I'm a 33 year old mum of 2 and for the past 3 months I've been through a awful time.
It all started off I was experiencing the most intense deep burning pickles all over my body. They would come and go in different parts, I was at first describing it as an itch, but it was far more intense.
I proceeded to get on with life but 2 weeks on, I started to notice small pink circles appearing on my chest and inside my arms. They would come up and last around 24/48 hours. When they would disappear, new ones appeared.
I was then put on anti histamines, they never worked.
The prickling was getting worse, and one evening coming home from work, I got undressed, and noticed a large bruise on my thigh that appeared with no known cause.
I had been suffering with a severe pressure headache and felt unwell, so took myself to be checked at the hospital. They ran bloods and again all come back normal, however the doctor did mention Vasculitis and I'm to see my doctor.
So i went to my doctor who gave me a course of steroids, and referal to a dermatolist for further investigation on my skin flares.
I got seen rather quickly as I got a cancellation, however the dermatologist I saw said he couldn't do any biopsy as my skin looked clear as since taking the steroids, my skin had calmed.
I explained all my symptoms and was quite distressed as the burning and prickling pricing is invisible and he just couldn't reassure or help me in any way.
Anyway, another werk or 2 have gone by and I am now experiencing new severe symptoms of what seems nerve pain in my hands. It comes and goes but when the sharp sudden shooting pain in my fingers comes on it almost has me in tears.
I have lowered my steroids as the doctor has told me to seen myself off, and now I'm noticing the pink raised spots on my chest are coming back.
I also notice that when I get this sharp burning prickling sensation, I have tiny purple dots come up on the skin.
I feel like the doctors are looking at me like it's all anxiety related, and I'm so fed up beyond words.
I have a one year old daughter and 7 year-old son and before 3 months ago, I was a happy energetic mum who was in good health.
I am only anxious because of what I am experiencing and not seeming to get any answers.
I also the past week have been having the shakes, my arms are very weak and having severe pressure headaches. Could this be to do with the steroids?
I am here because of the doctor in the hospital mentioning his concern of vasculitis.
However my doctor is very dismissive of anything as all my blood tests have come back normal.
This has made me anxious and I am so worried. I know something's not right and I don't know what to do next. I just want treatment and to get to the bottom of this.
Does this sound anything like vasculitis related and if so what do I or my doctors need yo be doing?
I really appreciate anybody's time,
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